EoE Neonatal Network

02/03/2022

The UK Neonatal Nurses Association is concerned and saddened by the reports & images showing the effect of the current conflict in Ukraine on the ability of neonatal nurses to care for sick/preterm infants and their families. Our thoughts are with those dedicated Ukrainian teams at this very challenging time. On behalf of the neonatal nursing workforce in the UK, we are sending a message of solidarity to our neonatal colleagues in Ukraine. As a global member of the international neonatal nursing community, we also align with the Council of International Neonatal Nurses (COINN) and its position. We and COINN stand with our colleagues in Ukraine and advocate for peace. It is heart-breaking to see our colleagues manually ventilating babies in underground bunkers, to see children with terror in their eyes and to see the senseless conflict between brotherly countries. As the many citizens of Ukraine and Russia and the rest of the civilised world, the NNA & COINN are advocating for a peaceful resolution of the crisis.

10/02/2022

Did your baby experience a preterm birth brain injury? Researchers from UCL are working on an exciting project to find out more about the long-term health and educational outcomes for babies who experience brain injury - and they want your help to shape the study.

The CHERub study is running a workshop for parents to make sure the questions which are most important and meaningful to families are going to be answered. To find out more, please email Pippa at p.rees@ucl.ac.uk

09/09/2021

Hi

With health professionals being at the centre of your baby’s care on the neonatal unit, it can be a struggle knowing how you can be too. Remember not to feel pressured, you don’t have to get involved with all of your baby’s care right away, or at all. The unit will support you in a way that is right for your family. Find out why you are a really important part of your baby’s care. > https://buff.ly/2P9MBpJ

27/06/2021

05/06/2021

Almost half of the neonatal units that responded to our survey were unable to allow parents to remove PPE even when they held their baby, parents have told us about their concerns about the impact on them and their baby, including bonding, development, and breastfeeding. Read about this in our report https://buff.ly/3c8QtCA

26/04/2021

At 9pm tonight a new series called Baby Surgeons: Delivering Miracles starts on Channel 4. It features complex pregnancies and images from neonatal care. This might bring up painful memories if you have had a neonatal experience, or are currently on the unit.

We're here for you 💙

21/04/2021

We love these ideas by Miracle Moon on how to support a friend when their baby is in NICU.

Miracle Moon are taking over our Instagram stories all week, sharing their stories and providing brilliant advice.

Make sure to tune in tomorrow at 12pm, where they will answer your questions live!

Watch their takeover on our stories here: https://www.instagram.com/blisscharity/

22/02/2021

"Having Down Syndrome doesn't make my daughters life any less worthy ❤️"️- Lucy

Lucy is mum to her beautiful daughter Polly Blossom, you can follow their journey together online by searching

Parents may have to navigate a complex medical world due to their baby’s condition – both on the neonatal unit and after they leave. A diagnosis can be an important milestone in helping understand what your baby is experiencing. It can also provide access to resources to support your baby. Share your diagnosis journey with

21/02/2021

21/02/2021

Has your baby had experience of patent ductal arteriosus (PDA)? If so, then we’d like to hear from you! We’re redeveloping our online information for parents about PDA and would like to hear about your experience through a survey.

Having the insight of people of have experienced neonatal care is incredibly important to us, so we can ensure that parents of premature and sick babies get high-quality, reliable and supportive information. To have your say, and to help shape our information please complete our online survey: https://buff.ly/3s9A0nf

18/02/2021

Are you the dad of a baby who has received neonatal care during the pandemic or the partner of someone who has had a premature or sick baby at this time? We want to hear about your experience! Fill in our survey to help us raise your views with government and health services: https://buff.ly/2EBU1zB

14/02/2021

11/02/2021

Dads and partners often tell us they struggle to talk about their emotions while their baby is in neonatal care, this may be heightened if parents are not able to spend as much time on the unit as they would like. It’s important to look after yourself too. You’re not weak for getting support, whether it’s talking to someone you trust or to our Support Team at hello@bliss.org.uk

29/01/2021

CALL FOR APPLICATIONS!!! Here is an opportunity to apply to the NNA for Travel scholarships of up to £1000 and Research/Education Scholarships of up to £2000. This will officially be launched at the March online conference 2021. If you need more info, please go to www.nna.org.uk to download the info brochure or the application form.

15/01/2021

Neonatal workers go above and beyond every day on neonatal units, and parents often get in touch with us to celebrate the care they receive at challenging times. Take a minute to say thank you to a neonatal staff member who made a difference to you and your family 👇