PBC Foundation

07/01/2026

** Cancelled Community Café **

Community Café update: the in-person Sussex Community Café meeting due to take place tomorrow, Thursday 08 January, has been cancelled due to the weather.

Keep an eye on this page for information about upcoming meetings.

07/01/2026

We are excited to announce that, in collaboration with Umecrine Cognition, a new survey is now available in the PBC Foundation app: Fatigue in PBC.

Here’s what Rebecca West, Head of Research & Education at the PBC Foundation, says about the survey:
"Patients living with PBC have a powerful voice. By taking part in research studies and patient surveys, you help scientists and clinicians better understand the disease, develop improved treatments, and shape care around real patient needs. Your experience matters—engaging in research today can lead to better outcomes for the entire PBC community tomorrow."

Find out more in our News article: https://www.pbcfoundation.international/new-survey-available-fatigue-in-pbc/

07/01/2026

** No Q&A this week **

Please be aware that there will be no Q&A this week, Thursday 08 January.

The Q&A will return next week. If you would like to submit a question for the next Q&A, please use the contact form on our website: https://www.pbcfoundation.org.uk/contact-us/

In the meantime, our YouTube channel is available where we have an extensive collection of videos, including previous Q&As, patients' stories, and other videos: https://www.youtube.com/pbcfoundation

Please remember that these Q&As do not take the place of a consultation with your own clinician – we aim to provide general medical information and not medical advice in these sessions. We will generalise your questions to support that, if you need help with a more detailed issue, please contact us on the helpline +44 (0)131 556 6811.

05/01/2026

Join us for a chat at a Community Café meeting.

There are a few opportunities to join a Community Café meeting this week:

☕ Tuesday 06 January: Online Community Café | 7pm - 8pm UK time

☕ Thursday 08 January: Sussex Community Café (in person) | 2:30pm - 4pm UK time

☕ Sunday 11 January: Northamptonshire Community Café (in person) | 11am - 12:30pm UK time

Log-in is required to ensure the meetings are kept as safe spaces. If you are already registered with the Foundation, click on the event entry on our Events webpage for more information about the meetings and for links to the online meetings. If you are new to the Foundation, you can also use the links to register with us for free. You will also need to complete a short Community Café Registration Form.

Visit our Events webpage for more information: https://www.pbcfoundation.org.uk/events/

05/01/2026

** No Q&A this week **

Please be aware that there will be no Q&A this week, Thursday 08 January.

The Q&A will return next week. If you would like to submit a question for the next Q&A, please use the contact form on our website: https://www.pbcfoundation.org.uk/contact-us/

In the meantime, our YouTube channel is available where we have an extensive collection of videos, including previous Q&As, patients' stories, and other videos: https://www.youtube.com/pbcfoundation

Please remember that these Q&As do not take the place of a consultation with your own clinician – we aim to provide general medical information and not medical advice in these sessions . We will generalise your questions to support that, if you need help with a more detailed issue, please contact us on the helpline +44 (0)131 556 6811.

05/01/2026

As we head into 2026, start the year by making some time for you and join us tomorrow at 6pm (UK time) for our first self-care Choose Me Tuesday session of the year.

The theme this week is: Winter Wellbeing.

This is a safe space and login is required. If you are already registered with the Foundation, click the link below to join as usual. If you are new to the Foundation, you can also use this link to register with us for free: https://www.pbcfoundation.international/members/login-register/?redirect=13031

01/01/2026

Happy New Year from the PBC Foundation.

As the new year begins, we wish you rest when you need it, courage when you want it, and support always.

2026 will be a particularly exciting time for us as we will be celebrating a very special milestone - 30 years of supporting those affected by PBC. Keep an eye on social media, our website, etc for ways you can get involved.

30/12/2025

Our next Men with PBC online meeting is tomorrow at 7pm UK time.

These meetings are an opportunity to meet and chat with other men affected by PBC.

Although men are welcome at any of our meetings, we’ve responded to the need from the community to have a space just for men.

Here's what one of the attendees has said about these meetings: "By attending the monthly session with other men I don't feel alone. I look forward to chatting with others who understand."

Login is required to keep this a safe space. If you are already registered with the Foundation, click the link below for information about how to join the session. If you are new to the Foundation, you can also use this link to register with us for free https://www.pbcfoundation.international/members/login-register/?redirect=16069

Please email Mo mo@pbcfoundation.international if you would like more information or have any questions about these sessions.

29/12/2025

Self-care matters. Prioritise you and join us for our next Choose Me Tuesday self-care session tomorrow at 6pm UK time.

The theme this week is: Winter Wellbeing

Login is required to keep this a safe space. If you are already registered with the Foundation, click the link below to join as usual. If you are new to the Foundation, you can also use this link to register with us for free: https://www.pbcfoundation.international/members/login-register/?redirect=13031

28/12/2025

A new survey is live on our App, it’s the first survey for fatigue in PBC, please come and tell us your experience!

The PBC Foundation has a proud history of using the patient experience to improve the patient experience. We intend to use your collected, anonymised answers to campaign for better care in PBC fatigue. We can only do this when you share your experience and your knowledge. For that, we are grateful.

Apple device: https://apps.apple.com/gb/app/pbc-foundation-self-management/id1225705494
Android device: https://play.google.com/store/apps/details?id=uk.org.pbcfoundation.pbcapp1

26/12/2025

26/12/2025

Don't forget there's a Friday Fizz taking place later today, Friday 26 December, at 5pm UK time!

Come and join us on our page for some live music 🎵