NRS Neuroprogressive and Dementia Network

21/08/2025

Some helpful suggestions for communicating sensitively with some one who has

21/08/2025

Are you or a loved affected by or ? Your unique insights are incredibly valuable to . By sharing your experiences, you can directly guide and shape research.

🤝Our Partners in Research with researchers to fine-tune their studies so that they better align with what matters to and families. This approach enhances research making its outcomes more relevant and impactful.

Watch this animation to find out more about this approach and how you can play a vital role in guiding research.

https://www.youtube.com/watch?v=kCoHErAJBpA

20/08/2025

We are running this trial in NHS Lothian and NHS Greater Glasgow and Clyde - Get in touch or sign up to our Pemission to be contacted about research register: https://bit.ly/4fz3yng

COBALT TRIAL - Can you help?

Trial of a combination of 2 drugs as a Lewy body dementia treatment

Researchers across the UK are investigating whether a combination of two drugs, an acetylcholinesterase inhibitor, for example, Donepezil (also called Aricept) and memantine, can be used to treat dementia with Lewy Bodies and Parkinson’s dementia.

There is evidence about memantine for people living with Alzheimer’s, but answers are needed about whether memantine is an effective treatment in LBD.

Who can take part?
300 people with DLB (dementia with Lewy bodies) or Parkinson’s dementia:
● who are aged over 55
● who have been taking an acetylcholinesterase inhibitor medication such as Donepezil or Rivastigmine for at least 12 weeks

All participants will be asked to take part with a trial partner, such as a family member or carer.

What is involved?
● You will be asked to take either the study drugs or a placebo drug for 52 weeks
● You will take part in 3 in-person visits at your local research hospital or at home
- These visits will involve blood tests, surveys and physical assessments
- Each visit will last around 2 hours
- Travel expenses will be reimbursed
● You will also take part in 5 telephone consultations. These calls should last between 10 and 20 minutes

Interested in taking part?
You can self-refer or be referred by a family member or carer or by a clinician. A researcher will then contact you to see if you are eligible to join the study.

There are nearly 30 study sites spread throughout the UK. To find out more about taking part or locate a team near you, please contact the COBALT trial team by email at Cobalt.study@ncl.ac.uk or visit https://research.ncl.ac.uk/cobalttrial/participants/informationforpeopleinterestedintakingpart/

The deadline for taking part in this research is 31 May, 2026

20/08/2025

❓❓The Neuroprogressive & Dementia Network - what on earth does that mean?

✅ It means we are the NHS clinical trials team in Scotland focusing on disease areas such as #
🟪 We have lots of current in these disease areas around Scotland - our 4 main centres are Dundee, Edinburgh, Aberdeen and Glasgow
👉 We have our own research register whereby people in Scotland can join to be given the OPPORTUNITY to take part in research

🟦 If you would be interested in finding out more sign up today
🔗 https://bit.ly/4fz3yng

18/08/2025

🏃‍♂️ Closes this Thursday so be quick🏃‍♂️

Come and work in our amazing NDN team 🥳

This post is an exciting opportunity to be able to contribute to the LRRK2 Investigative Therapeutics Exchange (LITE) study, a global initiative funded by the Michael J. Fox Foundation and led locally by Dr Esther Sammler at the University of Dundee. The LITE trial aims to deepen our understanding of the LRRK2 gene and its role in Parkinson’s disease, with the ultimate goal of identifying new therapeutic targets.

For an informal chat please call Justine or Tiffany on 01382 423086

https://apply.jobs.scot.nhs.uk/Job/JobDetail?JobId=223906
Closing date = 21st August 2025

14/08/2025

❓ Are you interested in getting involved in but don't want to join a clinical trial?
🟣 Become a 'partner in research' and help shape future research along side others with
🟡 We also have groups involved in co-research for and
👍 If you want to find out more information have a look at our website
🔗 https://bit.ly/4jbvm3k

13/08/2025

💙 Clinical Trials sound scary but not all research has to involve needles
🟡 Our studies take lots of different forms
🌏 We have 4 main sites in Scotland - Dundee, Aberdeen, Edinburgh & Glasgow
🔴 Sign up to our Permission to be contacted about research to find out more
🔗 https://bit.ly/3O6v6V2

12/08/2025

❓ Do you have ?
💙 Did you know we have a number of clinical trials taking place across Scotland?
🌏 We have 4 main sites in Scotland - Dundee, Aberdeen, Edinburgh & Glasgow
💻 Have a look at our website to find out more details
🔗 https://bit.ly/3O6v6V2

11/08/2025

❓ Why should people get involved in ?
💙 Catriona, Senior Clinical Studies Officer, from NHS Greater Glasgow and Clyde tells why
🟣 If you have , sign up to find out more about our
🔗 https://bit.ly/4fz3yng

08/08/2025

Come and work in our amazing NDN team 🥳

This post is an exciting opportunity to be able to contribute to the LRRK2 Investigative Therapeutics Exchange (LITE) study, a global initiative funded by the Michael J. Fox Foundation and led locally by Dr Esther Sammler at the University of Dundee. The LITE trial aims to deepen our understanding of the LRRK2 gene and its role in Parkinson’s disease, with the ultimate goal of identifying new therapeutic targets.

For an informal chat please call Justine or Tiffany on 01382 423086

https://apply.jobs.scot.nhs.uk/Job/JobDetail?JobId=223906
Closing date = 21st August 2025

NHS Scotland is committed to encouraging equality and diversity among our workforce and eliminating unlawful discrimination. The aim is for our workforce to be truly representative and for each employee to feel respected and able to give their best. To this end, NHS Scotland welcomes applications fr...

06/08/2025

Why should you get involved in Research?

If you have there are lots of reasons why you could get involved 👇👇

To sign up to our 'Permission to contact' research register
🔗 https://bit.ly/4fz3yng