23/06/2025
People usually think of loss as huge life-altering events: the death of a loved one, losing a job, having to leave your home, financial worries or divorce. It's easy to understand why those losses are so painful. However, living with an ostomy brings losses that aren't always seen or recognised. It's not just about the body changing; it's about losing things you didn't even realize were important.
Having a stoma changes your life in so many ways, and it's not just about body image. It's like your whole world shifts, and you have to learn to live in a new one. This isn't just a small change; it's a big deal, and it affects everything about how you live and feel. It’s a journey through a lot of losses, and it touches everything you are, inside and out.
First, your body changes. You lose some control over how it works, and that's a really big deal. It's not just about dealing with the bag or managing the mechanics of it all. It's about missing how your body used to feel, how easy things used to be. You might feel like you're living in a body that doesn't quite belong to you anymore, like you're a stranger in your own skin, and that's hard to get used to. It's like you've lost a friend, a reliable partner, and now you have to learn to trust a new version of yourself. It’s a loss of that familiar comfort, that easy sense of being at home in your own skin.
Then, there are the feelings. It's like a storm inside you, a whirlwind of emotions that can be really confusing and overwhelming. You might miss feeling 'normal,' like you fit in with everyone else, like you're not carrying a secret. There's the worry about leaks or smells, and the fear of people judging you, which can really chip away at your confidence, making you feel really vulnerable. It can make it hard to be close to people, to be intimate, because you might feel ashamed or worried about your body, about how it will be seen and accepted. You might also worry about the future, about what might happen next, about how your stoma will change your life long-term, casting a shadow of uncertainty over your hopes and dreams.
All these feelings can make you feel really down, anxious, and tired, like you're carrying a heavy weight that never goes away. It's like you've lost a part of yourself, a sense of your old self, and you're trying to figure out who you are now, in this new reality.
Because of these feelings, you might start to pull away from people, from the world around you. You might not want to go out as much, because you're scared of what might happen, or what people will think. You might feel like people don't get you, or that they see you as 'different,' as someone they can’t relate to. This can make you feel really lonely and isolated, like you're living in a bubble, separated from the rest of the world. It can also make it hard to work, or to do the things you used to do, because you're worried about managing your stoma in public, or about how people will react. It’s like you’ve lost your place in the world, your sense of belonging, and you're struggling to find a new one.
And then, there are the big questions about life, the ones that touch on your very identity. You might feel like your life has changed so much, you don't even know who you are anymore, like you've lost your sense of self. You might worry about your health, about how long you'll be able to do the things you love, about how your stoma will impact your future.
It can feel like you've lost control of your life's path, like your destiny has been altered by forces beyond your control, and that's scary. It's like you're dealing with a loss of your old self, the person you used to be, and trying to find a new one, a new way to live that feels meaningful and fulfilling.
As both a Psychotherapist and ostomate, I’m aware that all these things are connected. They all affect each other, and they can make a person feel really overwhelmed, like they're drowning in a sea of change. Healing isn't about pretending they don't exist, or about rushing you to feel better, or about minimizing the pain you're experiencing. It's about listening to you, about understanding what you're going through, about validating your feelings, and about helping you find your strength again, your resilience, your capacity for joy. It's about finding a way to make your story whole again, to find meaning in your life, even after everything that's happened, to rebuild your life on your own terms.
My work with ostomates means I’m there every step of the way, walking alongside them on their journey, helping them find their way back to feeling like themselves, even if that self feels different than it did before. I endeavour to help them accept the changes, to integrate them into this new life, and to find a way to make this new life feel like it’s theirs again, a life filled with purpose, connection, and joy, a life you they can truly enjoy."
Fritz Perls, discovered Gestalt therapy - he was a Psychoanalyst, Psychotherapist and Psychiatrist. He famously quoted: "To suffer one's death and be reborn is not easy." Never a truer word.
Through the pain of ANY loss, we can discover the depth of our own inner strength, and the ability to build a future filled with meaning.