10/12/2022
โ๏ธ Palliative care is about managing symptoms of an illness so that the person can live 'well enough.'
Obviously, curing their illness is the surest route to wellness, so more often than not 'palliation' happens because cure can't.
But not always.
For example:
๐ฅ Specialists in palliative care who work in cancer centres regularly advise about minimising side effects of cancer treatment, including for patients who are likely to be cured by their treatment. Palliation of symptoms reduces the chances they'll miss treatments.
๐ฉบ My work prior to retirement included regular involvement in the post-op care of people on surgical wards for curative treatment. Minimising their post-op symptoms reduced delays in moving on to chemo or radiotherapy, increasing their chance of cure.
โ๏ธ It's a pity the meaning of palliative care has become entangled with end of life care. Both are very important, but they are not the same thing.
๐ค Not every dying person needs a palliative care consultation. Not every palliative care patient is dying.
๐ฐ The intricacies of funding also confuse palliative with EoL care. Some insurance programmes don't differentiate them. Some palliative care charity fundraising emphasises care of dying people, possibly to simplify the message, but this undermines the value of early palliation.
๐ฅ Perhaps if we were less wary about public discussion of incurable conditions, we would see better uptake of early palliative care to improve quality of living with heart, lung, kidney, liver & nervous system diseases as well as cancer.
๐ You all know I'm passionate about getting dying right. But that's so much more likely to happen if we've got living right beforehand.
๐งก Palliative care.
๐ End of Life care.
Partners, but not twins.
The difference matters.
Pass it on.