Epilepsy Consultancy & Training

31/03/2023

There are more than 600,000 people in the UK living with epilepsy, many of whom use drug sodium valproate to control their seizures.

18/03/2023

https://www.epilepsy.org.uk/better-communication-needed-about-epilepsy-medicine-risks-in-pregnancy

More than half of UK women with epilepsy under the age of 24 are not aware of the risks of some epilepsy medicines in pregnancy, a new survey has found.

24/05/2022

18/04/2022

https://www.thetimes.co.uk/article/the-new-thalidomide-d5lmlwvdc?utm_source=twitter&utm_campaign=scandal&utm_medium=branded_social #

The moment her newborn son Sebastian was handed to her, Catherine McNamara knew something was terribly wrong.His tiny hands were deformed, unnaturally twisted a

30/03/2022

Back out to advert!

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04/02/2022

https://youtu.be/Ab1LAzYGjKc

In our first Research Roundtable webinar of 2022, we heard from research experts and people with lived experience on the topic of epilepsy in pregnancy. Over...

10/12/2021

09/11/2021

Morotists could face a fine of up to £1,000 if they fail to disclose an existing medical condition.

28/05/2021

19/05/2021

We’re bringing together two experts on cannabinoids and epilepsy to learn the facts on this contentious but important topic. Journalist Andrew Peaple hosts this special Hot Topic webinar and is joined by Kishan Vyas, Associate Medical Director at GW Pharmaceuticals, and Epilepsy Research UK Presid...

26/03/2021

Today is Purple Day, the international awareness day for Epilepsy.



Poem from ‘All On The Board’ book - https://www.amazon.co.uk/Tfl-Quote-of-the-Day/dp/1473691249

17/02/2021

💉 We are currently receiving a high number of enquiries about whether people with epilepsy are included as part of priority group 6 of the COVID-19 vaccine programme. We are aware that some people have been told by their GP surgery they are in a lower priority group.

We are in regular contact with the Department of Health and Social Care on this issue and can confirm that people with epilepsy are included in priority group 6 of the COVID-19 vaccine roll-out.

As part of these conversations we are calling for better communication to GPs and more clarity to make sure that everyone is aware of the above and that people with epilepsy receive their vaccine.

There are a number of official resources that clearly state people with epilepsy are included in priority group 6:

📗 The Green Book – the green book is published by Public Health England and has the latest information on vaccines and vaccination procedures in the UK. Chapter 14a, page 10, table 3 notes that adults aged 16-65 with with chronic neurological conditions including epilepsy are in priority group 6 for the vaccine.

👨‍👨‍👧‍👧 Joint Committee on Vaccines and Immunisation (JCVI): advice on priority groups for COVID-19 vaccination – the JCVI are the group who developed the advice around which groups should be prioritised for the vaccine. Their advice clearly states that people with “chronic neurological disease including epilepsy” should be prioritised for the vaccine as part of priority group 6.

If you have been told by your GP that you are not in group 6, you may wish to refer them to these documents. It is important to note that people should be contacted directly to arrange a vaccination appointment, you don’t need to contact your GP unless you are advised to. Given the number of people eligible for the vaccine in priority group 5 (over 65s) and priority group 6 (16–64-year-olds with specific underlying health conditions, including epilepsy), it is likely to take some time to contact everyone.

Epilepsy Action will continue to push for better communication and more clarity around the COVID-19 vaccine for people with epilepsy. More information about COVID-19 and epilepsy is available on our dedicated COVID-19 advice and information webpage. We will continue to keep this information under review and let people know about any new developments.

16/02/2021

https://epilepsysociety.org.uk/latest/news/priority-group-6-covid-19

Please read our update from the DHSC, reassuring people with epilepsy that they are included in priority group 6 for the Covid-19 vaccine.

08/02/2021

Today is International Epilepsy Day. Sending love and support to everybody in the world with this condition.



Poem from All On The Board book available to buy at Amazon - http://amazon.co.uk/dp/1473691249/

Also available at all good book shops.

02/02/2021

18/01/2021

We need you! Do you have epilepsy & want to help shape & champion an exciting new project into epilepsy risk communication?
We are looking for 5 people with epilepsy (18 years+) to join the project looking at the importance of effective risk communication for those with to be part of our expert group of people with day to day experience of living with the condition.
More details about the project and how to apply can be found here: https://sudep.org/nihr-research-involvement-opportunity-people-epilepsy

09/01/2021

A new review has been published looking at risks associated with the most commonly prescribed anti-epileptic medications during pregnancy.

28/11/2020

Two doctors from Cleveland Clinic explain the link between seizures and the novel coronavirus.