01/03/2026
N A R C O L E P S Y. Part of my whole.
How can you witness and accept all parts of yourself?
How do you bring your soul to the waters and nourish amongst this intoxicated world?
What makes you feel at home? Known? Seen?
I have been delving deeper and deeper into my own health, psyche, ancestry, grief, morality, prayers, dreams, dragons..! And recently it is clear I am being shown not to forget that living with Narcolepsy is a part of my whole. My holistic. A knot in my weave. The more I delve, the more it can soften. Like tending to the stuck muscle strands when releasing someone's neck tension.
This too can be soothed, listened to and reckoned with.
I am ready to show up more in my own personal conversation with my Narcolepsy to help raise awareness and remember how useful and life changing it would have been to get a diagnosis sooner and not feel so mental.
What is it? How does it make me feel? Is it a disability? What is an autoimmune disease? Can I fix it with celery? How does one cope?
All questions I continue to research and fluctuate my opinion and approach toward. At the moment some main points for now..
I am diagnosed Narcolepsy with Cataplexy
Cataplexy is wyrd!
"Cataplexy is the term given to sudden muscular weakness triggered by strong emotions such as laughter, anger and surprise. The loss of muscle tone that occurs may range from a just-perceptible weakening of the facial muscles through weakness at the knees, to total collapse on the floor. Speech may be slurred, and eyesight impaired (double vision, inability to focus) but hearing and awareness remain undisturbed."
- I have been prescribed speed, modifnal, and ritalin
(which I do not use unless having a driving lesson lol)
- I often fall asleep into REM dreams within seconds or minutes of stillness
- I manage my symptoms with many holistic methods
It is an ongoing process of deep listening and witnessing. More and more giving the "illness" a voice and enquiry rather than begrudging it and fighting. Any questions? Me too! Ask away and let's continue to be curious and well informed of all the parts of this human web.