11/06/2024
Hello there, my name is Isaac, also known as Isabella or Ike. I grew up in the South Welsh Valleys.
Throughout my life, l've been affected by autism, anxiety, and depression. Recently, I started experiencing what are considered functional strokes.
I've had almost around 7-8 eight of these strokes.
After my seventh or eighth stroke, my doctors diagnosed me with Functional Neurological Disorder (FND), previously known as Conversion Disorder.
Most people with FND reject the old name as it contradicts modern scientific studies.
My disorder mimics conditions like Multiple Sclerosis and Parkinson's, causing symptoms such as but not limited to:
- Limb weakness
- Seizures/blackouts
- Walking difficulties
- Spasms/twitching
- Cognition impairments (some days I can't even count to 10)
- Sensory/cognitive issues
- Speech difficulties
- Vision and auditory problems
- Loss of balance
- Tremors (Parkinsonism)
- Amnesia
- Paralysis
- Periodical Dystonia
Living with FND is incredibly challenging, especially since already struggled to afford basic necessities. My condition has worsened over time, significantly impacting my life. I even lost my job because of this illness.
The cognitive effects FND has had on me has created low moods and a brain fog so disabling that I sometimes can't even find my own way home. Soon, there will be a lot of hope. I'm praying on it.
Currently, I cannot move the lower half of my body unless am using my full mental focus on it. The moment I get distracted, I can just drop; l've coined it * "Schrödingers Legs" ~ (I pulled that name out my a*s, sounds about right, though).
Yesterday, I broke my walking aid after a fall. Both of my legs are now useless majority of the time considering my doctor worries about me with my 10+ falls and 1+ seizure per day. It seems to link back to physical brain trauma - not mental trauma - but it responds to stress heavily.
Maybe my mobility will return fully someday; I have even prayed on it (for those who know me, that's new), but my condition is unpredictable and frightening. I'm in urgent need of accessibility items and walking aids.
That's why I put together this GoFundMe - so that I have the resources I need while working on a long-term solution. If you cannot donate to my GoFundMe, I would be incredibly grateful if you looked at it to further educate yourself or share it to raise awareness.
God bless you. Thank you, Isaac (Isabella/Ike)
And if it weren't for my communities and most family, I'd have given up and out by now! I appreciate all of you.
Hello there, my name is Isaac, also known as Isabella or Ike. I grew up … Isaac Long needs your support for Help Ike with FND get medical aids and gen support
