CLDF Families Team

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CLDF Families Team

Supporting families with children who have liver disease

08/12/2025

We’re delighted to hear that a drug which alleviates one of the most distressing symptoms of Alagille syndrome is to be made available in Scotland but disappointed that children in other parts of the UK will not benefit. More here https://ow.ly/NXl350XFCuG

01/12/2025

A huge thank you to everyone who took part in our survey about living with childhood liver disease. The results, now available here https://ow.ly/NppX50XA5uR reveal that despite high levels of satisfaction with medical care, many young people and their families are facing real challenges in terms of education and mental health. Has this been your experience and would you like to share your story? Please comment below or email press@childliverdisease.org

28/11/2025

Are you planning to bag a Black Friday bargain? Make sure you're signed up to support us at Give as you Live and you could generate FREE donations on your online purchases! https://ow.ly/sSZw50XxwoM

27/11/2025

When Emma started fundraising soon after her daughter was diagnosed with liver disease, she couldn't have envisaged where it would lead......https://ow.ly/2Ka050XxyW7

26/11/2025

A huge thank you to the members of St Chads Bowling Club who have raised a fantastic £2221 to support young people with liver disease, and here's why https://ow.ly/n1Af50Xxq6M

24/11/2025

We're delighted to announce that our podcasts which cover everything from managing medication, moving into adult liver services and navigating university with a liver condition are now available on Spotify. Check them out here https://ow.ly/gRLM50XwU9M

23/11/2025

Diagnosis of a chronic condition in a child is a tough one for any parent to take. Gina hopes her daughter Alice's story will give hope to others https://ow.ly/k2S650XugnM

22/11/2025

Well done to David, whose colleagues at Aviva helped him raise over £2K by joining in an 874-mile virtual challenge https://ow.ly/HIZ250XsMAB

15/11/2025

Thank you to Stuart for his honest account of life on the transplant list as a new dad https://ow.ly/ok9650XnhBu

13/11/2025

Happy ! Whether you choose to send a message to an old friend, treat a colleague to a coffee or give to a cause which matters to you, do one kind thing today and enjoy spreading the goodwill💗

11/11/2025

We know that the effect of childhood liver disease on education is a worry for some so we'd like to invite our young people to take part in a new research project on this topic https://ow.ly/fEim50Xnfmv

10/11/2025

As begins, we're proud to share the message and are grateful to our amazing young people for sharing their experiences to help others https://ow.ly/A2Nf50Xn7UA

Address

Birmingham
B33JY

Website

https://www.childliverdisease.org/form.aspx?ID=235

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