Liwsi Our Brave Little Light

Liwsi Our Brave Little Light Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Liwsi Our Brave Little Light, Medical and health, cefneithin, Carmarthen.

Instagram: https://www.instagram.com/littlelightbigfight_ourfamily?igsh=dnQxMzM5cXk0Mjdt
🧬Sharing Liwsis rare journey
🤍Here to be seen, felt, heard
•Rare isn't less - It's just different•

06/04/2026

Hi everyone 💛

Just a quick update regarding the Skill-Based Question Draw…

Unfortunately, we only had around 20 entries for March, which means we weren’t able to go ahead with the draw at the end of the month as planned.

I want to make sure this stays fair and worthwhile for everyone who’s entered, so I’m giving you two options:

✨ Your entry can automatically roll over into April’s draw
✨ Or you can request a full refund—no problem at all

Please just drop me a message letting me know what you’d prefer 💌

Thank you all so much for your support—it genuinely means the world and helps more than you know 🤍

Hiya all!We're currently in Ty hafan. I will be in touch with you all regarding the skill based question draw when we ge...
01/04/2026

Hiya all!

We're currently in Ty hafan. I will be in touch with you all regarding the skill based question draw when we get back on the weekend!

28/03/2026

Winner of the name the bunny is Fudge - Kelly Crawford

Last few hours to enter
28/03/2026

Last few hours to enter

1126 jelly beans in the jar - Winner was Jemma with a guess of 1200🐰 Can’t make it to Canolfan Carwyn this Easter Funday...
28/03/2026

1126 jelly beans in the jar - Winner was Jemma with a guess of 1200

🐰 Can’t make it to Canolfan Carwyn this Easter Funday?

No problem — you can still join in the fun right here! 💛

🍬 How many jelly beans are in the jar? 🍬

It’s just £1 per guess, and the closest guess wins the whole jar! 🎉

Pop your guess in the comments or message us to enter 🐣✨

Good luck everyone! 💕

Come and see us in canolfan carwyn Easter Sunday for what's the bunnys name? & Guess how many jelly beans are in the jar...
28/03/2026

Come and see us in canolfan carwyn Easter Sunday for what's the bunnys name? & Guess how many jelly beans are in the jar! 💜

✨ A little sneak peek… ✨We are SO excited to share a draft of Liwsi’s fundraising merch 🥹💖Seeing this come to life is ho...
26/03/2026

✨ A little sneak peek… ✨

We are SO excited to share a draft of Liwsi’s fundraising merch 🥹💖
Seeing this come to life is honestly so emotional… something that started as an idea is now turning into something real.
But none of this would have been possible without the incredible support of some amazing local businesses who have backed us every step of the way 🙌
We want to say a HUGE thank you to:

💛 Gavin Griffiths
💛 JB Groundworks
💛 Roberts Keen Independent Financial Advisors Ltd
💛 Welsh Slate & Gift Boutique
💛 Harddwch Gan Jordanna
💛 Call A Cab

Because of you, we’ve been able to get our fundraising essentials ready from merchandise, to our roll-up banner, to flyers… everything we need to start showing up and spreading awareness for Liwsi 💪✨

Your kindness, generosity and belief in our journey means more than we can ever put into words. You’re not just sponsors… you’re part of Team Liwsi 🫶
We can’t wait to show you all the final pieces very soon 👀
Thank you for helping us take this next step 💛

25/03/2026

We've had a few more participants today!

You guys have no idea how much this would benefit liwsis fundraising for vital therapies!

If you can't participate please share and highlight the post for your friend 🤞❤️

24/03/2026

Please share 🙏

21/03/2026

Can we fill this to 100 for it to go ahead 🤞

There’s something so special about the water 🤍In the hydro pool, Liwsi gets to feel something she doesn’t always get to ...
17/03/2026

There’s something so special about the water 🤍

In the hydro pool, Liwsi gets to feel something she doesn’t always get to experience… freedom. Her body relaxes, the tension melts away, and that beautiful smile says everything.

Moments like this, with her dadi by her side, are more than just therapy, they’re pure joy, connection, and a glimpse of what life could feel like for her every day 💫

This is why we keep going. This is why it all matters 💛

16/03/2026

This is Liwsi 💛

Liwsi has two rare genetic conditions:
• Cri du Chat syndrome
• Xq28 duplication translocation

She is currently the only known child in the world with this exact combination.

Because of this, everyday life looks a little different for our family.
Liwsi works incredibly hard every day through therapies that help her grow stronger, regulate her body and develop new skills.

Right now that includes things like:
• Physiotherapy
• Hydrotherapy
• Sensory integration support
• Specialist equipment
• Lycra suits to support her body

Much of this support isn’t available through regular services, so we rely on private therapy.

Sessions can cost £80–£120 each, and the specialist lycra suit Liwsi needs costs £600–£700 every 3 months.

These therapies are what help Liwsi keep progressing, building strength, confidence and independence.

We share her journey to raise awareness, connect with others and show the reality of life with rare conditions.

If you're new here — welcome to our journey 💛

📍Carmarthenshire, Wales

Follow along to watch Liwsi grow and show the world what rare strength really looks like.





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Cefneithin
Carmarthen

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