Childrens Heartbeat Trust

Childrens Heartbeat Trust N.I Charity providing practical, emotional and financial support to children with heart disease. Social Media sites are open to anyone.

Social Media Policy

Children’s Heartbeat Trust (CHT) reserves the right to administer its social media pages in accordance with this social media policy.

1.1: Users agree not to participate in mischievous or malicious behaviour which causes damage or may cause damage to CHT or to any other individual or organisation.
1.2: Messages must not be obscene, vulgar, defamatory or libellous, sexually or

ientated, hateful, threatening or otherwise violate any laws or good morals and practice.
1.3: Messages containing contact details, phone numbers, fax numbers or postal addresses are not allowed and will be edited or removed by the Website Administrator
1.4: Messages must not contain advertisements or references to products or services. This includes fundraising or awareness events which CHT does not consider to benefit our charity.
1.5: Messages which appear to impersonate someone else are not permitted.
1.6: Users agree not to post any copyrighted material unless the copyright is owned by you or by the charity.
1.7: Any user who feels that a posted message is objectionable is encouraged to contact CHT immediately by e-mail at admin@childrensheartbeattrust.org.
1.8: Users acknowledge that CHT is not under any obligation to monitor or review discussions on social media sites (i.e. Facebook, Twitter) and you agree that you are entirely responsible for all content that you make available.
1.9: All messages posted on the CHT website and social media pages remain the property of CHT and we reserve the right to edit or remove posts without any prior contact with the author. The deletion of messages is at the discretion of the CHT Website Administrator. Warning
2.1: Social Media sites are often a public forum and we encourage users to be welcoming and supportive - but remember your posts can be seen by thousands of people every day. Content
3.1: Posting your personal details (such as phone number, address) or arranging to meet someone in person alone can be unsafe. Please keep your personal safety in mind. Any postings of this kind will be removed if they are noted.
3.2: All messages posted on the Social Media sites are the views of individuals and do not represent the views, policy or advice of CHT. We cannot guarantee that the information posted by individuals is accurate and it is intended for discussion and support only. Although CHT will try to step in to correct any obvious inaccuracies you should not follow any medical or treatment advice without firstly discussing it with ourselves or your medical practitioner.

Did you catch Alfie in CBBC's Operation Ouch?📺Last summer, Alfie and his family were busy filming in Fermanagh for the T...
26/07/2025

Did you catch Alfie in CBBC's Operation Ouch?📺

Last summer, Alfie and his family were busy filming in Fermanagh for the TV series operation ouch on the CBBC!

In Season 13, Episode 11, Alfie opens up about life with congenital heart disease and scoliosis, sharing his challenges and triumphs.. He also heads out on an exciting kayaking adventure with his friend George, proving that nothing can hold him back. 🚣‍♂️❤️

You can watch Alfie here: https://www.bbc.co.uk/iplayer/episode/m0028xcv/operation-ouch-series-13-11-when-you-need-to-wee?seriesId=b03cdr8s-structural-13-m0028dx2

Enjoy!

Happy Fab Friday Everyone! ⭐With August just around the corner, we've had a fantastic year so far meeting all of our fab...
25/07/2025

Happy Fab Friday Everyone! ⭐

With August just around the corner, we've had a fantastic year so far meeting all of our fabulous fundraisers across NI.
No matter how big or small, help to make a life-changing difference to local children and young people living with congenital heart disease (CHD).

Every pound you raise helps us deliver emotional, practical, and financial support to heart families, from the moment of diagnosis, through treatment, and long after.

❤️ Whether it’s providing a place to stay at Clark Clinic, funding travel for vital appointments, or helping relieve some anxiety that families face during difficult moments, your generosity makes a real and lasting difference.

📸 Have you recently hosted a fundraiser or are you planning one?

We’d love to hear from you! Whether it’s a cheque presentation, event photos, or just a quick update, please share your story with us:
📩 fundraising@childrensheartbeattrust.org

✨ Keen to get involved?

