Cardiff Lupus Group

26/10/2025

📩 Did you know that one of the ways you can raise money for Kidney Care UK at no cost to yourself is to send us your used stamps? We have been collecting stamps since in 1978 and still accept them today! You can request your free stamp collection box from here: https://kidneycareuk.org/get-involved/fundraising-ideas-kidneycareuk/donate-stamps-and-raise-funds-for-kidney-patients/

A huge thank you to everyone who has donated their used stamps to us for over 40 years!

25/10/2025

🟢 Grow Cardiff is offering free indoor, nature-inspired craft sessions this autumn and winter for individuals living in, or registered with a GP in, Riverside, Canton, Pontcanna, Ely, or Caerau.

The weekly sessions provide an opportunity to take part in creative activities, enjoy conversation, and share freshly made hot soup.

⏰Dates: Thursdays, 23 October 2025 – 26 March 2026 Time: 1.00 – 3.00 pm
📌Venue: Wesley Methodist Church Hall, 2A Nottingham Street, Cardiff, CF5 1JP
(No sessions on 25 December 2025, 1 January, or 19 February 2026.)

Places are limited and booking is essential. To reserve a place, contact Ali on 07594 761 669 or email ali@growcardiff.org

(Info reposted from C3SC)

23/10/2025

20/10/2025

🦴 It’s World Osteoporosis Day! A reminder that bone health matters for everyone — especially those living with 🦋

💜 On this day, let’s raise awareness about bone density screening and early prevention.
Check out the Royal Osteoporosis Society’s new Bone Check to learn more about your risk and how to protect your bones!

19/10/2025

💜 Thank you Sarah Heney for sharing this wonderful story about the 'Lupus Support UK' private Facebook group. In 2022, the group was chosen from over 6,000 applicants worldwide to join the 'Facebook Accelerator Programme', thanks to their late admin Ali Seamer, who applied on the group’s behalf.

The group received funding, which supported an inspiring awareness and empowerment video featuring its members, along with a year of online yoga, meditation, book clubs, socials, and a Loose Lupie Women session.

Ali’s legacy continues to empower members not to be defined by lupus. 🎥 Watch the full video here and help raising lupus awareness 💜:

Filmed over Spring and Summer 2023, the purpose was to remind all our members that they are so much more than their Lupus diagnosis. The impact we have seen ...

18/10/2025

18/10/2025

🌸 World Menopause Day – October 18th 💜

Menopause can be a big change for anyone — and for those of us living with lupus, it can bring extra challenges. Today, let’s remind each other that we’re not alone.

🌸💜

It’s World Menopause Day. We can’t pretend to know what you’re going through, but we can try to show you we care.

16/10/2025

Are you a parent or carer who would like to meet others going through a similar experience? Our next Parents meeting is coming up.

📅: Thursday, 20th November
🕕: 6-7pm
📍: Zoom

You can join our next meet up to come together with other parents and carers. You will have the opportunity to chat, ask questions, get support, and find out more about lupus in children and young people.

We will be joined by Francesca, our very own Patient and Public Involvement and Engagement (PPIE) Officer, who will be doing a short presentation on what PPIE is and how it relates to lupus.

If you are interested in joining, please register by scanning the QR code or clicking here: https://lupusuk.org.uk/youth-events/

For more information, please contact our Young People and Family Support Officer at chelsea@lupusuk.org.uk

15/10/2025

There is still time to sign up to the FLIP study which has now reopened!

The trial is investigating whether an online fatigue management programme can help reduce the impact of fatigue in people with SLE. You can find out more, including how to take part, on our website: https://lupusuk.org.uk/2025/07/22/flip-study-recruiting-now/

or sign up here: https://ecrf.igmm.ed.ac.uk/surveys/?s=888YTHNDLF4CAAP7

We encourage you to complete the screening questions soon if you are interested in taking part, as recruitment will close once the research team's recruitment target has been met.

14/10/2025

Help shape research on chest infections and antibiotics

The SPARROW study is exploring how quick tests in GP and pharmacy settings can help decide when antibiotics are really needed for coughs and chest infections.

We are looking for people with experience of chest infections or COPD to join a group of public members who provide input to shape the research to understand how quick tests decide when antibiotics are needed.

No previous research experience needed.

Training and support provided.

Online meetings with flexible involvement.

By sharing your views, you can help ensure this research is relevant, patient-centred and makes a real difference to healthcare.

Find out more and apply through the link in the comments.

Deadline: 24 October

12/10/2025

💙😍

We've lit up in blue today to mark - a day to raise awareness of the impact of arthritis and musculoskeletal (MSK) conditions.

If you're living with arthritis and need support, & Versus Arthritis are there to help. 💙

https://orlo.uk/X33WO