NRS Neuroprogressive and Dementia Network

07/10/2025

We are here at the Conference in Bologna. Looking forward to a great few days of fantastic presentations and networking opportunities.

Our Network Manager Jacqui is showcasing her poster today on 'Confident Conversations - facilitating confident conversations about dementia research'. Come along and see her at POS 08-12

07/10/2025

🆕 We are looking for people with Multiple System Atrophy to help us with a new study
🌏 Do you live in or around the Glasgow area or are willing to travel to Glasgow?
☑️ Are you aged 40 to 75 years of age
☑️ Have you been diagnosed with MSA and it has been less than 5 years since the onset of MSA symptoms related to abnormal body movement
☑️ Do you have a reliable caregiver who will be available throughout the trial when caregiver input is needed (approximately every 4 weeks)
If yes, please give us a call on 0141 451 8945 to discuss further

06/10/2025

🆕 New study alert
🎉 We have another new study for Parkinson's disease opening up in
❓Are you aged between 35 and 75 years old ?
❓ Would you like to take part in ?
🔴 The purpose of this trial is to investigate whether a drug called ambroxol can slow down the progression of Parkinson’s disease and whether it is safe to use over a prolonged period of time
🔗 Get in touch for more information by emailing loth.sdcrn@nhs.scot

03/10/2025

🆕 New study alert
🌏 We have a new 's study opening in
☑️ This study is looking at the effects of drug NEU-411 to see if it will slow down the progression of Parkinson's disease by reducing LRRK2 activity.
🔴 We are looking for people between 40-80 years old who are not currently on dopamine replacement therapies such as levodopa
🔗 If you would like more information, please get in touch by emailing tay.ndntayside@nhs.scot

02/10/2025

💖Hear Partners in Research member, Winnie, share why research is important to her:

“We are an ageing population in this country and we want to be able to live well, well into our 80s and 90s, and to do that we need a lot of research into neurodiversive illnesses”

We love working with Winnie and all of Partners in Research. Their contributions have truly made - and continue to make - crucial contributions to both research and awareness of dementia🙏
https://youtube.com/shorts/_4t6Bm-dlGw?si=qV0oulLoja04mJXJ

Our Partner in Research Winnie talks about why it is so important for research into neuroprogressive disease areas to be funded

01/10/2025

☑️ Would you like to take part in research?
☑️ Do you have 's disease dementia or ?
☑️ Are you over 55 years of age

We have a clinical trial running in and called COBALT
📃 The trial will look at the use of a drug called Memantine as a treatment for people with Dementia with Lewy Bodies (DLB) and Parkinson’s Disease Dementia (PDD) symptoms

🔗 If you would like to find out more, sign up to our Permission to contact research register ➡️ https://bit.ly/4fz3yng

30/09/2025

Day 30 of

Last day of our World Alzheimer Month posts

❓ Do you know who we are?
🔴 We are the NHS clinical trials team for
🌏 We have 4 main sites in Scotland where we carry out for dementia, parkinson's disease, huntington's disease and motor neurone disease
🎉 We have a number of new clinical trials coming soon for
🔗 Sign up to our Permission to contact research register to find out more ➡️ https://bit.ly/4fz3yng

29/09/2025

Day 29 of

💜 We have loved showcasing our work for world Alzheimer's month
☑️ Today we want to showcase why you should take part in if you have or
👍 We have a number of new starting soon for Alzheimers so we would encourage everyone to sign up to our Permission to contact register for more information
🔗 https://bit.ly/4fz3yng

26/09/2025

Day 26 of

📖 At the Neuroprogressive & Dementia Network, we not only deliver clinical trials, we also help people to feel more confident about talking about
🔴 We believe the best people to talk to people living with and other neuroprogressive diseases are the practictioners working with them and their families
🧠 In conjunction with we deliver workshops on 'Confident Conversations about research' giving tools & tips on how to talk about research
🟣 There is no expectation for anyone to become an 'expert' on research or know what are taking place - however, you will know where to find the information or signpost people to
🔗 If you would like more information, please contact us on tay.ndntayside@nhs.scot

25/09/2025

Breakthrough Gene Therapy Offers New Hope for Huntington’s Disease

We are thrilled to share news of a major medical breakthrough in the treatment of Huntington’s disease. A new one-time gene therapy, AMT-130, has shown remarkable results in clinical trials, slowing disease progression by up to 75% over three years. This is the first treatment proven to modify the course of Huntington’s, offering real hope to patients and families affected by this devastating condition.
The therapy works by silencing the faulty gene responsible for producing toxic proteins in the brain. Delivered via a single, carefully guided brain surgery, the treatment has allowed some patients to regain mobility, return to work, and experience a significantly improved quality of life.
At the Neuroprogressive and Dementia Network, we’re proud to support research that transforms lives. This is a huge step forward in neurodegenerative disease research and a powerful reminder of the importance of continued investment in clinical trials and genetic medicine.
A huge step forward—and real hope for families affected.

One of the most devastating diseases finally has a treatment that can slow its progression and transform lives, tearful doctors tell BBC.

25/09/2025

Day 25 of

❓Are you interested in patient and public involvement and but unsure if you meet the criteria?

🚫No special skills or previous research experience required! Your unique lived experience makes you an expert, bringing invaluable insights and knowledge to the table. Plus, we'll provide all the support you need!

🎬 Discover how your perspective enhances research by watching our animation! If you'd like to get involved or find out more, contact: tay.ppipartners@nhs.scot

https://www.youtube.com/watch?v=FcjpseC5Bhg

Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

24/09/2025

Day 24 of

🙏 Thank you to for inviting us to have a stand at their conference. We had a great day talking to so many people interested in and
🧠 We have lots of upcoming trials for people living with and also Mild Cognitive Impairment.
💻 We would like to encourage people to sign up to our 'permission to be contacted' about research register.
📝 This allows us to access your medical records and pre-screen your suitability so we don't waste your time or build up any hopes of being able to take part
🔗

Patient Signup Form | NHS Research Scotland | NHS Research Scotland