Autism Awareness UK

01/06/2021

This link was sent to me by Tish Piwowarek edit: this was the message she wanted included:

As someone who has watched their autistic brother grow up struggling with constant bullying, this is something really close to my heart. This independent film project will raise awareness about autism and the darker impacts of bullying and is crewed by people who have family members with autism, or themselves are on the spectrum. We all know the painful reality of this subject.

A short film focusing on Autism & Mental Health. | Check out 'Misunderstood - Short Film' on Indiegogo.

01/05/2021

This is getting worrying, as since last March this kind of behaviour was the
3rd one I have heard of, the other 2 were in the states.

Metropolitan PC Benjamin Kemp used CS spray and baton on 17-year-old with learning disabilities

26/09/2020

This government is .... even the announcement of the app was done with fanfare and was uplifting but it looks like that again, the government hasn’t joined the dotted line.

21/07/2020

I wouldn’t do it as I don’t think it’s right and might be difficult to unteach, but there again I am lazy - but you decide- a mum who is struggling financially managed to get her son to finally eat rice by smothering it in chocolate spread. When I questioned her son’s eating she did mention he eats pasta with a tomato based sauce - so why not try that?
Would you do it? Or do you feel it would create another problem to solve in the future?

18/07/2020

For Some... I have finally had it ... this is undoubtedly a rant.

Grow up people and realise it’s not about you, none of it is.

We seriously get tons of emails a months 30 on average month from parents mostly in the UK, 1-2 US and Australia.. all wanting to start a business - they all start pleasantly asking for an opinion on whatever their business idea is - my standard answer I have no viewpoints to offer... and then they get annoyed and ask or demand we share our supplier list and advertise their business- excuse me?
20 years ago we went out to do our market research and worked with ethical manufacturing to produce our designs.
I knew nothing about business or designing or anything about running a workshop, I spent 2 years researching and learning and protecting our intellectual property.

Neither I or Autism Awareness UK have any interest in teaching individuals how to run a business or how and where to buy their goods from, even if they are ASD parents.
When I say, I have no opinions I mean that - none - I don’t care - full stop.

If you were a SNs school or a social enterprise it would be a different matter we would do everything ensure that enterprise was a success but not individuals - this is why autismawarenessuk has never run a support group or registered as a charity. As long as we can carry on surviving and have enough to run our next campaign we are not interested in what parents get up to with their own lives our only interference comes when something is harming ASDs.

Now the abuse we get, for saying we can’t offer advice on startups nor are we going to do your advertising or research for you, is now beginning to get worse. The truth is I don’t care.

I have really lost patience with the sheer amount of abusive emails we have been getting during this lockdown, you might call yourself a warrior mum, let me tell you the truth - the real war is not being fought on the Internet or on your keyboard, the actual battle is in the streets, neighbourhoods -our own communities where discrimination is running rife and the right wing governments across the world are encouraging the rise of this hatred.
That real battle needs brave warriors.

Ok rant over. I have never asked or forced anyone to like this page - if you don’t like what we post all you have to is click unlike.

17/07/2020

We can’t wait for our PM to call an enquiry 2 years down the line we need and have to force an enquiry now. Write to your MPs and ask why so many disabled persons have died, personally I also want to know how conditions and standards of living helped in these deaths.
Let’s get some answers.

The government has been accused of a “totally reprehensible failure” after its new Disability Unit failed to make a single announcement in more than three months, while more than 20,000 disabled pe…

26/06/2020

Hans Asperger claimed Autistic people have no sense of humour- here’s a thought - maybe just maybe Hans Asperger wasn’t that funny?

Everyone I have had dealings with have always seen the funny side... some love slapstick too..

16/04/2020

I have officially been told this - if you get hold of the social worker, they can officially inform the police your car registration number and you won’t be stopped within your county limits if you need to take your child to favourite places for exercise, I checked this information with North Wales, GMP and West Midlands just to be sure and all 3 confirmed that Social Workers are informing them and they will allow free passage as long as it isn’t abused. For exercise only as many times a day as is needed within county limits only.

14/04/2020

Woohoo we can take our children out to all their favourite places! Edit- No we can’t! I just checked this out... the 2 meter rule has been the only one that has changed, all it means is carers can take the children out and stay close, and the children can go out more than once..
I advised wrongly you still have to stay locally..
So sorry.

Policy updated after lawyers challenge ‘discriminatory’ lockdown measures

12/04/2020

This list is an eye opener

12/04/2020

After this is over- the Clowns who are in government have a lot of questions to answer. Facts and timelines is there in this article for all to read. The blame for each death lies solely with our government.

Ian Sinclair and Rupert Read with comprehensive countdown to how Britain came to have one of highest COVID-19 per capita death rates in the world.

10/04/2020

Did you sign that petition I posted? Are you happy that some of OUR children will not be treated or nor even an attempt will be made to save them... this is serious folks, I might not know you personally but your ASDs are my wider family, I care for them as much as I care for my own, I wouldn’t be doing this if I don’t care - sign that petition and share it too - ASDs are not expendable they are the future.. please don’t let them cull us, we matter.

Look at my last post and see the petition and please share it.

'Do not resuscitate' letters were sent to a care provider for adults with learning disabilities.

03/04/2020

I’ve got to say this in-fact I should shout it loud, my DD’s social worker and the day centre staff are the tops... although all services have been stopped by the council, the SW offered to arrange some of the staff who work with dd to come and give us some respite if we needed it, I refused because I don’t want to put anyone, including dd at risk, so she arranged via direct payments for an extra £250 if I needed to buy any craft stuff to entertain her.

The manager at the centre offered respite too, and then asked if we needed any shopping done as her staff are all classified as essential workers they can travel to do the shopping and drop it off if we needed help.

How lovely and thoughtful is that? There are some really great people who are willing to go the distance to help...

03/04/2020

Some of the supermarkets are only allowing one person in, I have heard (Sorry dads no disrespect meant but it’s only mums who have contacted me) that mums are having difficulty shopping whilst with their disabled children, now if you are a single parent and a carer I would suggest carrying an ID your carer’s allowance letter your child’s pip letter and hope like mad the shop security have some sense!

The only social worker I have been able to ask is a local one and she said if carers contact them they would write a letter to identify people as carers - I am in Wales so I don’t know if the same would apply in the rest of the country.

02/04/2020

OK you stood outside your door and clapped loudly, you showed your appreciation, good for you... now you have woken up the nurse, doctor, care worker, police, fire, postal and council workers who were trying to catch up to their sleep and rest... how about showing real appreciation of the work they do - write to your MPs shout at the government to really save the NHS and help the front line of our service providers by testing them and providing them with the appropriate protection they need? Show that you really care about our carers.

02/04/2020

Ps I know today is WAAD - but it’s not safe for anyone to go out raising awareness- stay at home keep safe, we will shout about autism even louder next year.

02/04/2020

For months they say public have no need to wear masks now everywhere is sold out they said we should ... I run these up after watching https://youtu.be/BCJcE-r7kcg checked with the lab what is best for an insert - a thin panty liner or a cooker hood carbon filter... had no elastic so pinched some from knickers for now, have ordered some to be delivered on the 4th.
Not perfect but there again my sewing machine has been an ornament, not bad for the only sewing project I have completed- they are easy to make - a fat quarter yields 2 masks.. those 3 in my novice to sewing struggles took 1hr to make, it took longer to try and unpick knicker elastic!

31/03/2020

Is this going to be normal? Culling? Ok this was withdrawn but this is outrageous.

GPs’ practice backs down after advice aimed at protecting ambulance crews from Covid-19