01/12/2025
If you haven't already signed up and want to be a part of the Action for ME - Big Survey, see the post below
Our first Big Survey in over 5 years launches next week! You can sign up in advance to receive the survey once it's live, head to our web page to find out more: www.actionforme.org.uk/research-campaigns/our-research-work/big-survey/
Some key information 👇
📅Opens 10am, Monday 13th October - 27th January 2026
✅You don't need a formal diagnosis: if you're in the UK and live with ME or Long Covid with ME-like symptoms, you’ll be able to take part
✅All questions are optional, and you can pause and resume later
✅The survey was designed in partnership with people with lived experience of ME and Long Covid and it’s being produced in collaboration with Durham University’s Institute for Medical Humanities.
✅Support filling out the survey will be available for those who need it
✅Data collected will be used to shape our service development, advocacy priorities and research.
Our last Big Survey was completed by over 4,000 children, young people, and adults, in 2019. This year we're focusing on the impact of living with ME - we'll be sharing more once it's live!
# MyalgicEncephalomyelitis