CLDF Families Team

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CLDF Families Team

Supporting families with children who have liver disease

24/07/2025

On International Self Care Day, a reminder that you're better placed to care for others when you look after yourself. Caring for a child with liver disease isn't easy. We're here for you https://ow.ly/orl150Wn1ya

21/07/2025

Albie loves tennis, football and athletics and is hoping to scoop medals for them all at the British Transplant Games! More here https://ow.ly/6eF850Wn9kA

19/07/2025

Do you have a star in the family? Whether it's at school, sport, a hobby or just being particularly brave, it's time to shout about those achievements of the past year. Please send details of your superstar to mairead.ritchie@childliverdisease.org.😊

14/07/2025

She may only be six, but Isabella is heading to the British Transplant Games for the third year in a row! Here's why https://ow.ly/Fes950Wn7Jo

13/07/2025

If you're taking a child with a liver condition on holiday in the next few weeks, remember to consult our checklist here https://ow.ly/xckH50WlKYh before you set off.

12/07/2025

For many young people, having a scar is part of having a liver condition and we're very grateful to everyone who shared their honest feelings about their scar in our blog here https://ow.ly/ezsS50WmglP where we also have some advice for parents.

11/07/2025

We know that mental health is an integral part of living well with a rare condition, but as the latest report from SpecialisedHealthcareAlliance reveals, it remains a critical unmet need for those living with rare conditions and their families. More here https://ow.ly/i5xG50WmZFc

10/07/2025

It's that time of year again! After the stress of GCSEs, it's great to hear that our young people are enjoying their Proms. More here https://ow.ly/4Mx150Wmf3F

09/07/2025

Do you have a childhood liver disease or do you care for someone who does? If so would you give us just 10 minutes of your time? By taking part in our survey here https://ow.ly/MCyY50WlJlJ you'll be playing a vital role in helping us to shape our future services and making a difference to those who need it.

08/07/2025

Would you like the opportunity to raise much-needed funds while taking in some of London's iconic landmarks? We have places in the London Landmarks Half Marathon on April 12 next year. Register your interest here https://ow.ly/3KsA50WmrEj

07/07/2025

Alagille syndrome is a rare, genetic condition which can affect different parts of the body including the liver. More information about the effects of Alagilles and how it is treated is in our leaflet which you can download here https://ow.ly/OyRC50WlzX5

06/07/2025

A diagnosis of liver disease meant some major adjustments for Mirri. Two years on, she shares her coping strategies and tells why she's all for being up front about her liver condition https://ow.ly/EyGc50Wj9vl

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Edgbaston

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https://www.childliverdisease.org/form.aspx?ID=235

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