Anayas chemo journey

Anayas chemo journey Anaya suffers from a condition called neurofibromatosis noonan syndrome

As you guys are aware Anaya suffers from NF1. One issue sheโ€™s always had is her mobility. Today she finally got her spli...
30/07/2025

As you guys are aware Anaya suffers from NF1. One issue sheโ€™s always had is her mobility. Today she finally got her splints that will help straighten her feet when walking in shoes. Another little victory in her life ๐ŸŽ‰๐ŸŽ‰๐ŸŽ‰ she takes everything in her stride, never complains and is always happy!

Photo dump of Anayas latest! Disneyland Paris from make a wish and we finally got away in our touring caravan the other ...
21/07/2025

Photo dump of Anayas latest! Disneyland Paris from make a wish and we finally got away in our touring caravan the other week!

Sorry weโ€™ve been so quiet. As people closest to us know we have another situation we are going through thatโ€™s not shared via social media. Life is crazy just now and itโ€™s hard to catch a breath at times!

Anaya has another MRI in September to see how these tumours are behaving! Like always we will update you all on the results!

๐Ÿ’œ๐Ÿฉท๐Ÿ’œ

Look who came all the way from Disneyland Paris to see Anaya before her wish comes true!!!Anaya was absolutely buzzing, ...
02/06/2025

Look who came all the way from Disneyland Paris to see Anaya before her wish comes true!!!

Anaya was absolutely buzzing, seeing her this excited is the best feeling ever!

As a family we cannot wait to share with you all her time at Disneyland Paris! This page has shared a lot of sad times but itโ€™s great to be able to share such a magical time in Anayas life!

Pictures to follow in the coming days ๐Ÿฉท๐Ÿ’œ๐Ÿฉท

02/06/2025
Look what came through the door today for Anaya ๐Ÿ˜๐Ÿ˜๐Ÿ˜ sheโ€™s absolutely buzzing! 18 days to go until Disney ๐Ÿฉท๐Ÿ’œ๐Ÿฉท
17/05/2025

Look what came through the door today for Anaya ๐Ÿ˜๐Ÿ˜๐Ÿ˜ sheโ€™s absolutely buzzing! 18 days to go until Disney ๐Ÿฉท๐Ÿ’œ๐Ÿฉท

Something exciting is happening in June! Anayaโ€™s wish is finally coming true! She cannot wait ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ
30/04/2025

Something exciting is happening in June! Anayaโ€™s wish is finally coming true! She cannot wait ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ

04/03/2025

Amazing news today! Anayas MRI scans have came back and the tumours are all stable and behaving ๐Ÿ˜๐Ÿ˜๐Ÿ˜

Only a slight increase in one but nothing of concern to her oncology team!

We are so relieved although we knew it would be good news because of how much she is coming on! Another MRI in 6 months but I am sure the results will be the same as todays ๐Ÿซถ๐Ÿซถ๐Ÿซถ

25/02/2025

Currently sitting waiting for Anayas MRI to see how her brain tumours are behaving. We feel positive about it thoโ€ฆ. Sheโ€™s coming on leaps and bounds and is thriving!

Will keep you all updated ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ

Anaya had a fantastic day having a Christmas meal with members of tumour support Scotland! She also got to meet Santa wh...
01/12/2024

Anaya had a fantastic day having a Christmas meal with members of tumour support Scotland! She also got to meet Santa which she loved ๐Ÿ˜๐Ÿ˜๐Ÿ˜

Anaya is doing amazing just now. Next mri is in January so ๐Ÿคž๐Ÿคž๐Ÿคž itโ€™s all good. Again will keep you all updated.

Although this page was firstly made up to inform our friends and family about Anayas treatment instead of messaging lots of people the same stuff, we want to continue it as her journey with NF is not over, it never will be. There will be ups, there will be downs and we want to document it all. Education is key. We want to spread the word about neurofibromasโ€ฆ it really is more common than you think. Yet nobody has really heard of it.

Thanks again everyone ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ

11/11/2024

Been meaning to put this video up for a while but life has been upside down recently. Donโ€™t worry Anaya is fit and well but battling another issue just now.

Thank you so so much Shirley and Aaron for Anayas wonderful gift ๐Ÿ˜๐Ÿ˜๐Ÿ˜ Sheโ€™s absolutely over the moon with it! Anyone whoโ€™s been through oncology with their child will understand how close other parents become with each other over their childrenโ€™s journeys. Itโ€™s such a scary time and having others going through similar as support really helps you get through the difficult times!

Thank you ever so much guys! As you can see Anayas hair is a riot! Loving the curls ๐Ÿคฉ๐Ÿคฉ๐Ÿคฉ

๐Ÿ’ซ๐Ÿ’ซ๐Ÿ’ซAmazing news๐Ÿ’ซ๐Ÿ’ซ๐Ÿ’ซLast week Anaya had an mri to check on her tumours and today we got the results! No new growth and no ...
10/09/2024

๐Ÿ’ซ๐Ÿ’ซ๐Ÿ’ซAmazing news๐Ÿ’ซ๐Ÿ’ซ๐Ÿ’ซ

Last week Anaya had an mri to check on her tumours and today we got the results! No new growth and no changes to the 3 brain tumours she has! Another mri in 6 months but so far her tumours have been behaving for a year!

Look what came in the post for Anaya today ๐Ÿ˜๐Ÿ˜๐Ÿ˜ she is buzzing!!!
31/08/2024

Look what came in the post for Anaya today ๐Ÿ˜๐Ÿ˜๐Ÿ˜ she is buzzing!!!

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