The Girl Who Ran Away In Her Sleep

The Girl Who Ran Away In Her Sleep A sleep girl discovering her reasons why and raising awareness of narcolepsy

17/04/2026

My top 5 horror stories..where do I even start 🤣 some Narcolepsy related, some life related.

I have been reflecting recently on how far I have come and the level of happiness I have now compared to a few years ago. If it wasn’t my health it was my relationship and if it wasn’t that it was career. It has been a turbulent time. I have learned a lot but that doesn’t negate how s**t it was at the time. In a weird way I feel like I’m capable of moving past anything that’s put in my way now since I have dug myself out of so many holes 🙈
If this is you, it will get better. You might be in the trenches for a while but keep your head down, keep the belief that hope and lightness will come 🌈

01/04/2026

When your energy is limited, you can’t afford to waste it on constant decisions.

So I try to plan ahead where I can —
organising my tasks for the next day and keeping on top of my budget.

Even simple things like putting my food shop into an app I can access anywhere (like Google Tasks) has been a game changer.

And I wear the same kind of outfit most days — black leggings, a t-shirt and a hoodie — because I just don’t have the energy to put together complicated outfits.

I keep a whiteboard where I can see my week as soon as I open my eyes, because brain fog and memory issues are very real.

Less decisions = more energy for the things that actually matter.

24/03/2026

Things that cost more energy for people with Narcolepsy:
Decision-making

Even small decisions can feel overwhelming when your brain is exhausted😴 coupled with poor concentration and short term memory with a sprinkle of brain fog - it feels like you’re always having a mental battle with yourself.

Narcolepsy and everyday routine 🤔Just a little rant about how I feel today 🙈
19/03/2026

Narcolepsy and everyday routine 🤔
Just a little rant about how I feel today 🙈

17/03/2026

Things that cost more energy for a person with Narcolepsy:

Socialising☘️

Happy St Patrick’s Day ☘️🇮🇪
I had to go home after a few hours in town and have a nap so thought it would be a good opportunity to share this hidden cost.

Socialising is a hard one because as you can see in the first picture, you wouldn’t realise I had anything wrong with me at all. People see a snippet of your life on social media and it’s usually just the first pic and not the aftermath where you need to lie down. That makes them think that maybe you aren’t as impacted by this condition as you say. But we don’t capture the second part, never mind upload it for all to see. Social media is a filter after all, you are never going to see the times when people struggle.

If I attend a wedding, I always have to sneak away after the dinner to lie down. When planning nights out I have to make sure I have had a nap before hand and when we are out you will see me ordering an Espresso Martini to keep my wakefulness levels up. The days following a social activity I will be nowhere to be seen, often in bed a lot of the day and avoiding all contact with the world.Again, these are all things that I do that are hidden, no one sees the recovery. I really have to conserve my energy so I plan around my naps and try my best to be able to show up as my best self in the few hours I spend socialising.
Sharing to show the other side of socialising for people with Narcolepsy ☘️

The impact of missing medication 💊Tomorrow is a new day ☀️
16/03/2026

The impact of missing medication 💊
Tomorrow is a new day ☀️

13/03/2026

Things that cost more energy when you have Narcolepsy - Cooking👩‍🍳
The first clip shows me standing as I wait for my pasta to cook yawning. There was a time in the past when I would sit down ‘just to check something’ and woke up to my apartment filled with smoke. Only my neighbour banged the door, I could have burned the place down.
Not only is it kinda dangerous for us it takes me so much energy to prepare food. The lack of concentration and brain fog doesn’t help when you’re following a recipe either. Here are a few tips i have picked up along the way:

1. The golden rule: you cannot sit down during cooking, ever. I don’t care if it’s in the oven for 45mins, if you sit down, you are a high risk of falling asleep and causing a fire. I’ve learned this the hard way

2. Prep your food when you have a small bit of energy, that way at least when you cook it, you have already chopped the vegs and/or meat. Sit down and do it if it helps, just not when the food is cooking.

3. Keep your meals simple and memorable. Protein with every meal and don’t hit the carbs too hard or you’ll be hitting the pillow even harder 😴
4. If you have the energy to batch cook, do it. But if you don’t, even an extra portion cooked for the next day can really cut down cooking time. Prep breakfast such as overnight oats where you can as if you sleep in at least you can just grab and go.
5. Keep some frozen food and cupboard staples for the evenings you can barely lift your head never mind prepare food.

10/03/2026

Living with narcolepsy means pacing things most people don’t have to think about. Cleaning my house absolutely drains me.

It might not happen all at once anymore, but small progress still counts. Split the tasks down, clean just the sink or a small area, just tidy the clothes on the chair. Breaking it down has helped my mind massively as I always thought I had to do it all at the one time and our energy doesn’t allow that.

08/03/2026

Things that cost more with Narcolepsy: Getting ready to leave the house
It seems to be uphill battle to get my body to move, put on clothes, fix my hair and put some makeup on and leave the house. It’s so exhausting and sometimes you are ready for a nap before you even leave the house 🫠

07/03/2026

Things that cost more energy with Narcolepsy - Period pain😫

As my energy levels are already very depleted, anything on top that takes additional energy nearly puts my lights out 🫠

I was in the gym today on the stair master when I got this horrible shaky feeling come over me. I stopped the machine immediately and I could tell that my body was on the emergency supply. I made my way to the changing room, I felt faint and like I could be physically sick. Putting my head between my legs I sat in the toilet stall trying to breathe as a strong wave of period cramps took over my body. Sweat was literally pouring off me.
As my luck would have it, my gas boiler broke last night and I really needed to get showered. Taking a few deep breaths I trailed myself out of the stall and into the shower. Not surprisingly post shower my whole body felt limp and I sat down as another wave of cramps began. Eventually I summoned the energy to dress myself, albeit very slowly, booked a taxi and put my hair in a wet bun. I had nothing left.
One of my fears is passing out in a public place. There’s a real degree of helplessness and fear with this condition. I pushed through my tiredness to go to the gym today, my energy was at about 30%. So when something like your period arrives, the loss of iron and physical pain it puts your body in wipes you out completely. In addition to that, I could only afford the gym and with the period pain on top of that my body went into complete shutdown.
This is probably the most fearful I have felt due to my poor energy levels and sleep deprivation in a long long time. Please listen to your body 🙈

The video is me having some dinner after I woke up from a 3 hour nap when I got home. I took paracetamol and immediately passed out.

What’s the point in diagnosis 🩺 ?
25/02/2026

What’s the point in diagnosis 🩺 ?

November Narcolepsy 😴A few things I tried this month to really get a hold of my symptoms 🫠
03/12/2025

November Narcolepsy 😴
A few things I tried this month to really get a hold of my symptoms 🫠

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Belfast

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