18/08/2025
Autism and ADHD Waiting Lists in Wales – What’s Really Happening?
Over the past few months, I’ve supported families across Wales who are desperate for clarity. Many have been waiting years just to begin an autism or ADHD assessment. These aren’t just numbers—they’re waiting, worry, and missed opportunities.
Hywel Dda University Health Board tells its own story:
✨ Over 4,000 adults are on the ADHD waiting list.
✨ Over 2,000 adults are waiting for an autism assessment.
A significant portion have already waited longer than a year.
That reflects only one region. Across Wales, the situation is more urgent. In September 2024, about 20,770 children and young people were waiting for neurodevelopmental assessments. Forecasts suggest that number could rise to 41,000–61,000 by March 2027.
Every waiting list represents more than lost time: it stands for anxiety, educational setbacks, and delays in far-reaching support.
This week, I’m proud to spotlight the work we’ve delivered through South Wales Autism Assessments in partnership with local NHS teams, all guided by the NHS’s values:
• Following our successful tender in February 2025, we completed 85 neurodevelopmental assessments between March and April 2025. Those assessments mapped to 510 individual assessment components spanning both autism and ADHD elements. 
• Each assessment included both in-person (ADOS-2, QB Test) and online components (ADI‑R, DIVA), plus Conners 4 questionnaires for ADHD—reflecting a truly multidisciplinary, thorough approach. 
• Our clinical team always included a Clinical Psychologist, with a second professional (such as a Speech and Language Therapist, Educational Psychologist, or Mental Health Nurse)—reinforcing the robust, multi‑lens approach families deserve. 
• We made 13 home visits, engaged an Arabic translator, delivered Easy Read reports, and adapted for children of separated parents who required duplicate assessments—all to increase accessibility and reflect real‑world needs. 
• Every family received a detailed, multidisciplinary report and a feedback meeting. Final reports were also sent to the families’ GPs—streamlining administrative flow and reducing the NHS’s burden. 
Diagnostic outcomes from those assessments highlight neurodiversity’s breadth:
• Autism only: 29.4% (25 cases)
• ADHD only: 22.4% (19 cases)
• Both autism and ADHD: 36.5% (31 cases)
• No diagnosis: 11.8% (10 cases) 
These figures affirm how complex and overlapping neurodevelopmental profiles can be.
What can we do across Wales?
✅ Advocate for transparent, Wales-wide reporting of ADHD and autism waitlist data—across all age groups and Health Boards.
✅ Build needs-led support models, so people receive timely help even before diagnosis.
✅ Offer equitably accessible services—via home visits, tailored communication, translation, and multidisciplinary contexts no matter the postcode.
With waiting lists growing and families strained, this is not just a health challenge—it’s an education, employment, and wellbeing imperative.
If this speaks to you, please comment or share. The more visible these gaps become, the harder they are to ignore.
Chris