ICUsteps Bury St Edmunds

05/03/2026

This coming Monday 9th Freedom Church 10.30am - 12.30pm our speaker is Andrea, a occupational therapist from Headway, who will be explaining common cognitive changes you may notice post critical illness and ways to adapt during this period.
Hope to see you there. Support available for family members as well.

02/02/2026

Feel free to pop into our next coffee morning on the 9th February 10.30am-12.30pm.
We’re going to be talking about what delirium is, the effects and recovery afterwards. We’d love to see you there. Open to those who have had a Critical Care stay and your loved ones.

What does delirium actually feel like for patients with sepsis?

Delirium and subsyndromal delirium are often described clinically, but far less often through the patient’s own lived experience. This study shifts the lens to the body and mind as experienced from within.

🔗 https://doi.org/10.1111/nicc.70256

BACCN British Association of Critical Care Nurses

01/02/2026

Your voice matters!!
If you, or a loved one, has had a stay in Critical Care, please consider completing this survey.
It will help frame research undertaken moving forward. Thank you.

Your voice matters when it comes to priorities for Intensive Care (ICU) research.

In Autumn, the Intensive Care Society heard from over 500 patients, family members and healthcare professionals about questions they believed research should answer.

This list has been reviewed and condensed into 59 summary questions, which includes:

▪️Access and admission to ICU
▪️Diagnosis, treatments and support, and
▪️Outcoms in ICU and/or during recovery

They now need you to decide which of these questions are the most important to you.

Who can take part?

✅ Adults (18+) living in the UK who have had an intensive care unit (ICU) stay.

✅ Family members, friends, or carers of a person who had an adult ICU stay (including those who have been bereaved).

✅ Healthcare professionals working with adults in ICU or with patients recovering after ICU (including rehabilitation and support services).

This work is funded by the Intensive Care Society and supported by the James Lind Alliance and the National Institute for Health and Care Research (NIHR).

Please take part and have your say > https://www.surveymonkey.com/r/RSF93KS

11/01/2026

Happy New Year 💥
It’s our first meeting in 2026 tomorrow (12th Jan 10.30am - 12.30pm Freedom Church).
If you’ve had a Critical Care/ITU stay or supported someone through critical illness feel free to come along - we understand the journey you’re on.

11/12/2025

We look forward to seeing you in the New Year - feel free to pop in & bring a family member/close friend with you.

28/11/2025

Come along to our last coffee morning of the year - December 8th, anytime between 10.30am -12.30pm Freedom Church 🎄
If you or a loved one has had a Critical Care stay feel free to pop in. It’s a relaxing space and you will receive a warm welcome.

06/11/2025

David from Citizen’s Advice is coming to our next session (this coming Monday 10th November 10.30am-12.30pm). He will be explaining what we are entitled too if not able to work, during recovery after critical illness, as can feel overwhelming trying to navigate this suddenly.
It’s going to be a good session - feel free to pop in, we’d love to see you. ☕️ Freedom Church

28/10/2025

Engaging & useful talk from Speech Therapist Jo about why swallowing and voice changes can occur during critical illness and how they can support with communication challenges on ICU.

Consider coming along to our next coffee morning on the 10th November Freedom Church

08/10/2025

Coffee morning this coming Monday 13th October. Feel free to pop in if you or your loved one has experienced a Critical Care(ITU) stay. A speech therapist will be talking about voice & swallowing changes after critical illness and what can help. Plenty of time just to connect with others as well. Look forward to seeing you there.
10.30am-12.30pm Freedom Community Cafe

08/09/2025

Thank you Freedom Community Cafe for our ‘kindness cuppa’ this morning paid forward by kind donations. ❤️

AGM this morning - We have a great committee who are committed to supporting you & your loved ones after critical care. We’d love for you to pop in & visit.

02/09/2025

Feel free to pop in to our monthly coffee morning 10.30am - 12pm Freedom Community Cafe We understand how a stay in Critical Care can make you feel & how isolating recovery can be.
Feel free to stay 12-12.30pm for our AGM - feedback welcome & you can hear what has happened over the past year.

11/08/2025

Really useful session this morning given by Jennie Suffolk Family Carers about support that’s available when you are physically changed, after a Critical Care stay, & need the support of a loved one as you recover.
Feel free to pop in next month.