Epilepsy Society

Epilepsy Society We are the UK’s only charity transforming the lives of people with epilepsy through world-leading research, advocacy and care. We are here for you.

People are at the heart of everything that we do; and we hope to see the day when epilepsy is irrelevant. Our vision is a full life for everyone affected by epilepsy. We want everyone affected by epilepsy to have the best opportunity for a full life – as free from seizures as possible. We set out to make a difference to every person affected by epilepsy whatever their background, however seriously it affects them, and whether they have the condition themselves or are close to someone with epilepsy.

To all those celebrating, have a safe and happy Halloween!
31/10/2025

To all those celebrating, have a safe and happy Halloween!

31/10/2025

If you have noise-triggered epilepsy, or you know someone with noise-triggered epilepsy, please consider the following precautions this Bonfire Night:

• Noise-cancelling headphones or earplugs
• Staying indoors with windows closed
• Letting friends/family know your needs
• Having a seizure plan ready

Your safety matters. Take steps to protect yourself and enjoy the evening your way.

Postage is FREE on all items in our Teemill clothing range until midnight on Sunday 2nd November!Explore our Teemill sto...
31/10/2025

Postage is FREE on all items in our Teemill clothing range until midnight on Sunday 2nd November!

Explore our Teemill store to discover stylish t-shirts and hoodies that make a statement. Every purchase helps support Epilepsy Society—so you can look great while backing a vital cause. 💜

Link here: https://bit.ly/3LBiPde

💜

Change starts with a will.And with one simple step, it can start with yours.By giving a gift to Epilepsy Society, your w...
31/10/2025

Change starts with a will.

And with one simple step, it can start with yours.

By giving a gift to Epilepsy Society, your will could help unlock the breakthrough that means epilepsy no longer defines lives.

Now it’s easier than ever. We’ve partnered with expert estate planners, , to offer you the chance to write or update your will for FREE today. We’re covering the costs of wills up to £150 – so you can write a simple will for free or get a discounted will with trust.

You can do this online, over the phone or in person with a will writing expert or solicitor.

Claim your free will online today Online https://bit.ly/4ogkYJV or call 020 4525 3605 and quote to book a phone or in-person appointment.

31/10/2025
50% OFF REGISTRATION FEE FOR 2026 ULTRA CHALLENGE EVENTS — ENDS 31st OCTOBER!Don’t miss your chance to save and sign up ...
30/10/2025

50% OFF REGISTRATION FEE FOR 2026 ULTRA CHALLENGE EVENTS — ENDS 31st OCTOBER!

Don’t miss your chance to save and sign up for a 2026 Ultra Challenge in support of Epilepsy Society!

Whether you're up for a gentle walk or an ultra-endurance adventure, there’s something for every fitness level — with 18 events across the UK, from 10km to 100km.

• Explore stunning locations like the Lake District and Jurassic Coast
• Choose your distance and pace
• Get expert support from the Ultra Challenges team from day one

💜 Your challenge will help raise life-changing funds for people affected by epilepsy — and now’s the perfect time to commit, start planning, fundraising and training.

Sign up now: https://www.ultrachallenge.com/events-calendar/associate-partner/?utm_source=facebook&utm_medium=social&utm_campaign=epilepsysociety&utm_content=fundraising&fbclid=IwY2xjawNwVxJleHRuA2FlbQIxMABicmlkETFMSnFvTkNuOVU2WmhEcDE4AR6ggY_pWuXkBelIn61KrBKLM_jtnrg-4wvuBCO-7qE0cj6gthX6xOvKqfmDKA_aem_nzJAn7XSX0N4eJbK_l8SwQ

Offer ends 31 October — don’t miss out!

Looking for a challenge – to test yourself, to get in shape, or bond with friends on a weekend adventure? If so, an Ultra Challenge® is for you – and you don’t need to be a budding elite athlete – they’re for everyone, take it on at your pace and fundraise for your favourite charity! Whet...

