Epilepsy Society

25/07/2025

We’ve already had three heatwaves declared this summer and we’ve heard from many of you that hot weather has made your epilepsy harder to manage.

In this video, Professor Sanjay Sisodiya, Transformation Director at Epilepsy Society, talks about his research on how climate change can impact people with epilepsy—and why gathering data to help understand this connection is more important than ever.

Please take a few minutes to share your experiences of how hot weather has affected your epilepsy by completing this survey: https://bit.ly/4m6mkFv

The more responses we receive, the better we can understand how extreme weather affects people with epilepsy and help everyone stay safe and prepared.

23/07/2025

Have you been treated at the Chalfont Centre?

At our Chalfont Centre we offer many different forms of epilepsy treatment, to many people. In fact, all the people you can see in the photos in this post have been treated here.

If you’ve been treated at the Chalfont Centre, we would love to hear about your experiences—whether through the genomic clinic, a TMS-EEG scan, a visit to Gowers, or a change in treatment that’s improved your quality of life.

By sharing your story, you’ll be helping to inspire others, raise awareness, and drive support for the life-changing work happening here every day.

Here is a link to a short questionnaire, where you can tell us about your experiences at the Chalfont Centre: https://bit.ly/4m2F2xQ

22/07/2025

Today is World Brain Day — which aims to increase public understanding of neurological disorders and advocate for better prevention, treatment, and care worldwide.

In honour of this, we’re highlighting four key facts about epilepsy to help break stigma and build awareness.

To learn more about epilepsy facts and myths, click here: https://bit.ly/46Xz7Wz

22/07/2025

Our research falls under four areas: , neuroimaging, neuropsychology & neuropathology.

Explore our research into 👉 http://bit.ly/2GAzV7I

21/07/2025

Claire Siderfin has completed an epic walk from her home in Southeast London to the Epilepsy Society HQ in Chalfont St Peter – a journey of 30 miles!

In the process she raised nearly £1,700 for Epilepsy Society, smashing her original fundraising goal!

A few years ago, Claire was diagnosed with temporal lobe epilepsy. She had experienced auras, seizures, and memory loss.

However, Claire has shown remarkable courage and positivity. She says, ‘I have taken control of the things I can: removing as much stress from my life as possible, eating well, staying fit, being strong, cherishing every moment with special friends and family, living life to the full, and loving work and all the opportunities and friendships it brings.’

What an incredible attitude and what a brilliant effort! Huge congratulations, Claire, and thank you so much for raising money and awareness for Epilepsy Society!

20/07/2025

With temperatures rising and extreme weather events like heatwaves occurring more frequently, we would like to hear from you about how climate change is affecting people with epilepsy.

Does hot weather trigger more frequent or severe seizures?
Are your living conditions making the heat harder to manage?
How does the heat affect your wellbeing—and how do you cope?

Professor Sanjay Sisodiya, who is leading research into how climate change affects people with epilepsy, has created a survey which takes approximately 10-15 minutes to complete. Your answers will be invaluable in building a clearer picture of what people with epilepsy face during extreme weather and will help guide efforts to improve safety during adverse weather events and ensure you have the best possible seizure control.

Here is a link to the survey:
https://qualtrics.ucl.ac.uk/jfe/form/SV_9NMdPhjp0zepvwi

Thank you.Thank you.

19/07/2025

If you see someone having a tonic clonic seizure, remember:

Stay CALM
CUSHION their head
CALL for help

Our aim is to make sure everyone knows how to support someone with epilepsy 💜

17/07/2025

Run the 2025 Royal Parks Half Marathon for Epilepsy Society

Although the public ballot is now closed, charity places are still available for this iconic event on 10 October 2025.

This scenic, flat route takes runners through Hyde Park, The Green Park, St. James’s Park, and Kensington Gardens, offering a unique opportunity to experience some of London’s most beautiful green spaces. The event is known for its vibrant atmosphere, with live DJs providing uplifting music along the course.

As a charity runner, there is no entry fee — simply commit to a fundraising target of £350 to support Epilepsy Society’s life-changing work.
Whether you're running solo or with friends, family, or colleagues, this is a fantastic opportunity to challenge yourself while making a real difference for people affected by epilepsy.

For more information and to sign up, please click here: https://bit.ly/44zYk81

16/07/2025

Helena Napier is an illustrator, graphic designer, and animator currently living and working in London. She was diagnosed with epilepsy at the age of 17, having experienced focal onset aware seizures and focal onset impaired awareness seizures since the age of 10.

In her profile on the Epilepsy Society website, Helena writes eloquently about receiving her diagnosis and coming to terms with epilepsy while managing the demands of early adulthood:

“The seizures were so pervasive that they touched almost every aspect of my life. They destroyed my memory, and my ability to concentrate or study deteriorated. I was, more often than not, tired, or frustrated or disorientated. Neuronal storms swiftly accelerated my trains of thought. I was creative and bright, but I didn’t try because trying became too hard and often got me nowhere.”

Helena now manages her epilepsy with medication. She is currently seizure-free and working with her neurologist to explore the possibility of a medication-free lifestyle.

You can read her full story here: https://bit.ly/4nOW4Bp

15/07/2025

𝐁𝐨𝐮𝐧𝐜𝐞 𝐢𝐧𝐭𝐨 𝐀𝐜𝐭𝐢𝐨𝐧 𝐟𝐨𝐫 𝐄𝐩𝐢𝐥𝐞𝐩𝐬𝐲 𝐒𝐨𝐜𝐢𝐞𝐭𝐲!

Walk, jog, or run your way through the Inflatable 5K – the UK’s bounciest obstacle course race! With distances of 2.5K, 5K, 10K, or 15K, there’s something for everyone.

Sign up now and find an event near you to raise vital funds for Epilepsy Society: runforcharity.com/epilepsy-society-/inflatable-event



https://bit.ly/4lvDYms

For full a full list of dates, locations & how to enter: www.ukrunningevents.co.uk

15/07/2025

Neuroimaging offers sophisticated techniques that enable us to look deep inside the brain and can help us to understand more about a person's and whether, in some cases, they may be suitable for surgery.

Learn more at our research hub http://bit.ly/2E2UF4V

14/07/2025

Thirteen-year-old Sofia Chambers is making headlines as she competes in the 2025 Regional Hockey Championships—just months after being diagnosed with epilepsy.

In January this year, Sofia, from North Down in Northern Ireland, was found unconscious in her bedroom, and over the following weeks, she experienced a series of increasingly severe seizures. It wasn’t until late March that she received a formal diagnosis of epilepsy and began treatment with anti-seizure medication.

Despite the uncertainty and anxiety surrounding her condition during this time, Sofia remained determined to pursue her passion for hockey, committing herself to intense trials and training for the Ulster Under-13 and Under-16 Hockey Programme.

That dedication has now paid off as she takes to the field to compete at the 2025 Regional Hockey Championships. Her mother, Sophie, said, ‘We as parents are immensely proud of this achievement as it has not been easy for Sofia…Her epilepsy isn't holding her back in any way’.

Sofia is following in the footsteps of other remarkable athletes like rugby star Tommy Freeman and Paralympic judo fighter Evan Molloy—who, despite being diagnosed with epilepsy, have continued to chase their sporting dreams.

Read more about this inspiring young athlete here: https://bit.ly/4kIMEVf