Epilepsy Society

Epilepsy Society We are the UK’s only charity transforming the lives of people with epilepsy through world-leading research, advocacy and care. We are here for you.

People are at the heart of everything that we do; and we hope to see the day when epilepsy is irrelevant. Our vision is a full life for everyone affected by epilepsy. We want everyone affected by epilepsy to have the best opportunity for a full life – as free from seizures as possible. We set out to make a difference to every person affected by epilepsy whatever their background, however seriously it affects them, and whether they have the condition themselves or are close to someone with epilepsy.

💜 As Purple Day approaches, we invite you to remember someone special by leaving a message in our free virtual butterfly...
23/03/2026

💜 As Purple Day approaches, we invite you to remember someone special by leaving a message in our free virtual butterfly garden. Honour their memory and keep their light shining — simply click here to add your message: https://bit.ly/4scEdWJ

23/03/2026

Only three days to go until Purple Day 2026!

As we count down, we’re sharing the experiences of our supporters and advocates through our If I can, You Can campaign.

Today, Borg-Neal, who has been an incredible advocate for the Epilepsy Society, is sharing his story. Last year, Éamonn shared an awareness raising video which showed him experiencing a tonic-clonic seizure at work. The video has had over 90,000 views and has helped give many a deeper understanding of what epilepsy can look like.

In today’s video, Eamonn speaks powerfully about the effects of epilepsy beyond the seizures and what motivated him to share his experiences.

And with one simple step, it can start with yours. By giving a gift to Epilepsy Society, your will could help unlock a b...
23/03/2026

And with one simple step, it can start with yours. By giving a gift to Epilepsy Society, your will could help unlock a breakthrough that means epilepsy no longer defines lives. Now it’s easier than ever.

We’ve partnered with expert estate planners, , to offer you the chance to write or update your will for FREE today. You can do this online, over the phone or in person with a will-writing expert or solicitor.

Claim your free will online today by clicking here: https://bit.ly/4sOIUG9 or call 020 4525 3605 and quote Epilepsy Society to book a phone or in-person appointment.

Congratulations to Lauren Taylor and her partner who recently completed a climb of the O2 to raise £500 for Epilepsy Soc...
22/03/2026

Congratulations to Lauren Taylor and her partner who recently completed a climb of the O2 to raise £500 for Epilepsy Society!

Lauren told us: ‘Epilepsy affects more than half a million people in the UK, yet it’s still surrounded by misunderstanding and stigma… By climbing the O2, I want to show my support, raise awareness, and do my part to help make a difference.'

Thank you, Lauren, for your amazing fundraising! 💜

To find out more and make a donation, click here: https://bit.ly/4llC2xm

Just a quick reminder: on 25th March, Epilepsy Society will be holding parliamentary drop-ins for MPs to meet people wit...
20/03/2026

Just a quick reminder: on 25th March, Epilepsy Society will be holding parliamentary drop-ins for MPs to meet people with epilepsy, to learn seizure first aid, and to show their support ahead of Purple Day (26th March).

We need your help to invite your local MP and tell them why it is important for them to come.
All you need to do is follow the 3 simple steps:

1. Find out who your local MP is by searching ‘Find your MP’
2. Personalise and send our template letter – don’t forget to add your name and post code! https://epilepsysociety.org.uk/news/invite-your-mp-learn-epilepsy-first-aid-purple-day?utm_source=facebook&utm_medium=social&utm_campaign=epilepsysociety&utm_content=purpleday&fbclid=IwY2xjawQqJ-BleHRuA2FlbQIxMABicmlkETB5NkJMVU1XNkU4M3k2Z1ZPc3J0YwZhcHBfaWQPNTE0NzcxNTY5MjI4MDYxAAEeAydQLqdDpN2wsNly8-rwpB8ZyCHqDRysynHXE1C8wGvhPIk0gE7lyHJMhj8_aem_jE1QV_1LkcgLRBMJZnaIXw
3. Share this post and encourage others to invite their MP

We want every MP to know that epilepsy is more than just seizures, and to understand the impact it has on the individual, their family and loved ones, employment, mental and physical health.

Sharing your personal story with your local MP can be very powerful. With your help, we hope to spread awareness of epilepsy to even more MPs this Purple Day.

One week to go until Purple Day 2026!Our campaign this year is If I Can, You Can and is all about sharing real experienc...
19/03/2026

One week to go until Purple Day 2026!

Our campaign this year is If I Can, You Can and is all about sharing real experiences of epilepsy to help others learn about the condition.

To help raise awareness, we’ve created a poster answering 10 of the most commonly asked questions about epilepsy.

