QUB PIP Study

01/06/2018

Researchers at Queen’s University Belfast in the UK, are conducting the first large-scale survey of individuals with precancerous conditions to investigate the impact of being diagnosed and living with a precancerous condition. We are particularly interested to know more about how you feel about your precancerous condition and the impact, if any, your precancerous condition has had on your life since diagnosis. The findings of this study will be used to inform future healthcare service provision for individuals with precancers and will be published in a scientific peer reviewed journal.

To learn more about this study and to take part please click here: http://go.qub.ac.uk/QUBPIP2

All responses to the survey are anonymous (i.e. it will not be possible to identify you from any of the responses provided) and it should take no longer than 15-20 minutes to complete.

We look forward to hearing your opinions and appreciate your time and participation.

Thank you for helping to further our research.

Breast and Gynaecology related
Cervical dysplasia
CIN (Cervical intraepithelial neoplasia)
DCIS (Ductal carcinoma in situ)
LCIS (Lobular carcinoma in situ)
Uterine cervix carcinoma in situ
VAIN (Va**nal intraepithelial neoplasia)
VIN (V***ar intraepithelial neoplasia)

Blood related
Monoclonal b cell lymphocytosis
MGUS (Monoclonal gammopathy of undetermined significance)
Preleukaemia/Preleukemia
SMM (Smouldering/Smoldering Multiple Myeloma)

Male-Specific Organs/Urology
PIN (Prostate intraepithelial neoplasia)
Testicular intraepithelial neoplasia

Oral related
Erythroplakia
Leukoplakia
OLP (Oral lichen planus)

Gastric conditions
Barrett's Esophagus/Oesophagus
Colorectal polyps
Gastric conditions (gastritis, atrophy, intestinal metaplasia, Autoimmune metaplastic atrophic gastritis)

Other conditions
Actinic Keratosis (Skin)
Dyskeratosis congenita (Bone marrow)

Web survey powered by SurveyMonkey.com. Create your own online survey now with SurveyMonkey's expert certified FREE templates.

21/05/2018

A big thank you to CLLSA - CLL Support Association for sharing our survey.
https://healthunlocked.com/cllsupport/posts/138024315/survey-of-monoclonal-b-cell-lymphocytosis-patients-by-queens-university-in-belfast.

NOTE: This survey is not for confirmed CLL patients in watch and wait but for patients with the pre-CLL condition called monoclonal B cell lymphocytosis. *This is an unlocked post* Researchers at...

10/05/2018

Researchers at Queen’s University Belfast in the UK, are conducting the first large-scale survey of individuals with precancerous conditions to investigate the impact of being diagnosed and living with a precancerous condition. We are particularly interested to know more about how you feel about your precancerous condition and the impact, if any, your precancerous condition has had on your life since diagnosis. The findings of this study will be used to inform future healthcare service provision for individuals with precancers and will be published in a scientific peer reviewed journal.

To learn more about this study and to take part please click here: http://go.qub.ac.uk/QUBPIP2

All responses to the survey are anonymous (i.e. it will not be possible to identify you from any of the responses provided) and it should take no longer than 15-20 minutes to complete.

We look forward to hearing your opinions and appreciate your time and participation.

Thank you for helping to further our research.

Breast and Gynaecology related
Cervical dysplasia
CIN (Cervical intraepithelial neoplasia)
DCIS (Ductal carcinoma in situ)
LCIS (Lobular carcinoma in situ)
Uterine cervix carcinoma in situ
VAIN (Va**nal intraepithelial neoplasia)
VIN (V***ar intraepithelial neoplasia)

Blood related
Monoclonal b cell lymphocytosis
MGUS (Monoclonal gammopathy of undetermined significance)
Preleukaemia/Preleukemia
SMM (Smouldering/Smoldering Multiple Myeloma)

Male-Specific Organs/Urology
PIN (Prostate intraepithelial neoplasia)
Testicular intraepithelial neoplasia

Oral related
Erythroplakia
Leukoplakia
OLP (Oral lichen planus)

Gastric conditions
Barrett's Esophagus/Oesophagus
Colorectal polyps
Gastric conditions (gastritis, atrophy, intestinal metaplasia, Autoimmune metaplastic atrophic gastritis)

Other conditions
Actinic Keratosis (Skin)
Dyskeratosis congenita (Bone marrow)

Web survey powered by SurveyMonkey.com. Create your own online survey now with SurveyMonkey's expert certified FREE templates.

20/04/2018

We have changed the link to the study to http://go.qub.ac.uk/QUBPIP2 If you haven't completed our survey on Premalignant conditions, please try it!

21/03/2018

Researchers at Queen’s University Belfast in the UK, are conducting the first large-scale survey of Actinic Keratosis patients and individuals with other precancerous conditions to investigate the impact of being diagnosed and living with a precancerous condition.

We are particularly interested to know more about how you feel about your Actinic Keratosis and the impact, if any, Actinic Keratosis had on your life since diagnosis.

The findings of this study will be used to inform future healthcare service provision for individuals with precancers and will be published in a scientific peer reviewed journal.

To learn more about this study and to take part please click here: http://go.qub.ac.uk/QUBPIP1

All responses to the survey are anonymous (i.e. it will not be possible to identify you from any of the responses provided) and it should take no longer than 15-20 minutes to complete.

We look forward to hearing your opinions and appreciate your time and participation.

Thank you for helping to further our research.

Web survey powered by SurveyMonkey.com. Create your own online survey now with SurveyMonkey's expert certified FREE templates.

14/02/2018

We are investigating patient experiences of being diagnosed with (SMouldering Multiple Myeloma) and (Monoclonal Gammopathy of Undetermined Significance) Can you help by completing or sharing our survey please?

Myeloma Crowd Myeloma Patients Europe Myeloma UK The Myeloma Beacon Multiple Myeloma Awareness Multiple Myeloma Research Foundation - MMRF Multiple Myeloma Awareness Myeloma Teacher 's Multiple Myeloma Resource Page Multiple Myeloma Ireland Leukaemia & Myeloma Research UK Myeloma Foundation of Australia Inc Philadelphia Multiple Myeloma Networking Group (PMMNG) Multiple Myeloma NL Myeloma Canada - National Page

To find out more about our study and what it involves please click here:

http://go.qub.ac.uk/QUBPIP1 and give us a like or a follow on Twitter QUB PIP Study

Web survey powered by SurveyMonkey.com. Create your own online survey now with SurveyMonkey's expert certified FREE templates.

09/02/2018

We are investigating patient experiences of being diagnosed with and Can you help? Team Sorcha - Cervical Cancer Awareness, Campaigning & Fundraising V***a and Va**na Cancers guide to finding support and information. Jo's Cervical Cancer Trust Cervical Dysplasia Treatment Options

Web survey powered by SurveyMonkey.com. Create your own online survey now with SurveyMonkey's expert certified FREE templates.

07/02/2018

Have you ever been diagnosed with a precancerous condition?

Researchers at Queen’s University Belfast, UK are interested in learning more about what is like to be diagnosed with these conditions.

To find out more about our study and what it involves please click here:

http://go.qub.ac.uk/QUBPIP1 and give us a like or a follow on Twitter QUB PIP Study

Web survey powered by SurveyMonkey.com. Create your own online survey now with SurveyMonkey's expert certified FREE templates.

06/02/2018

Have you ever been diagnosed with a precancerous condition?

Researchers at Queen’s University Belfast, UK are interested in learning more about what is like to be diagnosed with these conditions.

To find out more about our study and what it involves please click here:

http://go.qub.ac.uk/QUBPIP1 and give us a like or a follow on Twitter