Families with ups and downs

27/04/2026

Anna is taking part in the latest part of the research. She needs to wear the device for a week and it measures her activity. It’s really important that we participate in all research to inform planning for our children and those who will follow.
Anyone between 8yrs-40yrs is welcome to participate 💙💛❤️

25/03/2026

A massive thank you to one of our amazing dads, Stefan Sánchez Murray who organised yet another fantastic night out and fundraiser for our group. He raised an incredible £800 we are so grateful for your continued support!

Everyone truly rocked their socks, and a special shoutout to our Sarah, who had the most amazing night 💫

Thank you to everyone who attended, to the brilliant performers, and to those who kindly donated raffle prizes. We couldn’t do it without you all. Massive thank you to another one of our amazing and talented Dads Cormac Neeson who preformed on the night. What a fabulous talent.

💛💙💛💙💛

22/03/2026

Our younger group had the best time at Global Adventure Play for our world down syndrome day celebrations. Massive thank you to natasha and the team for making our celebrations so much fun and for the yummy food. 💙💛💙💛💙💛

22/03/2026

Our Youth group T21 Celebrating karaoke style 🎤& 🍕for World 🌎Down Syndrome Day at King Pins ! Our young Adults Know how to Party 🥳😍😂
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21/03/2026

Dont forget about this amazing celebration for world down syndrome day,organised by one our dad's Stefan Sánchez Murray. Such a brilliant night last year. 💛🩵💛🩵💛

The Down Syndrome event at The Deer's Head on 21 March. It’s a PayPal link.
£20 each

Use this link theupsanddowns21@outlook.com

Attach name and address and how many you want and Stefan Sánchez Murray will send to you.

Amazing line up for this
Arms of Venus de Milo
Zac Mac
Black Dog Moon
Cormac Neeson
Philip McCarroll and Payola
😊❤️🤘

21/03/2026

Happy world down syndrome day to all our amazing families.

We can't wait to celebrate with everyone.

We would love everyone to rock their socks today in celebration with us.

Today and everyday we think of our beautiful Angels.

Ross💙 odhran💛Lottie💙Lucius💛 Aidan💛 Families Downs

18/03/2026

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Email template below!
Please please help ‼️

Subject: Adult provision for people with complex needs

Dear Minister,

l am a parent of a young person with complex needs in Northern Ireland.

I understand the Learning Disability Service Model is being presented as the response to gaps in adult provision. However, my child would not be covered by this model, despite having significant support needs.

This is because:
[Add one sentence about your child]

I am deeply concerned about what will happen when my child leaves school.

What provision will be in place for individuals with complex needs who do not meet the learning disability diagnostic threshold?

No young person should be left without support because they do not fit a category.

Yours sincerely,
Your name

⬇️

Send to the Health Minister:
mike.nesbitt@mla.niassembly.gov.uk

💙 When you've sent it, comment "DONE" below

Let's show them how many families this affects.

18/03/2026

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18/03/2026

Dont forget to rock your socks for world down syndrome day 21st March 2026

The theme this year is "Together against loneliness.

We are proud of the beautiful friendships our children and young people have.

Help us raise awareness by wearing your brightest, colourful and fun socks. 💙💛💙💛

Families Downs

01/12/2025

What an Amazing Day our wonderful Families had 👏🏼👏🏼👏🏼
We had very special people to make it happen 👏🏼👏🏼👏🏼
Massive Thankyou to Falls Bowling Club / Committee who donated Selection boxes for our Families WOW !🤩 , putting decorations up , Fantastic Staff sorting hall & always checking in with us 👏🏼👏🏼👏🏼👏🏼👏🏼
Special Thanks to The Mac Catering , Wiggles entertainment, K-pop girls , Minnie & Mickey Mouse , DJ Mark , our Balloon maker , Face painter , Glitter tattooist , Our Lovable Santa & his Helpers 👏🏼👏🏼👏🏼👏🏼 our Families done fantastic with collection for The People’s Kitchen 👌🏽 We Raised in ballots from parents & families , collected on the day , We matched it Totalling just over to a fantastic £600 for a special boy who will be going abroad for Treatment & we wish him our very best wishes 💙💛