Cambridge ME group

15/01/2026

PLEASE do respond to this survey if you possibly can! It’s really important to have as much information as possible about PWME so that the charities can do their best for us.

Find out how you can contribute to our 2025 Big Survey - a vital research project aiming to illustrate the impact of ME and long Covid.

14/01/2026

Income-related Employment and Support Allowance (ESA) is also being replaced by Universal Credit and the DWP wants everyone claiming this benefit to be transferred across by March 31, 2026

14/01/2026

we in the ME and LC community must support each other as best we can - we get very little from society!

That starts with reaching out to others to see what you can do for them, within the limitations of your illness. If there’s a local support group in your area, ask what you can do to help. You may be surprised by how rewarding you find it.

11/01/2026

Courtesy of crunchme.org

01/01/2026

19/12/2025

There are plenty of signs that the government is limbering up for an attack on benefits support for the disabled. Sign up to Scope’s campaign to oppose the sort of gaslighting that useful idiots like Suzanne O’ Sullivan (“It's All in Your Head: True Stories of Imaginary Illness [eg ME]”; “The Age of Diagnosis [or why no allowances should be made for neurodiversity]”) are perpetrating.

https://campaigns.scope.org.uk/page/183572/petition/1

19/12/2025

There is hope - however bad your ME may be. Whitney Dafoe has survived more than a decade of the hell of very severe ME. He never stopped doing what he could to build solidarity with us PwME.

More than that - he has shown us that we should always live our lives to the fullest our illness will allow. He has inspired and comforted us.

Now he is eating and talking again!

10/12/2025

09/12/2025

TODAY's action 🙏

If you have the spoons…

Sally Callow (Stripy Lightbulb) is asking us to help get severely ill PwME recognised as permanently unable to work, for benefits purposes.

if anyone can send the email and post on social media 🙏

On 9th December 2025, we are holding our one-day campaign to demand fairness and clarity for people living with Myalgic Encephalomyelitis/Chronic