Vicky's Battle with JHMS

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Vicky's Battle with JHMS This page was created for two reasons - 1. To show Vicky's progression & battle with JHMS (Joint Hyper Mobility Syndrome and 2. To raise awareness.

Hi, my name is Vicky. I'm 24 years old. I am fighting to get my life back! I have a condition called Joint Hyper Mobility Syndrome. This means my joints are in a lot of pain and are weak, causing subluxations and dislocations all over my body. I am now fighting to get my life back. There is no cure, I can't just take a tablet and be better. I am having to slowly build up my strength with physiotherapy exercises so I can have a more normal life. I also have a condition called Fibromyalgia, this too causes pain but its more wide spread, I suffer 'brain fog' which means suddenly I will muddle up words, I suffer fatigue and of course, the ability not to be able to sleep does not help! I also have 'Patella Ulta' basically my knee caps are too high and the grooves too shallow, a lot of doctors are shocked by how high they are. I have several other conditions like polycystic ovaries, folliculitis which means I get painful lumps all over my body. I also have a problem with my blood pressure, where it is naturally normally no higher than 112 (top number) and then suddenly it will drop down and I will black out, go pale etc. This page is not me feeling sorry for myself, this page is me fighting - I will be me. I want to show everyone I can do this, show others with similar conditions/issues - there is light at the end of the pain tunnel - a future :)

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