Sleep-Safe Anti-Suffocation Pillows

11/04/2026

Every person living with epilepsy deserves to understand their risks, feel empowered to manage their condition, and have access to the support they need.

For , share this post to help spread awareness of how to stay safe with epilepsy.

Learn more: https://sudep.org/epilepsy-safety/

06/03/2026

Coming up soon on the 26th March - - the international day of epilepsy awareness - and there are so many great ways to get involved. Currently there are 103,600 children and young people in the UK living with epilepsy, and Young Epilepsy has produced some fantastic resources to get local schools involved. See link in comments below for free fundraising pack and join to help amplify voices, dismantle stigma, and stop the fear of seizures. 💜💜💜💜💜💜💜💜💜💜💜💜💜💜

06/03/2026

08/01/2026

💜 As life gets back to busy again after the Christmas break be kind to yourself and remember it’s okay to take things slow - rest is important! From everyone here at Sleep-Safe we wish you a peaceful, safe and stress-free year ahead. 💜

16/11/2025

Congrats to everyone at HOPE for Epilepsy

A charity offering support for families of children with epilepsy is celebrating after being awarded The King’s Award for Voluntary Service (KAVS) - the highest honour given to voluntary groups in the United Kingdom.

29/10/2025

This month there has been an important case in the Supreme Court on the proposed Liberty Protection Safeguards which aim to deliver improved protection and care to vulnerable people in circumstances that amount to a deprivation of liberty. The Supreme Court's decision is expected early next year.

Government to launch a consultation in 2026 on Liberty Protection Safeguards to improve safeguarding for vulnerable people.

25/09/2025

Epilepsy affects over 600,000 people in the UK. For around a third of these individuals, medication is not effective, leading to drug-resistant epilepsy—a condition that can significantly impair quality of life and increase the risk of premature death. While brain surgery is an option, it is only suitable for a limited number of people and has variable long-term outcomes.

£2.7M for Liverpool-led trial investigating vagus nerve stimulation for drug-resistant epilepsy

14/08/2025

🚨⚠️🚨IMPORTANT NEWS for anyone thinking of switching between different anti-seizure medicines and the risks involved. Link in comments for more information 🚨⚠️🚨

https://www.sps.nhs.uk/articles/switching-brand-and-generic-anti-seizure-medicines-for-epilepsy/

23/07/2025

You’re one in a million! Well, if you’re affected by Angelman Syndrome you’re more like one in twenty thousand – but you’re in good company. Check out Angelman UK to connect with community, and learn more :)
https://www.angelmanuk.org/

Don’t forget we have our printable activity pack which explains all about Angelman syndrome, along with some fun activities for children and families to take part in.

Available on the website - click the link to find out more! Print in colour or B&W.

https://www.angelmanuk.org/wp-content/uploads/2024/01/AngelmanUK-childrens-activity-pack.pdf

20/06/2025

💜 Are you living with epilepsy or supporting someone who is? Join our next Online Support Group.

It’s a chance to:
✔️ Share your experiences
✔️ Ask questions
✔️ Connect with others who understand

Whether you’re newly diagnosed or have lived with epilepsy for years, you’re warmly welcome.

Date: 25 June 2025 Time: 11am – 12noon
To register, email: contact@epilepsyscotland.org.uk

Please share with anyone you think may benefit.

20/06/2025