Cardiff Lupus Group

09/05/2026

🦋 Dr Kristen Young, a rheumatologist specialising in systemic lupus erythematosus (SLE), and also someone living with lupus herself, shares how difficult it was to receive a lupus diagnosis. She also discusses what newly diagnosed patients need to know about self-management, self-advocacy, and living well with this complex condition. Do have a read and share with anyone who may find it helpful 💜

"What a Newly Diagnosed Patient with Lupus Needs to Know About Self-Management"

https://rheumatology.org/patient-blog/what-a-newly-diagnosed-patient-with-lupus-needs-to-know-about-self-management

09/05/2026

🦋 We’re just one day away from World Lupus Day 💜

Today, we want to highlight the strength of those living with lupus through this inspiring article from the Lupus Foundation of America. Self-awareness, courage, patience, and resilience are just some of the many qualities our community develops every day ⭐️

https://www.lupus.org/blog/celebrating-the-strengths-of-a-lupus-warrior

Today and every day, we stand with everyone living with lupus and celebrate the strength within our community 💜

People living with lupus develop strengths that are unique to this journey, and it’s time we paused to honor and celebrate the strengths of a lupus warrior.

09/05/2026

Just one day to go until ! Get ready to raise your voice and help around the world.
Visit the awareness toolkit and join us in spreading the word: https://worldlupusday.org/tool-kit/

09/05/2026

It’s
✅ Pop in for a blood pressure check + heart-health advice.
🗓️ Monday May 11
⏰ 10am – 1pm
📍 Grangetown Hub
Then keep track at home by borrowing a blood pressure monitor for 3 weeks from Cardiff Hubs & Libraries (library card needed — free sign-up available)

It’s
✅ Pop in for a blood pressure check + heart-health advice.
🗓️ Monday May 11
⏰ 10am – 1pm
📍 Grangetown Hub
Then keep track at home by borrowing a blood pressure monitor for 3 weeks from Cardiff Hubs & Libraries (library card needed — free sign-up available)

https://orlo.uk/qkTSa


Cardiff Metropolitan University
British Heart Foundation - Wales

07/05/2026

New global survey results from the World Lupus Federation show that 58% of people worldwide still know little or nothing about lupus — and misconceptions about the disease remain common.
As approaches on May 10, help us raise awareness, share facts, and Make Lupus Visible for the millions impacted worldwide. Read the full findings: https://worldlupusfederation.org/2026/05/05/new-world-lupus-federation-global-survey-finds-58-know-very-little-or-nothing-about-lupus/

07/05/2026

07/05/2026

🦋 Have you seen the logo for World Lupus Day? You can download it in colour or black & white and share it to help spread the message 💜

🔗 https://worldlupusday.org/tool-kit/

This 10th May is World Lupus Day. Let’s raise awareness of lupus and show support for everyone living with it 🤗

05/05/2026

🌍🎉 May is Lupus Awareness Month across the world, and 10th May marks World Lupus Day 💜

Join us this May in raising awareness of lupus: every little action counts. Whether it’s sharing information with family, friends, colleagues or your wider network, it all helps shine a light on this often misunderstood condition.

There are free online resources, activities, posters and facts available here:

https://worldlupusday.org/tool-kit/

https://lupusuk.org.uk/world-lupus-day-may-10th/

https://www.lupus.org/lupus-awareness-month

🏰 And don’t miss Cardiff Castle, Cardiff Council, lit up in purple this Sunday. Let’s come together and make lupus visible 💜

05/05/2026

💜 If you are 18-30 years old, live with lupus, and enjoy , join us online for our Virtual Young People Lupus Crafting Group!

The crafting group will take place on Zoom on Thursday 14th May from 6:00pm - 7:00pm (BST).

Bring your own craft and come to a safe space where you can talk to other young people living with . To learn more, sign up or find out about other upcoming events, visit

https://lupusuk.org.uk/youth-events/

Reminder!

If you are 18-30 years old, live with lupus, and enjoy , join us online for our Virtual Young People Lupus Crafting Group!

The crafting group will take place on Zoom on Thursday 14th May from 6:00pm - 7:00pm (BST).

Bring your own craft and come to a safe space where you can talk to other young people living with .

To learn more, sign up or find out about other upcoming events, visit https://lupusuk.org.uk/youth-events/

04/05/2026

🦋 Journalist Tyler Mears, living with lupus since 2017, has bravely shared her experience of being diagnosed with skin cancer. Her story is a powerful reminder of resilience and the challenges many face. Thank you, Tyler, for raising awareness and speaking out 💜

"I just couldn’t shake the feeling that there was something wrong... I debated going back to the doctor but worried I was wasting their time. A few weeks later I was working from home. It was a lovely sunny day and I was wearing a summer dress. As I sat back in my seat I looked down at my leg... I decided there and then to just bite the bullet and call my GP. Turns out that summer dress probably ended up saving my life."

04/05/2026

May Is Lupus Awareness Month!

Join us as we come together with organizations across the world to Make Lupus Visible! Much more to come. Stay tuned!