Why not sign up for our brand new Hearty Hike this September at Slieve Donard! Take Big Steps for Little Hearts, sign up here: https://register.enthuse.com/ps/event/HeartyHike2025

Just Over a Week Left to Grab Early Bird Tickets! 🎟️ 📣Take Big Steps for Little Hearts this September and join our Heart...
23/07/2025

Just Over a Week Left to Grab Early Bird Tickets! 🎟️ 📣

Take Big Steps for Little Hearts this September and join our Hearty Hike challenge. 👟 💪

This is a brand-new event and we’re blown away by the response so far! Join us as we take on the iconic Slieve Donard together in support of children and young people living with heart disease in Northern Ireland. ❤️

Whether you're hiking solo, with friends, family, or your workmates, this challenge is open to all levels. Every step you take helps us provide hope, support, and vital services to heart families across Northern Ireland.

Event Details:

🗓️ Sunday 28th September 2025, 10:00am
📍 Slieve Donard, Mourne Mountains
🥯 Yummy breakfast baps to fuel your journey
🎟️ Early Bird: £22 (until 31st July) | £30 thereafter

👉 Spots are filling up fast, don’t wait! Click the link /to sign up! https://childrensheartbeattrust.enthuse.com/cf/hearty-hike-2025

In 2024, 502 people from across Northern Ireland came together to take part in our much-loved seasonal Family Fun Days a...
22/07/2025

In 2024, 502 people from across Northern Ireland came together to take part in our much-loved seasonal Family Fun Days and what a year it was! ☀️

These events are so much more than just a chance to get out of the house. They are safe, welcoming spaces where children and young people with heart conditions can be themselves, connect with others, and enjoy moments of joy and play, often in ways that hospital settings don’t allow.

Our Family Fun Days provide:

✅ A break from appointments, surgeries, and worry
✅ Opportunities to build friendships with other heart families
✅ Safe, inclusive activities for all ages and abilities
✅ A sense of community and understanding that means everything

From the Easter bunny and summer picnics to arts and crafts and magical Christmas gatherings, we’ve loved seeing families laugh, bond, and simply be together. For many, these days become cherished memories, a reminder that they are not alone on this journey. 🎨❤️

“CHT always give amazing family days for our heart warriors and opportunities for parents to support each other. These events are very important. Siblings really enjoy them, and an event is something to really look forward to and remember.” Heart Parent

Have you signed up to our Hearty Hike challenge yet? ⛰️👟We’ve had an amazing response so far and we'd love for you to jo...
17/07/2025

Have you signed up to our Hearty Hike challenge yet? ⛰️👟

We’ve had an amazing response so far and we'd love for you to join us at Slieve Donard this September!

There are just two weeks left to grab our early bird rate, so don’t miss your chance to sign up and save.

Whether you're hiking solo or alongside friends, family, or co-workers, this challenge is open to all levels. It’s all about taking big steps for little hearts.

Every step you take helps us bring hope, support, and vital services to children and young people living with heart disease in Northern Ireland.

Event Details

🗓️ Sunday 28th September 2025, 10:00am sharp
📍 Slieve Donard, Mourne Mountains
🎟️ Early Bird: £22 (until 31st July) | £30 thereafter

Spaces are filling up quick so be quick and don’t miss out! ❤️

Sign up here: https://childrensheartbeattrust.enthuse.com/cf/hearty-hike-2025/

Last chance to take part! 📣 📝Professor Frank Casey and Catherine Quinn from Queen's University Belfast are inviting pare...
16/07/2025

Last chance to take part! 📣 📝

Professor Frank Casey and Catherine Quinn from Queen's University Belfast are inviting parents to take part in a vital research study, helping shape the future of emotional support for families who receive a CHD diagnosis during pregnancy.

To find out if you’re eligible to take part, please read the graphic for more information.

To take part, scan the QR code or click the link: https://run.pavlovia.org/pavlovia/survey-2024.3.0/?surveyId=170967f2-ea58-433c-975e-7480168fe801

Please note the deadline for completing the survey is Thursday 17th July.

For more information please email: cquinn103@qub.ack.uk

We know how important it is to feel confident and supported when your child is heading off on an adventure—especially wh...
13/07/2025

We know how important it is to feel confident and supported when your child is heading off on an adventure—especially when they’re living with a heart condition.

