Haemnet

Haemnet works at the heart of the bleeding disorders community.

We're a specialist consultancy, engaged in research, communications, community education and support. Haemnet is a specialist research and communications consultancy embedded in the bleeding disorders community. We undertake research relevant to patients and their families, we communicate on the things that matter in bleeding disorders, and we enable the community to share their experience to expand knowledge.

28/07/2025

☕️ We’re brewing something special!
Our coffee mornings continue across Scotland, bringing together people with bleeding disorders to share stories, support, and plenty of laughs.

We had a fantastic time catching up with the community in Inverness recently — next stop: Aberdeen on 27th September! 🎉

No presentations. No pressure. Just good company and a cuppa. ❤️

Find out more and register via Eventbrite:
www.eventbrite.co.uk/e/members-meet-up-in-aberdeen-tickets-1311522181149

25/07/2025

We couldn't do it without you!

Everything we do around bleeding disorders ultimately comes down to people who live with them, and people who care for people who live with them.

So, we'd like to thank everyone who shares their experiences with us in our research studies, blogs, podcasts and beyond. Individual stories really do matter when it comes to understanding bleeding disorders.

Interested to know more? Why not check out our family-focused posts on the Haemnet blog, or tune into Haemcast on your favourite podcast channel. Or get in touch to find out more about how your story can help our research: https://loom.ly/vkd8zoE

21/07/2025

Have you tuned in to Haemcast lately?

Don't forget, all episodes of our mini series 'Reflections on a life with severe haemophilia', featuring octagenarian Terence O'Rourke, are now available to download, stream and listen to: https://loom.ly/A4UWu6M

New Haemcast episodes coming soon…

16/07/2025

On the Haemnet blog, community advocate Rich Gorman reflects on a report from a multidisciplinary expert discussion on virtual care in haemophilia, published in The Journal of Haemophilia Practice.

Looking at the challenges and potential benefits, Rich stresses the importance of listening to people with haemophilia when researching and assessing new models of care.

What do you think?

Find out more here: https://loom.ly/k_d1RDk

11/07/2025

Soaking up the sun by the seaside? Staycationing or going global?

Peak summer holiday time is creeping closer. It’s often a time for winding down and relaxing – but not for Haemnet!

We’re looking forward to a busy summer full of projects and planning.

Alongside a schedule involving , , , and rare factor deficiencies, planning our next special series, and honing the next instalments of our family-focused , we’ll be publishing new papers and case studies in The Journal of Haemophilia Practice.

What are your summer plans?

09/07/2025

An important new report from The Haemophilia Society UK highlights that women and girls with a bleeding disorder are continuing to be underserved and overlooked in terms of their care.

The report shares the stories of women affected by a bleeding disorder, and includes 19 recommendations around areas including treatment and diagnosis, obstetrics and gynaecology, and treatment and care plans. It also calls for more research into the lived experience of women and girls with a bleeding disorder. Be sure to check it out.

08/07/2025

Part 6 of our series in conversation with Terence O'Rourke about living with haemophilia A comes right up to date with talk of gene therapy, self-advocacy and treatment decisions.

Stream, download and listen here: https://loom.ly/A4UWu6M

-advocacy

04/07/2025

Scary, stressful, traumatic… Taking control!

Parents in our family-focused Haemnet blog series discuss life with children diagnosed with a .

Find out about overcoming fears and the power of connecting with others: https://loom.ly/C45ztMwg

30/06/2025

Have you caught up with Terence's story?

Five episodes of our miniseries, in conversation with Terence O'Rourke about living with severe haemophilia over eight decades, are now available — and part 6 is due out soon!

Stream, download and listen here: https://loom.ly/A4UWu6M

23/06/2025

Jo and Alex's message to other families who have children with von Willebrand disease is that it isn't something to be frightened of — but you do need to learn about it, understand it, and be prepared.

Interested to know more? Part 2 of their story about raising girls with Type 2 von Willebrand's is now available on the Haemnet blog: https://loom.ly/tfNPF4Y

20/06/2025

Are you going to ? Look out for our posters presenting results and insights from the VWD360 study, which explored the daily impact of with over 600 participants

Address

Brixton

Website

http://www.haemnet.com/

Alerts

Be the first to know and let us send you an email when Haemnet posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to Haemnet: