NRS Neuroprogressive and Dementia Network

26/02/2026

Do you or someone you know live with Parkinson's? Learn the signs, understand the symptoms, and find out how you can take part in research. Scan the QR code in the slides to get involved.

13/02/2026

This week, the first participant was recruited for the ASPro-PD clinical trial at NHS Lothian, the only site in Scotland recruiting for this Phase III study investigating whether ambroxol may help slow the progression of Parkinson’s disease.
Find out more about the study here: https://www.ucl.ac.uk/comprehensive-clinical-trials-unit/research-projects/2025/mar/aspro-pd

12/02/2026

❓Are you living with dementia, or do you support someone who is?

Your experiences can help shape future research. Help increase understanding of what makes it easier or more challenging to get involved in research-related activities by completing this short questionnaire, which takes around 10–15 minutes.

👉 Find out more and take part at: https://edinburgh.eu.qualtrics.com/jfe/form/SV_2959Tcw91fmkjrg

✉️ If you have any questions, please get in touch at: tay.ppipartners@nhs.scot

03/02/2026

📰 We are pleased to share the latest Partners in Research Newsletter!

This issue features two new research requests where your feedback can make a real impact. You’ll also find an overview of recent activities and upcoming events - plus, we’re introducing our new administrator, Gillian! 👋

Have questions or want more information on anything included in this newsletter? Contact us at: tay.ppipartners@nhs.scot

-research

22/01/2026

If you're are a part of the care home community or are interested in care home research check out this podcast by our colleagues over at Enrich Scotland

The quote below comes from Episode 2 of the RICH Voices podcast, featuring Education and Dementia Coordinator, Cheryl Henderson, care home managers Kirsty Cartin and Shona MacDonald, and ENRICH Scotland's Clinical Studies Officer, Diane Frew. Together, they explore care home research, how teams support studies on the ground, and why involvement matters.

Listen on Spotify, Apple, Amazon and other major platforms: https://tinyurl.com/hb8rm29t

Cheryl Henderson, Education & Dementia Coordinator, highlights the vital role research plays in informing best practice. By engaging in research, care homes - and the expertise of their staff - can help shape and strengthen the future of care.

🎧 If you haven’t already, tune in to Episode 2 of the RICH Voices podcast, where we speak with Cheryl, care home managers Kirsty Cartin and Shona MacDonald, and Clinical Studies Officer at ENRICH Scotland, Diane Frew. Together, they explore care home research, how teams support studies on the ground, and why involvement matters.

Listen now on Spotify, Apple, Amazon and other major platforms: https://tinyurl.com/hb8rm29t

21/01/2026

💙 NDN National Meeting-19 January 2026 💙
Our team came together at Edinburgh Zoo to connect, collaborate, and plan for the year ahead.
A big thank you to everyone who joined us — your support drives our research forward!

01/01/2026

✨ A New Year, New Opportunities for Research ✨
A new year brings new opportunities to collaborate, innovate, and make a difference in neuroprogressive and dementia research.

Here’s to progress, partnerships, and hope for the future. 💙

23/12/2025

As we approach the festive season, the Neuroprogressive & Dementia Network would like to thank everyone who has supported our work throughout the year — participants, families, colleagues, and partners across Scotland.
Your involvement helps drive research forward and improve care for people living with neuroprogressive conditions.
Wishing you a peaceful and restful festive season 🎄⛄

19/12/2025

❓Are you living with dementia, or do you support someone who is?
Your experiences can help shape future research. Help increase understanding of what makes it easier or more challenging to get involved in research-related activities by completing this short questionnaire, which takes around 10–15 minutes.

👉 Find out more and take part at: https://edinburgh.eu.qualtrics.com/jfe/form/SV_2959Tcw91fmkjrg?Q_CHL=qr

✉️ If you have any questions, please get in touch at: tay.ppipartners@nhs.scot

16/12/2025

CTAD 2025: Advancing Alzheimer's Research

On 29th November, Jacqui Kerr, NDN Network Manager, and Catriona McNeill, NDN Lead Nurse, represented the Neuroprogressive & Dementia Network at the Clinical Trials in Alzheimer's Disease (CTAD) 2025 conference in San Diego.

The conference brought together researchers, clinicians, and individuals with lived experience to discuss the latest advances in Alzheimer's disease research, including:
• Blood-based biomarkers to enable earlier diagnosis and support precision medicine
• Emerging therapies, including anti-amyloid treatments
• Diversity and inclusion in clinical trials, ensuring research reaches all communities

A key takeaway from the conference was the invaluable contribution of research participants worldwide. Their dedication allows researchers to develop new treatments, improve care, and better understand Alzheimer's disease.

To learn more about our work or how to participate in clinical research, please visit:
https://www.nhsresearchscotland.org.uk/research-areas/dementia-and-neurodegenerative-disease