Haemnet

Haemnet works at the heart of the bleeding disorders community.

We're a specialist consultancy, engaged in research, communications, community education and support. Haemnet is a specialist research and communications consultancy embedded in the bleeding disorders community. We undertake research relevant to patients and their families, we communicate on the things that matter in bleeding disorders, and we enable the community to share their experience to expand knowledge.

23/04/2026

Topics in the Bleeding Disorders: Care & Practice top ten articles for March include patient experiences of treatment, haemophilia gene therapy and quality of life.

Explore the BDCP archives, open access, here: https://loom.ly/uIXcNF8

20/04/2026

🇲🇾 Are you attending ?

Bleeding Disorders: Care & Practice's new Editor-in-Chief, Maria Santaella, will be there.

If you'd like to find out more about the journal, you can connect with Maria via the conference app.

17/04/2026

If you live with a bleeding disorder but don't have a diagnosis, how can you access the care and treatment you need?

Bleeding disorders can have significant impacts on health and quality of life, and can be life-threatening. But globally, over 75% of people with a bleeding disorder aren't diagnosed.

On , we're joining the call to improve bleeding disorders diagnosis worldwide.

Diagnosis: first step to care.

Read our blog here: https://loom.ly/ZKyP0To

15/04/2026

The latest episode of , in collaboration with Local families with bleeding disorders, focuses on talking to children about their bleeding disorder.

Lisa Steadman, Chair of , says: "What makes this episode so powerful is the honesty and reassurance it offers — hearing from other parents who truly understand can make all the difference."

You can read Lisa's blog and access the episode via the Local families website: https://loom.ly/CzfaZV4

With our thanks to all of the parents who took part in this series.

13/04/2026

🇺🇬 Morris Okello was diagnosed with severe haemophilia B as a teenager.

❓What did diagnosis mean for him?

💬 "From that point onward, now I began getting the knowledge, I began getting myself really involved to try and find ways that I can live a better life without having too many bleeds.”

🌍 With coming up on 17 April, you can find out more about Morris’s story here: https://loom.ly/5AMZ2xE

🔴 Diagnosis: First step to care

09/04/2026

We hope you will join the Haemnet team in wishing goodbye and good luck to Mike Holland, who is stepping down as CEO after 13 years at the helm.

Our huge thanks to Mike for all his hard work, vision and dedication. We wish him well as he explores pastures new.

Haemnet will continue to work for the benefit of everyone in the bleeding disorders community under the leadership of its co-founder, Dr Kate Khair.

08/04/2026

Have you caught up with the latest family-focused series of ?

In the second episode in our collaboration with Local families with bleeding disorders, the discussion focuses on how parents go about talking to their children about their bleeding disorder – and we discover that sometimes their concerns aren’t quite what you might expect.

03/04/2026

The Haemnet team is taking a short break over Easter.

Wishing our clients, colleagues and friends a happy springtime holiday.

31/03/2026

🎧 New episode of out today!

The second episode in our collaboration with Local families with bleeding disorders features parents Hannah, Mark and Jackie.

Tune in to 'Sticky blood, teddies and teens' to hear them discussing how they talk to their children about their bleeding disorder – where it comes from, what it means for their daily lives, and why treatment is important.

🔗 https://loom.ly/_Pr-GBk
Available via the link, or search "Haemcast" on your favourite podcast platform.

25/03/2026

🌍 Ahead of World Hemophilia Day, we’ve been thinking about the theme: ‘Diagnosis – First step to care’.

🇺🇬 It put us in mind of a Ugandan friend, Morris Okello. Despite a history of traumatic injuries throughout childhood, made worse by an undiagnosed condition, he was a teenager by the time he got a diagnosis of haemophilia B.

💬 Last autumn, he told Dr Kate Khair what diagnosis meant for him:

“From that point onward, now I began getting the knowledge, I began getting myself really involved to try and find ways that I can live a better life without having too many bleeds.”

📖 Find out more about Morris’s story here: https://loom.ly/5AMZ2xE

17/03/2026

Interested to know more about our episode 'Veins, verse and voices'?

On the Haemnet blog, Chair of Local families with bleeding disorders, Lisa Steadman, explains more about the background to the writing workshops that resulted in Bleeding and Belonging, a collection of poems expressing "the emotions, uncertainties, and resilience that shape life with bleeding disorders".

👀 Read Lisa's blog here: https://loom.ly/8ZBL_9s

🎧 Listen to the podcast here: https://loom.ly/d6YUipg

📕 Read the poems here: https://loom.ly/JPyoVFo

13/03/2026

Presenting the top ten articles for February in Bleeding Disorders: Care & Practice. Patient experience and quality of life continue to feature — as does our most read article ever, 'What is a nurse-led service?'

Why not explore our archives here: https://loom.ly/uIXcNF8

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http://www.haemnet.com/

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