Join us on Wednesday 12th November for our Epilepsy Awareness, Seizure Management & Emergency Medication training—a 6-ho...
30/10/2025

Join us on Wednesday 12th November for our Epilepsy Awareness, Seizure Management & Emergency Medication training—a 6-hour live online course designed to build confidence and competence in epilepsy care.

This CPD-accredited course covers everything from understanding epilepsy, it's causes and diagnosis to seizure types (including management and first aid), treatments, side effects, support needs, and duty of care.

Delegates will also receive practical guidance on administering emergency medication—including when to use it, how to administer it safely, risk assessments, storage and disposal.

Open to anyone involved in epilepsy care, from clinical staff to family caregivers, looking to improve their knowledge and skills.

For more information and to book, click here: https://bit.ly/3X1Wube

Trigger Warning: Sudden Unexpected Death in Epilepsy (SUDEP). This post discusses SUDEP, which some may find distressing...
30/10/2025

Trigger Warning: Sudden Unexpected Death in Epilepsy (SUDEP). This post discusses SUDEP, which some may find distressing.

“Nobody told me you could suddenly just die.”

Amber Grace Walker was just 22 when she died from SUDEP. Her family had never heard of it.

SUDEP is rare, but it can happen. And too often, people with epilepsy and their families aren’t told about the risks.

In his report on Amber’s death, Dorset coroner Brendan Allen called on the government to ensure that healthcare professionals receive proper training on SUDEP and are encouraged to have open, informed conversations about it with patients.

SUDEP is a research priority for Epilepsy Society. Please make sure you are aware of SUDEP and understand the risks and how to mitigate for them. Learn more here: https://epilepsysociety.org.uk/SUDEP
Need support? Call our Helpline on 0300 102 0024
Amber's story: https://bbc.in/49saZws

Amber Walker died at the age of 22 from Sudden Unexpected Death in Epilepsy

Christmas is coming — have you ordered your cards yet?Our Epilepsy Society Christmas cards are now available. Every pack...
29/10/2025

Christmas is coming — have you ordered your cards yet?

Our Epilepsy Society Christmas cards are now available. Every pack you buy spreads seasonal joy and supports ground-breaking research, vital advocacy, and compassionate care. 💜

Click here to buy: https://bit.ly/4qsYbfv

Next month is Epilepsy Awareness Month, and we want your voice to be part of it.This year’s theme is All in for Epilepsy...
29/10/2025

Next month is Epilepsy Awareness Month, and we want your voice to be part of it.

This year’s theme is All in for Epilepsy Awareness Month, so over the coming days, we’ll be asking simple questions across our social media channels and inviting you, the epilepsy community, to share your experiences.

Throughout November, we’ll feature your answers to help raise awareness and educate others about what living with epilepsy is really like.

Your perspective matters. The more responses we receive, the stronger the message we can share with the world.

Take a moment to share your thoughts and help us spread the word.

By studying brain tissue samples we have been able to establish a potential link between SUDEP and a depression of the c...
28/10/2025

By studying brain tissue samples we have been able to establish a potential link between SUDEP and a depression of the central respiratory system following a seizure, and a link between serotonin pathways and the risk of SUDEP.

Learn more 👉 https://bit.ly/3IrUuWb

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Chesham Lane
Chalfont Saint Peter
SL90RJ

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Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

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Our Story

Our vision is a full life for everyone affected by epilepsy. We want everyone affected by epilepsy to have the best opportunity for a full life – as free from seizures as possible.

We set out to make a difference to every person affected by epilepsy whatever their background, however seriously it affects them, and whether they have the condition themselves or are close to someone with epilepsy.

More than half a million people in the UK have epilepsy and one third have seizures that cannot be controlled through available anti-epileptic drugs. There are 1,000 deaths from the condition every year, including many children and young adults. Epilepsy can have a devastating effect on people and their families, affecting all aspects of their lives.

Epilepsy Society is the UK’s leading provider of epilepsy services. Through our cutting edge research, awareness campaigns, information resources and expert care, we work for everyone affected by epilepsy in the UK.