💡 We're putting together a list of the best travel insurance companies that offer reliable cover for children with pre-existing heart conditions. Whether it’s a school trip, a holiday abroad, or something more adventurous, we want families to have peace of mind.

📢 Have you had a great experience with a travel insurance provider? Or maybe one to avoid? Share your recommendations below.

CHT Team ❤️

Here at CHT, we understand summer holidays can be a time of joy, adventure and quality family moments, but it can also b...
12/07/2025

Here at CHT, we understand summer holidays can be a time of joy, adventure and quality family moments, but it can also bring stress, overwhelm and pressure for both children and parents.

Whether it’s keeping the kids entertained, managing routines, or juggling work and childcare, it's okay to find it hard sometimes. Prioritising mental health is just as important as planning the next day out.

Have a look through these amazing resources developed by the charity Parenting Focus which may be helpful over the coming months.

You can access more information about Parenting Focus on their website https://www.parentingfocus.org/

CHT Team ❤️

📣 Our offices will close this bank holiday Monday 14th and Tuesday 15th July and will reopen as normal on Wednesday 16th...
11/07/2025

📣 Our offices will close this bank holiday Monday 14th and Tuesday 15th July and will reopen as normal on Wednesday 16th July 2025. 📣

CHT Team ❤️

We’re delighted to announce that Children’s Heartbeat Trust has secured two charity places for the TCS London Marathon 2...
11/07/2025

We’re delighted to announce that Children’s Heartbeat Trust has secured two charity places for the TCS London Marathon 2026 on Sunday 26th April 2026! This is your opportunity to take part in one of the world’s most iconic running events, all while making a life-changing difference for children in Northern Ireland living with heart disease. 🏃‍➡️❤️

If you’re interested in running for Children’s Heartbeat Trust, please complete the online application form below by 31st July 2025.

👉 https://forms.gle/jZARyR2Af5y9Lnht9

All applications forms received by the above date will be reviewed, and we’ll contact you using the details you provided to confirm whether you’ve been selected.

Please note: Submitting this form does not guarantee a TCS London Marathon place.

For our TCS London Marathon Initial Charity Terms and Conditions, please see our website for details.

As our incredible partnership with the Belfast Giants comes to an end, we are thrilled to announce £22,268.30 was raised...
10/07/2025

As our incredible partnership with the Belfast Giants comes to an end, we are thrilled to announce £22,268.30 was raised throughout the season in support of Children’s Heartbeat Trust! 🏒❤️

Presented by David Goodwin, these incredible funds will go directly towards our vital work supporting children and young people living with congenital heart disease, as well as their families. This includes emotional and practical bedside support, counselling services, and financial help for families who must travel outside Northern Ireland for surgery or long-term treatment. Donations will also enhance the clinical environment in Clark Ward and Children's Heart Centre with initiatives like music therapy, baby massage, and sensory equipment.

Lynn Cowan, fundraising manager at Children's Heartbeat Trust, said: “We are sincerely grateful to The Odyssey Trust, the Belfast Giants and fans for their incredible support. This partnership has significantly raised awareness of Children’s Heartbeat Trust and the vital services we provide to children living with heart disease across Northern Ireland. In addition, thanks to generous charity collections, raffles, and the hugely popular Valentine’s Threads campaign, we’ve received phenomenal donations. These funds are essential in helping us continue supporting families when they need it most.

Standout moments include the special Valentine’s jersey, designed by our very own heart children, the Valentine's Game and of course our families Skating with the Giants!" 👕🧸

Laura Small, Relationship and Business Development Manager at The Odyssey Trust, said: “It has been an absolute privilege to partner with the Children’s Heart Trust this past season. Their dedication to supporting children and families affected by heart disease is truly inspiring, and we’re proud to have played a small part in raising both awareness and vital funds for their invaluable cause. This partnership has created unforgettable moments for everyone and involved, and we are deeply grateful to our fans and the wider community for embracing this imitative with such generosity and spirit.

Thank you for helping us make a real difference, on and off the ice.

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Belfast

Telephone

+442890312228

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