Amazing Grace Davenport

Amazing Grace Davenport I have NAA10 - Ogden syndrome this means I have many complex needs, I am very rare 1 in 200 in the world.

Well what a day we have had two visits to hospitals, first to Macclesfield hospital to replace Graces peg, due to it com...
07/05/2026

Well what a day we have had two visits to hospitals, first to Macclesfield hospital to replace Graces peg, due to it coming out,

Followed by a visit to the heart specialist at Manchester children’s hospital, but then fireman Sam had to turn up due to a fire alarm at the hospital

What an eventful day xx but grace still has a smile, Grace still has issues with her heart but she has the best support ever ###x thanks everyone for your love xx

19/04/2026

Love to you all thank you for your support.
X######

19/04/2026
Amazing grace always has a smile no matter what is going on health wise she truly is an inspiration ###x at times I stru...
01/04/2026

Amazing grace always has a smile no matter what is going on health wise she truly is an inspiration ###x at times I struggle and I need to admit it but just look at her beautiful face xx such strength love and kindness xx

Been a very busy weekend, my family have been and sited our caravan, mummy said last year about a full awning, which we ...
17/03/2026

Been a very busy weekend, my family have been and sited our caravan, mummy said last year about a full awning, which we went to the caravan show and got one, now have a big safe place to be when I am at my caravan!!

15/03/2026

Happy Mother’s Day xx

Massive thank you to Kevin from Harvey board for printing the decals and installing on daddy’s van, this helps people to...
02/03/2026

Massive thank you to Kevin from Harvey board for printing the decals and installing on daddy’s van, this helps people to find out about me with my rare disease which is a life limiting condition.

Well Mummy and Daddy have been busy after my last surgery looking after me, they had said I am a super star, I had 18 te...
25/02/2026

Well Mummy and Daddy have been busy after my last surgery looking after me, they had said I am a super star, I had 18 teeth removed after I ground them all down, we hope the next set will be good and I hope I don’t grind my teeth later on, everyone said I recovered very well and fast after my surgery, big thank you to everyone that helped my mummy and daddy and George, my dog has had a great grooming from jk mobile dog grooming he no looks like a puppy with a loud bark,

I am loving been at my school and all the work they are doing with me at Springfields school Crewe

Please pray for our amazing grace, she is having surgery in the morning, we will keep you all updated xx due to Graces l...
11/02/2026

Please pray for our amazing grace, she is having surgery in the morning, we will keep you all updated xx due to Graces long QT she has to be in the night before, then after surgery she will be in intensive care ###xx

Grace would like to thank Paul lomas from P L Training, Paul has given his time to help my family and friends out with w...
04/02/2026

Grace would like to thank Paul lomas from P L Training, Paul has given his time to help my family and friends out with what to look out for when i need help.

Thank you to Paul and the cricket club for accommodating my family

Grace had her hearing test yesterday, unfortunately some tests can not be done, because Grace has involuntary movements ...
23/01/2026

Grace had her hearing test yesterday, unfortunately some tests can not be done, because Grace has involuntary movements so it’s a little difficult, also Grace has had her button fitted by the lovely nurses on the children ward, Grace loves mummy’s hair ”ouch” but look at that smile cheeky cheeky ###x

Address

Congleton

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