30/04/2026
Data Conversations is a public engagement project exploring what health data means to people, through dialogue across generations.
It was co-designed by SCONe researchers together with the SCONe Patient and Public Involvement (PPI) Group, comprising six members aged 50+ with lived experience of eye disease and one 17-year-old participant.
The term ‘data’ covers a wide range of information, which can make it challenging for the public to engage in discussions about data research. The project team worked with members of the public to break down complex ideas into tangible examples. They explored the implications of using – or not using – health data in research about disease prevention, care and early detection.
Data Conversations was funded by Research Data Scotland.
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