Support for SEND

Support for SEND Peer support and education service for parents and carers of autistic children.

Parent to autistic children | Experienced SEND practitioner 0-16 | Worked for Autism Central | IPSEA SEND Law Levels 1+2 | * £25ph

11/01/2026

10/01/2026

ℹ Needs Assessment VS Carer's Assessment from Contact - For families with disabled children

Many families are not aware that there are two different social care assessments, each with a distinct purpose.

A Needs Assessment considers whether a disabled child and their family require additional support from the local authority, and what services may be provided to meet those needs.

A Carer’s Assessment focuses on the parent carer and must consider physical, emotional and mental health, wellbeing, employment, housing, relationships and other factors that affect their ability to care.

These assessments are separate. You can request either or both, and one does not replace the other.
Eligible children and carers should receive a written plan setting out support, outcomes and review arrangements.

More information about social care assessments and legal rights is available at 🔗 https://contact.org.uk/help-for-families/information-advice-services/social-care/needs-assessments/

Great summarised explanation of the PDA nervous system.
10/01/2026

Great summarised explanation of the PDA nervous system.

Understanding the PDA Nervous System
Why It’s Not “Won’t,” It’s “Can’t”

If you really want to understand PDA, you have to understand the nervous system underneath it.
Because PDA isn’t about personality.
It’s not about behaviour.
It’s not about “choices.”
It’s a physiological profile, a brain-body system wired to detect pressure differently.
And once you understand that, everything about PDA makes sense.

A PDAer’s nervous system is built on protection first

Think of the PDA nervous system like a highly sensitive alarm system.
It wasn’t designed for compliance, it was designed for survival.

Demands, big, small, spoken, unspoken, all get processed as:
⚠️ pressure
⚠️ loss of autonomy
⚠️ potential overwhelm
⚠️ threat to safety

Not because the person is dramatic.
Not because they’re avoiding responsibility.
But because their body sends a signal that says:
“This is too much right now.”

So what counts as a “demand”?
Here’s the part many people miss:
• “Time to get ready.”
• “Can you turn off your game?”
• “Let’s go.”
• “Choose one.”
• Routines
• Expectations
• Social interactions
• Even their own goals or plans

For a PDAer, these can activate the same part of the nervous system that responds to danger.
This is why they may freeze, negotiate, avoid, explode, comply then collapse, or mask until burnout hits.

The PDA nervous system moves FAST
A PDAer can switch states quickly:

Regulated → Activated
A tiny shift in tone, urgency, or expectation can send them straight into fight/flight.

Activated → Panic
Once adrenaline hits, logical thinking shuts down.
You’re now dealing with a survival response, not a behaviour.

Panic → Shutdown
If they can’t escape the demand, their system may go flat, numb, or inward.

None of this is conscious.
It’s neurobiological.

Why the nervous system reacts this way.....
PDAers often have:
✔️ High interoceptive sensitivity (or low — both can be overwhelming)
✔️ High threat perception
✔️ High sensitivity to control
✔️ Difficulty regulating once activated
✔️ Strong need for autonomy to feel safe
✔️ Intense emotional experiences
✔️ Deep thinking + anxiety loops
✔️ A history of masking or misunderstanding

It’s a profile wired to stay in control to stay safe.

And here’s the part families need to hear:
When a PDAer resists, avoids, panics, argues, or shuts down when faced with a demand…
They are not being difficult.
They are not being oppositional.
They are not manipulating you.
They are protecting their nervous system the only way their body knows how.

What helps the PDA nervous system feel safe?
Predictability without rigidity
Collaboration instead of instructions
Declarative language (“I’m wondering…”)
Choice and autonomy
Low-pressure environments
Humour, connection, shared control
Pauses and gentle pacing
Interest-led engagement
Non-judgmental co-regulation
Removing shame from the equation

Safety first.
Connection second.
Then maybe ..... maaaaaaybe ......the demand can be explored.

If you take nothing else from this,
PDA isn’t a behaviour problem.
It’s a nervous system profile.
And once you support the nervous system, everything else can soften.

For various reasons, I have had to get out the paper work 'stack' that relates to one of my children('s SEND).Now, many ...
08/01/2026

For various reasons, I have had to get out the paper work 'stack' that relates to one of my children('s SEND).

Now, many other parents and carers will have a far bigger 'stack', and some parents and carers will have an absolutely huge 'stack' (that may even be neatly organised into folders, with coloured dividers - something that I could only aspire to achieve); however, whatever size 'stack' of paperwork that parents and carers keep, it's worth remembering that every piece of paper that creates that stack represents a telephone call a parent carer has had to make; an email a parent carer has had to send; or an appointment that a parent carer has had to take their child to.

So with such hideous things being written in the press, at present, about SEND parents; consider whether any parent or carer would actually put themselves through that level of time and effort, if their child wasn't experiencing substantial struggles that required additional support to alleviate.

Beyond Autism state that '70–80% of autistic children and adults experience or have experienced mental health problems i...
06/01/2026

Beyond Autism state that '70–80% of autistic children and adults experience or have experienced mental health problems in their lifetime'.

If your child or young person is experiencing mental health difficulties, remember that their mental health should be given equal priority to their physical health and if they are unable to attend school because of these difficulties, yet are being penalised, this equality was enshrined in law, in the Health and Social Care Act 2012.

https://www.beyondautism.org.uk/about-autism/understanding-autism/mental-health/

06/01/2026
*Visual routines/timetables may not be appropriate for children and young people with PDA, as they present time-based de...
04/01/2026

*Visual routines/timetables may not be appropriate for children and young people with PDA, as they present time-based demands.

And hundreds of thousands of us will be right there, campaigning, with you!!!
01/01/2026

And hundreds of thousands of us will be right there, campaigning, with you!!!

This Times “speculation” had better be wrong—It would actively cause harm to children—there isn’t the expertise or infrastructure needed for this cruel plan. If it’s accurate, we will campaign against it vigorously. Which parent or school would back it? https://archive.is/KFcWB

01/01/2026
Taking 2026 bookings!Peer support and education for parents and carers of autistic children may include, but is not limi...
01/01/2026

Taking 2026 bookings!

Peer support and education for parents and carers of autistic children may include, but is not limited to:
- Understanding and supporting autistic children and young people, in general
- Understanding North Yorkshire diagnostic pathways and processes
- Understanding and supporting autistic overwhelm (Ie meltdowns and shutdowns)
- Understanding and supporting barriers to school engagement and attendance
- Understanding and supporting masking and fawning
- Understanding SEND Law and how to proceed in interactions with settings and the local authority

For more information, just get in touch.

Andrea

Address

Aiskew
Bedale

Telephone

+447597324791

Website

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