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15/11/2025

*Welsh Senedd Debate on Severe and Very Severe ME*

DEBATE POSTPONED AGAIN - TO 10TH DECEMBER!

We’re sorry to report that there’s been a further postponement of the Welsh Senedd Debate on Motion 8884 – Severe and Very Severe ME - to be led by Adam Price, MS.

We obviously have no control over how Senedd business is managed, and there are many demands on the Senedd timetable, especially in the build-up to next May’s elections.

The debate has been re-allocated to the Plenary Session on the afternoon of Wednesday, December 10th.

There is a public gallery, and it would be great to fill it! The debate will also be live-streamed / recorded on Senedd TV. We’ll let you know more details as soon as we get them.

Adam stresses that personal stories carry great weight in such events - they are the lived experiences which help politicians connect with the lives of their constituents, their voters. With Senedd elections approaching fast, now is a good time to enlist your Senedd Members’ support – because they also want yours!

As ever, if you’d like to get in touch please email: severeme.cymru@gmail.com

Diolch / Thanks

Rob Messenger

Severe ME Difrifol Cymru

Adam Price
ME Association
Action for ME
WAMES

03/10/2025

Next Tue 7th, the Welsh Senedd Business Committee will be considering allocating 15th Oct for a debate on Severe/Very Severe ME.

People with ME in Wales – please email your Senedd Members – ask them to get behind MS Adam Price’s Motion https://record.senedd.wales/Motion/8884

We know that it has a good chance of being selected. Can you help to push it over the line?

Find your local Constituency/Regional MSs: https://senedd.wales/find-a-member-of-the-senedd/

Personalise a template: (https://www.500milesfor.me)

Tell us: SevereME.Cymru@gmail.com

Diolch yn fawr / Thank you

WAMES
ME Association
Action for ME

18/07/2025

Severe ME Difrifol Cymru is an informal group of people in Wales with Severe/Very Severe ME and carers. On Tuesday 15thJuly, we had a stall at Y Farchnad (The Marketplace) in the Welsh Senedd, where we hoped to recruit as many Senedd Members (MSs) as possible to support the Motion for debate being sponsored by Adam Price (MS) (Motion8884: https://record.senedd.wales/Motion/8884

We were very busy - with one, two, and sometimes three MSs at a time, engaging with our patient stories, listening whilst we explained the rationale behind the Motion, and each going away with a pack of info. 17 MSs signed our register and there were probably a couple more we missed, and others who were absent from the Senedd on the day but who have written to add their support - in all more than a third of all MSs, most saying they will support the Motion and several offering to speak in the debate. And, of course, they all wanted a photo with the banner and the Team!

We came away very encouraged, and hopeful that the motion will now stand a better chance of being selected for debate after the Senedd’s Summer Recess. We’ll keep you posted.

A BIG THANK YOU: to all of you who lobbied your MSs to attend – it paid off! ; to WAMES, ME Association, Action for ME and the 25% ME Group for supporting our efforts - because we are STRONGER TOGETHER!; to Jeremy Jeffs who lent us his amazing photos; to the Team who variously designed and prepared the display, spent hours printing, paid for the pop-up banner, took the risk of sharing their very personal lived experiences of Severe / Very Severe ME in writing or in person on the day; to those who remained at home as carers so that others could attend; and most especially to those who were too ill to be there themselves but who we knew were right behind us.

What a TEAM EFFORT!!!

Diolch yn fawr iawn, Pawb – Thanks Everyone!

Team on the day: Myfanwy, Eleri, Ian, Gwenda, Rob.

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