27/03/2026
Sharing this post as it struck a chord after REACH co-hosted the recent NeuroClub pilot scheme with Torfaen Talks CIC. This poster and description encapsulates exactly the reflections of all the parent carers who attended. It is so important not to feel alone - for your own mental health. And be sure to fill in the post event questionnaires forwarded to to by Torfaen Talks CIC to make sure that YOUR VOICE shapes the GWENT wide neurodiverse provision of the future. Be part of the Regional Partnership Board consultation. Change always starts with small actions - let your voice be that catalyst.
If you want more info on the questionnaires, dm Torfaen Talks CIC
š No one talks about what this does to the parentā¦
Heavy Armour
This journey wears parents down. Not all at once, just⦠slowly.
Forms, emails, waiting, chasing. Fighting for children while losing parts of ourselves along the way.
Months pass. Sometimes years. And still ā families are waiting, still chasing, still stuck.
The system doesnāt really see the parent. They become a role ā the advocate, the organiser, the one holding everything together. And somewhere in all of that, who they were before starts to fade.
Careers shift or disappear. Identities change. Life narrows into managing needs, appointments, paperwork, and survival.
And there is no pause button.
Reports are read. Forms are completed. Systems are learned. Everything thatās asked is done ā and still, help isnāt guaranteed.
Parents carry their childās needs, their own struggles, and a constant underlying exhaustion. The parts people donāt see. The parts the system doesnāt measure.
And all the while⦠the system saves money.
But at what cost?
Because behind every delay, thereās a child waiting. And a parent doing everything they can not to fall apart.
Still, they keep going. Even when theyāre exhausted. Even when they feel invisible.
Because they have to believe there will be a day when the weight lifts. When children are seen for who they are ā not just what they need.
Until then, parents keep showing up. They keep fighting.
š¬ If this feels familiar, youāre not alone.