Share it on your social media or print it out for your workplace, school or community space. 💜

Looking for last minute Purple Day fundraising ideas? Grab our Purple Day Fundraising Pack here: https://bit.ly/4bSoZjR

Scientists discover new gene linked to drug-resistant epilepsy.The researcher team included Professor Sanjay Sisodiya an...
18/03/2026

Scientists discover new gene linked to drug-resistant epilepsy.

The researcher team included Professor Sanjay Sisodiya and Helena Martins Custodio from the Epilepsy Society’s Chalfont Centre and the Research Department of Epilepsy, UCL. They found that when the FOXJ3 gene does not work properly, brain cells can keep dividing for longer than they should and may not move to their right place in the brain, as they normally would. This can lead to a small part of the brain being disorganised, a change called focal cortical dysplasia.

The study also suggests that increasing PTEN levels may help correct some of the brain development problems caused by FOXJ3 mutations. This research is helping scientists to better understand how the brain develops and to identify a possible genetic cause for some types of epilepsy. It also highlights potential areas for future research that could help improve diagnosis or treatment.

The research, involving scientists from Taiwan, Belgium and the UK, has been supported by the Epilepsy Society and the Amelia Roberts Fund.

Read more at: https://bit.ly/4sJSoCo

Eagled-eyed viewers of EastEnders spotted that Will Mitchell, who is meant to be on an extended holiday with his family,...
17/03/2026

Eagled-eyed viewers of EastEnders spotted that Will Mitchell, who is meant to be on an extended holiday with his family, managed to nip home in February to grab a takeaway from the chicken shop and film Nugget having a tonic clonic seizure: https://bit.ly/4bg7uKj

While we were pleased to advise on the portrayal of epilepsy in the popular soap, we have not been involved in the storyline. But we hope that as fans try to fathom out why Will was back in Walford Square and not sunning himself on the beach, they will also note Denzel’s exemplary response to Nugget’s seizure.

He followed our seizure first aid advice, stayed calm, cushioned his head and made sure he received the right help. He also went to great lengths to preserve Nugget’s dignity when he lost bladder control.

What was Will up to? We don’t know, but we look forward to finding out with everyone else.

If you have any concerns about epilepsy, or have been affected by the storyline do call our Helpline on 0300 102 0024

Photo credits: BBC

💜 As Purple Day approaches, we invite you to remember someone special by leaving a message in our free virtual butterfly...
16/03/2026

💜 As Purple Day approaches, we invite you to remember someone special by leaving a message in our free virtual butterfly garden. Honour their memory and keep their light shining — simply click here to add your message: https://bit.ly/4lbaaMB

And with one simple step, it can start with yours. By giving a gift to Epilepsy Society, your will could help unlock a b...
16/03/2026

And with one simple step, it can start with yours. By giving a gift to Epilepsy Society, your will could help unlock a breakthrough that means epilepsy no longer defines lives. Now it’s easier than ever.

We’ve partnered with expert estate planners, , to offer you the chance to write or update your will for FREE today. You can do this online, over the phone or in person with a will-writing expert or solicitor.

Claim your free will online today by clicking here: https://bit.ly/47yIaN3 or call 020 4525 3605 and quote Epilepsy Society to book a phone or in-person appointment.

Click here for more on our Friends and Family courses, including upcoming course dates and booking information : https:...
16/03/2026

Click here for more on our Friends and Family courses, including upcoming course dates and booking information : https://bit.ly/4rubkEs

Congratulations to Billy Cornish and his friends who recently completed a sponsored fancy dress walk along the Thames.Th...
15/03/2026

Congratulations to Billy Cornish and his friends who recently completed a sponsored fancy dress walk along the Thames.

The group trekked 20km and raised funds by making a collection along the way, making a total of £782!

Two members of the group have an older sister with epilepsy. Billy said: ‘It’s an amazing charity and I hope we’ve been able to contribute!’

Thank you so much Billy and team for your amazing efforts. If you’d like to find out more or make a donation, please click here: https://bit.ly/4urw7ee

Address

Chesham Lane
Chalfont Saint Peter
SL90RJ

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Website

Alerts

Be the first to know and let us send you an email when Epilepsy Society posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to Epilepsy Society:

Shortcuts

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram

Category

Our Story

Our vision is a full life for everyone affected by epilepsy. We want everyone affected by epilepsy to have the best opportunity for a full life – as free from seizures as possible.

We set out to make a difference to every person affected by epilepsy whatever their background, however seriously it affects them, and whether they have the condition themselves or are close to someone with epilepsy.

More than half a million people in the UK have epilepsy and one third have seizures that cannot be controlled through available anti-epileptic drugs. There are 1,000 deaths from the condition every year, including many children and young adults. Epilepsy can have a devastating effect on people and their families, affecting all aspects of their lives.

Epilepsy Society is the UK’s leading provider of epilepsy services. Through our cutting edge research, awareness campaigns, information resources and expert care, we work for everyone affected by epilepsy in the UK.