Cardiff Lupus Group

22/03/2026

The Menopause Café in East Cardiff Cluster offers a warm, welcoming space where open and honest conversations about menopause are encouraged.

This isn’t a medical session - just a relaxed, informal gathering where people living in East Cardiff can share experiences, ask questions, and connect with others who truly understand. Whether you’re going through menopause yourself or supporting someone who is, you’re welcome here.

- Help break the stigma
- Build confidence through conversation
- Feel supported and less alone

🗓 Last Tuesday of every month (launch event Tuesday, March 24 at 10am)
📍 Maelfa Hub, Llanedeyrn
☕ Drop in anytime - no booking needed

Come along for a chat, a cuppa, and a sense of community.

22/03/2026

💜 Congratulations to actress Jess Impiazzi on her pregnancy 🎉

Very sorry to hear about her difficult journey to a lupus diagnosis. Research shows it can take around six years or more, often involving multiple specialists, before people receive answers — which is simply too long.

🦋 It’s so important we all keep raising awareness of lupus and ensure people are listened to and diagnosed sooner.

# Actress Calls for NHS Reform After Personal Health Struggles. # # Jess Impiazzi shares her experience battling lupus and urges change.

22/03/2026

💻Online pilot course: Living Well with Osteoporosis

📅 Starts Tuesday 5 May |⏰ 13:00 – 15:30 (6 weekly sessions)

Friendly online sessions designed to help you:
✔️ Manage symptoms
✔️ Build confidence
✔️ Support your wellbeing

Developed in collaboration with Dr I. Singh, National Clinical Lead for
Bone Health in Wales.

As a pilot programme, your experiences will help shape future osteoporosis support in Wales.

📲 Book your free place: Living Well with Osteoporosis

📧 Got a query? Email: eppcymru@wales.nhs.uk

22/03/2026

Are you a parent or carer of a young person with who would like to meet others going through a similar experience?

Come along to our next Virtual Parents and Carers Group!

📅: Thursday, 26th March
🕕: 7:00pm - 8:00pm
📍: Zoom

You will have the opportunity to chat, ask questions, get support, and find out more about lupus in children and young people.

If you are interested in joining, please register by visiting https://lupusuk.org.uk/youth-events/

For more information, please contact support@lupusuk.org.uk

21/03/2026

Have you ever been affected by cross-border arrangements between England and Wales in relation to healthcare?  The Welsh Affairs Committee is conducting an inquiry into cross-border healthcare. We would like to hear from people who have had to travel across the England-Wales border to acce...

21/03/2026

🦴 New FREE “Living Well with Osteoporosis” online course starting soon! ⭐️ Delivered by EPP Cymru

Everyone is welcome to join this 6-week course where you can learn to:

• Manage symptoms
• Boost confidence
• Support your mental health and wellbeing

📧 For more details and to book your place, please email: eppcymru@wales.nhs.uk

20/03/2026

⭐ From the latest Welsh Government e-Newsletter: A women’s health hub is now open in every health board area in Wales, bringing menopause, contraception and menstrual health services closer to home.

Since the publishing of the Women’s Health Plan in December 2024 there has been extensive training for GPs and other healthcare workers about a variety of Women’s health issues, including endometriosis.

A new website dedicated to women’s health was launched this week. It provides information on how to access the health hubs: https://womenshealth.nhs.wales/

20/03/2026

🤗The news of the recent meningitis outbreak in Kent may feel worrying for many in our community. If you’re looking for clear, reliable information, 'Meningitis Now' provides helpful guidance on symptoms, vaccines, and more. They also provide support services and a helpline if you need further information.

Staying informed is one of the best ways we can look after ourselves and each other, so please do take a moment to explore their resources 💜

20/03/2026

We know that the meningitis outbreak in Kent is worrying for a lot of people, and our thoughts are with the individuals involved, their families and their broader community.

It's important to remember that while most deaths from meningitis are due to sepsis, meningitis causes approximately 1% of cases. In light of recent events, it's vital that everyone – especially university students – takes 5 minutes to familiarise themselves with the signs of sepsis and, of course, meningitis.

Sepsis can often be confused for other things – whether that's freshers' flu or an extreme hangover. If you or a loved one is concerned, don't dismiss your symptoms. Contact a health professional or use our Sepsis Assessment Tool, available on our website.

More information about meningitis, including the signs to look out for, can be found here: https://www.nhs.uk/conditions/meningitis/

18/03/2026

Every child deserves a pain-free future. For many young people, rheumatic diseases, are a reality.

Diagnosis can be complex, as symptoms are often subtle or mistaken for other conditions. Missing these early signs can have a serious impact on a child’s growth, education, and emotional well‑being.

On we join the global community in raising awareness of paediatric rheumatic diseases.

At , we are committed to advancing research, education, and advocacy to ensure every child receives the care they need.

💪 Together, we can make a difference.

18/03/2026

Today is World Young Rheumatic Diseases Day (WORD Day), which raises awareness for the fact that children and young people live with rheumatic diseases like too.

Rheumatic diseases, or diseases are conditions that impact your joints tendons, ligaments, bones, and muscles.

This can be challenging for young people who live with them as many of them live with pain, immobility and fatigue.

If you are a parent or carer of a young person with lupus, come along to our next Parents and Carers meeting taking place on Thursday 26th March 2026.
For more information, visit https://lupusuk.org.uk/youth-events/