CLDF Families Team

CLDF Families Team Supporting families with children who have liver disease

10/03/2026

With just three days until Big Yellow Friday, are you ready to go, like our star supporter, Sooty? If not don't worry - everything you need is here! https://ow.ly/h96c50YrI8c

Was your baby jaundiced? We are updating our Yellow Alert materials, which help health professionals identify liver dise...
05/03/2026

Was your baby jaundiced? We are updating our Yellow Alert materials, which help health professionals identify liver disease in babies, and would like to show pictures of jaundice in newborns who were subsequently diagnosed with liver disease. Whether it's very noticeable, just a tinge or maybe only visible in the whites of their eyes, if your pictures are good quality we would love to see them (no children will be named). Please send to mairead.ritchie@childliverdisease.org.

Friends and family of Sam, one of our amazing young people, who passed away in December, are planning a series of fundra...
04/03/2026

Friends and family of Sam, one of our amazing young people, who passed away in December, are planning a series of fundraising events as a tribute to him. We're very grateful to his girlfriend, Poppy, for explaining why this is so important to them https://ow.ly/TlJs50Yp0OV

On   a big thank you to Rachel for sharing how her son's liver condition has impacted her and her family https://ow.ly/3...
28/02/2026

On a big thank you to Rachel for sharing how her son's liver condition has impacted her and her family https://ow.ly/3mGq50YmYyB

It's just two weeks til Big Yellow Friday! If you've not yet managed to have a word with school, nursery or the gym don'...
27/02/2026

It's just two weeks til Big Yellow Friday! If you've not yet managed to have a word with school, nursery or the gym don't panic - everything you need is here!https://ow.ly/XTwY50YlU1w And if you need help or have any questions, we're right here. Just email fundraising@childliverdisease.org.

We're backing the NHS campaign to encourage parents to ensure their children are up to date with their vaccinations. Chi...
25/02/2026

We're backing the NHS campaign to encourage parents to ensure their children are up to date with their vaccinations. Children and young people with liver disease aren't able to have every vaccine and some childhood diseases are even more serious for immunosupressed children. So help us protect them by spreading the word - if your child is eligible for vaccination - make sure they have them!

Please join us in congratulating Erin on her 15th transplant anniversary 🎉🎉 And a huge thank you to her parents, Kirstin...
24/02/2026

Please join us in congratulating Erin on her 15th transplant anniversary 🎉🎉 And a huge thank you to her parents, Kirstin and Jamie, for sharing their family's story here https://ow.ly/ZUvp50YkevZ.

Calling all parents and carers of children with PFIC - does your child take Bylvay for their symptoms?  We are gathering...
23/02/2026

Calling all parents and carers of children with PFIC - does your child take Bylvay for their symptoms? We are gathering feedback on its impact as this medicine is going through reassessment in Scotland and we need to ensure it continues to be available to families there. Wherever you are in the UK, if your child has benefited from Bylvay, please could you help by completing our survey here https://ow.ly/G8jX50YkaMe

A big thank you to Francesca, now a busy mum of two, for sharing her story in order to give hope to other families https...
22/02/2026

A big thank you to Francesca, now a busy mum of two, for sharing her story in order to give hope to other families https://ow.ly/lOq550YhuUs

As her son, Oliver, celebrates 15 years since his transplant this year, Gemma tells why raising awareness of childhood l...
16/02/2026

As her son, Oliver, celebrates 15 years since his transplant this year, Gemma tells why raising awareness of childhood liver disease is so important to her https://ow.ly/zHPq50YgACC

Welly walk or Wear Yellow Day? If you haven't decided what you're doing for Big Yellow Friday, on March 13, we have some...
15/02/2026

Welly walk or Wear Yellow Day? If you haven't decided what you're doing for Big Yellow Friday, on March 13, we have some foolproof ideas here! https://ow.ly/pQ1F50YcnRg

Best of luck to Stephanie who's taking part in the Supernova Kelpies 5K next month. She explains here https://ow.ly/fo9B...
13/02/2026

Best of luck to Stephanie who's taking part in the Supernova Kelpies 5K next month. She explains here https://ow.ly/fo9B50YcllT why raising awareness of liver health is so important to her why raising awareness of liver health is so important to her

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