ForwardwithDementia-GB

07/09/2023

PrAUD (Promoting Access and Use of Dementia services in South Asian communities) is a UCL-East-funded community-based project led by Dr Claudio Di Lorito, a Research Fellow at University College London.

PrAUD aims to:
• Increase the understanding of the barriers and needs of people from South Asian communities on a dementia journey.
• Promote awareness, access and use of dementia care and support services in South Asian communities.

Our Team at UCL have built a partnership with people living with dementia and their caregivers from Southeast Asian communities in East London and met regularly over the past few months. Through the partnership, we have:
• Heard stories of dementia journeys through individual conversations with community members, gathering important information on the experiences and needs of the community, on the barriers to service access and use, and on which ways these barriers can be addressed.
• Co-developed with the community members and an artist from East London (https://www.adajusic.com/) storyboards illustrating their stories. An example of this story (copyrighted) is below.
The next steps of PrAUD is to showcase the storyboards at a community event in September at the Carers Centre in Tower Hamlets, London (https://ccth.org.uk/), where we will invite all people from the community to raise awareness about

02/09/2023

In December 2022, more than £3.6 million of government funding was awarded to the National Academy of Social Prescribing to support wellbeing, including impacts of people living with dementia.

What social prescribers do for people with dementia:

- Help people to find suitable and enjoyable
- Connect people with other people who have or who are of people with dementia
- Help people to access services such as day care, care, or
- Provide information about dementia and its
- Help people to develop coping strategies for dealing with dementia challenges
- Support by providing information, advice, and emotional support.

If you or someone you know has dementia, ask your GP or local mental health team about social prescribing.

Also start your for free right here:
https://www.forwardwithdementia.org/en/how-to-use-your-toolkit/

The toolkit is here for you to start your way forward with dementia. It allows you to save articles and practical tips in the form of to-do’s that are relevant to you in your personal toolkit.

01/09/2023

https://www.forwardwithdementia.org/en/news/martins-story-living-with-pca/

Check out the rest of the website for more support for people with , those caring for them and the networks around them.

31/08/2023

Living with , is music important to your day? How we experience music is as important as the music we enjoy:

- Listening on your own or with others to favourite songs
- Singing along to familiar tunes
- Dancing, swaying or tapping to music
- Attending a concert or other musical event
- Watching a musical film or recording of an opera
- Playing a musical instrument on your own or as part of a group
- Singing in a choir.

https://www.forwardwithdementia.org/en/news/music-for-dementia/

14/08/2023

Join us to facilitate the role of social prescribing link workers in providing care for people living with dementia


What is the “social prescribing study” about?
Everyone living with dementia should have a ‘personalised care plan’. The plan should include health and social care support based on what matters most to the person. Social needs are important for people living with dementia. Social prescribing links health and social care with community services to meet social needs. It is important and timely that we understand the experiences and needs of the current workforce in supporting people with dementia and carers. The “social prescribing study” aims to facilitate the role of social prescribing link workers in providing care for people living with dementia by co-producing evidence-based resources to improve community-based personalised dementia care.

Developing new information and advice

We are inviting people living with dementia, caregivers, social prescribing link workers and stakeholders to join us in developing resources so that we can facilitate the role of social prescribing link workers in providing care for people living with dementia.
You can help us by taking part in a short remote (online on Zoom or Teams) or in-person interview with our research team. You can also help by taking part in a remote (online on Zoom or Teams) or in-person group discussion.

What will be expected of me?
We would like to find out from social prescribing link workers:
• What is the current provision of social prescribing?
• What are the experiences of supporting people living with dementia (and carers)?
• What are training and support needs for social prescribing link workers to provide better care for people living with dementia?
• Are these training and support needs being met?
• What are the gaps and what can be done to better support social prescribing link workers?
Everything that you tell us will be anonymous and not linked to you in any way.
If you would like to find out more, please email Dr Claudio Di Lorito at: Claudio.dilorito@ucl.ac.uk

Please feel free to share this with anyone who you think might be interested.

14/08/2023

Not typically the most inspirational of days, but a day that “new” begins. If you are or you are part of the community this guide features tips & resources to help you, or a friend, who is struggling with a diagnosis and what to do next

Without having to create usernames, passwords (or give anyone your data) you can now create your own dementia toolkit and keep all the practical guidance, ar...

12/08/2023

It can get hot out there, what’s your best advice for keeping up fluid intake?

https://www.forwardwithdementia.org/en/news/drinking-enough-fluids/

Get organised. Our FREE will help you:
https://www.forwardwithdementia.org/en/how-to-use-your-toolkit/

11/08/2023

Social prescribing helps people with dementia to:

Stay active and engaged in their community
Build social connections
Learn new skills
Manage their symptoms
Improve their quality of life

Let’s move Start your free toolkit today https://toolkit.forwardwithdementia.org/

10/08/2023

Just a minute to check out our toolkit? This video explains how it all works in under 60 seconds:

https://www.youtube.com/watch?v=4ct8RbFP8Qo

Moving with for patients, , and professionals

We want to replace the uncertainty of dementia with clarity. Forward with dementia is you're free to use guide featuring articles, stories and advice from He...

08/08/2023

- We think its OK not to be OK with this... Want to know HOW can help guide you to free, practical resources for those and ...in less than a minute? Here is a short video to explain what we have for you

We want to replace the uncertainty of dementia with clarity. Forward with dementia is you're free to use guide featuring articles, stories and advice from He...

05/08/2023

Expecting a diagnosis? It can be challenging to remember what to ask. Print out our list of questions to take with you.

https://www.forwardwithdementia.org/en/wp-content/uploads/sites/5/2021/10/Questions-about-dementia-diagnosis.pdf

For further practical support and advice from , start your free today: https://toolkit.forwardwithdementia.org/

04/08/2023

https://www.forwardwithdementia.org/en/article/1-1-help-the-person-and-carer-move-forward-with-their-dementia-diagnosis/

Patients and tell us that how you give the diagnosis is crucial to helping them understand how to make sense of their lives and how to move forward.

Keep moving . Our free toolkit is designed for anyone involved with dementia, to save articles and practical tips. Start yours today: https://www.forwardwithdementia.org/en/how-to-use-your-toolkit/