Endometriosis UK Northern Ireland Support Group

10/05/2024

Do you know the symptoms of endometriosis?

By sharing this post, you may help to reach someone who doesn't 💛

While symptoms listed are considered the most common or ‘classic’, other symptoms have been reported and everyone’s experience is different.

www.endometriosis-uk.org
Cara Hunter Sdlp Social Democratic and Labour Party
Endometriosis UK Endometriosis UK Northern Ireland Support Group

25/03/2024

‼️ Important Notice ‼️

Hi all, unfortunately due to personal circumstances, we have had to cancel the face to face meeting tomorrow, 26th March.

We were really looking forward to our Easter movie night and so sorry it can’t go ahead. We will be having a movie night in its place on 30th April for the following face to face meeting.

Thanks all for your understanding 💛 and we hope you have a wonderful Easter 🐣🌸

04/12/2023

Hi all, just a quick post to update with our new email address which you should use if you wish to get in touch with us.

endowarriorsni@gmail.com

We unexpectedly lost access to our previous address, so if you haven’t heard back from us please resend your email to the above address. Thank you 💛

25/10/2023

I met with representatives of Endometriosis UK Northern Ireland Support Group to discuss their concerns around progress on the establishment of the Regional Endometriosis Centre by the Belfast Health and Social Care Trust. We also discussed the need for more education for young women and a great understanding among GPs so that referrals for tests are better targeted from the outset. I aim to follow up on these issues.

If you would like to learn more, get in touch with the page for support.

24/12/2022

Merry Christmas everyone, and a Happy New Year! 🎁

27/11/2022

Hi all, following a conversation on our last online support meeting; we wanted to ask you about what it is you want your employer/school/university to do to help you?

It can be hard for them to know what it is we need, and it can be hard for us to ask for it.

Our aim, with this survey is to build a list of guidelines that you can approach your manager/HR department/teacher etc. with to give some practical, helpful modifications for daily life with endometriosis.

All survey completions are anonymous and we will use the collective response to create a document that we will share in this group in due course.

Thank you all 💛

Take this survey powered by surveymonkey.com. Create your own surveys for free.

12/11/2022

We feature in this article in the Financial Times

Belfast campaigners say they are struggling to reach politicians, as waits for endometriosis diagnosis worsen

11/11/2022

Today we met with Naomi Long to discuss endometriosis. We look forward to future meetings including RCOG to improve care and education here.

06/11/2022

We know it's not always possible to attend our online and face to face meetings, due to other commitments, logistics of getting to Belfast, or living too far away.

So we want to ensure you all have access to the support you need. We never want you to feel isolated or alone. Hayley and Caroline are available for one to one chats on evenings or weekends.

If this is something you are interested in, please message us on FB or email us at northernirelandgroup@endometriosis-uk.org

💛

03/11/2022

Hi everyone, just a reminder to those requesting to join the group, please make sure to answer the questions and agree to group rules so we can accept your request 💛

27/10/2022

Following Claire’s BBC Newsline story which aired on Tuesday, she has been contacted by BBC Radio One!

Listen tonight at 5:45pm to hear Claire speak about her experience with endometriosis.

Well done Claire and thank you for sharing your story, know it won’t have been easy but it’s needed!!

I’m sure everyone in this group will agree with me that highlighting the state of NI care on a national level is long overdue 💛

27/10/2022

Read about Olivia’s story and our support group in this article by She Matters. Thank you to Emma for taking the time to speak with us 💛

As many women endure gaslighting in addition to severe pain from endometriosis, She Matters reveals how some gynaecology waiting lists have trebled.

25/10/2022

Claire Nicholls says her reproductive organs are so damaged, it has affected her ability to have children.

25/10/2022

23/10/2022

Hi everyone!! Hope everyone is having a lovely weekend and just a reminder for our Face to Face, this Tuesday 25th October at 7pm, We are going to be watching Hocus Pocus and We will be having a mini party with festive snacks and refreshments!! For those who cant join us face to face the link to join the movie will be posted in the private group Endometriosis UK Northern Ireland Support Group, (so if you haven't joined the group please do) also you can join our mailing list by going into Endometriosis UK website - going to supports groups - and adding the Northern Ireland Group.

Cant wait to see you all on Tuesday!!!

10/10/2022

Hey everyone, you can find an article about the group in this month’s edition of Local Women magazine!