PBC Foundation

26/09/2025

Kelly Hughes with be taking on the JLR Challenge on the 27th of September to support the PBC Foundation.

"The JLR Challenge a brutal test of endurance, covering 15 miles in 10 hours with my amazing team beside me. But this challenge is about far more than physical strength. It’s about shining a light on a battle I never thought I’d face."

🚨 15 miles. 10 hours. 6 teammates. One mission.

Please donate and support on link below.

https://www.justgiving.com/page/kelly-hughes-1194?utm_medium=FR&utm_source=CL

26/09/2025

This week's Q&A with Prof David Jones and Collette Thain (Founder of the PBC Foundation) is now available on our YouTube channel and can be viewed here:
https://youtu.be/QzU8whyTWNE

Previous Q&As and other videos are also available on our YouTube channel: https://www.youtube.com/pbcfoundation

Please remember that these Q&As do not take the place of a consultation with your own clinician – we aim to provide general medical information and not medical advice in these sessions. We will generalise your questions to support that, if you need help with a more detailed issue, please contact us on the helpline +44 (0)131 556 6811.

26/09/2025

It's nearly October, which means it's nearly time for the PBC Patient Empowerment & Wellbeing Workshops in Australia! These workshops are in partnership with the Australia Liver Foundation and sponsored by Ipsen.

There is still time to book onto one of these workshops. Use this link for more information including how to book: https://www.pbcfoundation.international/australia-pbc-patient-empowerment-wellbeing-workshops/

26/09/2025

Não estás só.

You are not alone.

In the lead up to PBC Awareness Day, we joined over 20 patient and advocacy organisations across the world to spread one powerful message: you are not alone.

The video message is available in 16 other languages in addition to English and today we are sharing the Portuguese (Europe) version with you: https://youtube.com/shorts/OyTux8fhXIk?feature=share

25/09/2025

Du bisch nöd allei.

You are not alone.

In the lead up to PBC Awareness Day, we joined over 20 patient and advocacy organisations across the world to spread one powerful message: you are not alone.

The video message is available in 16 other languages in addition to English and today we are sharing the Swiss German version with you: https://youtube.com/shorts/5OAreB8tcLU?feature=share

24/09/2025

Our next Transplant Journey online meeting is tomorrow at 6pm UK time.

Research and experience show that when patients - and their loved ones - meet someone who has successfully gone through a liver transplant, see how well they're doing years later, and have the opportunity to ask questions about the process, it can be both informative and deeply reassuring.

Login is required to keep this a safe space. If you are already registered with the Foundation, click the link below for information about how to join. If you are new to the Foundation, you can also use this link to register with us for free: https://www.pbcfoundation.international/members/login-register/?redirect=16071

Please email Mo mo@pbcfoundation.international if you would like more information or have any questions about these sessions.

24/09/2025

You are not alone. | אתם לא לבד

In the lead up to PBC Awareness Day, we joined over 20 patient and advocacy organisations across the world to spread one powerful message: you are not alone.
The video message is available in 16 other languages in addition to English and today we are sharing the Hebrew version with you: https://youtube.com/shorts/XMhnrmv2rXw?feature=share

24/09/2025

Our next Q&A session is tomorrow at 2pm UK time when Prof David Jones will be answering your questions about PBC.

If you have any questions, please submit them by using the contact form on our website: https://www.pbcfoundation.org.uk/contact-us/.

Watch the Q&A live in the private room using this link: https://pbcfoundation.clickmeeting.com/pbc-q-a. A recording of the full Q&A will also be shared to YouTube after the live Q&A and we will share the link to access the recording in one click. Please remember that Q&A sessions will no longer be available on Facebook.

Previous Q&As and other videos are also available on our YouTube channel: https://www.youtube.com/pbcfoundation

23/09/2025

Our next Men with PBC online meeting is tomorrow at 7pm UK time.

These meetings are an opportunity to meet and chat with other men affected by PBC.

Although men are welcome at any of our meetings, we’ve responded to the need from the community to have a space just for men.

Login is required to keep this a safe space. If you are already registered with the Foundation, click the link below for information about how to join the meeting. If you are new to the Foundation, you can also use this link to register with us for free: https://www.pbcfoundation.international/members/login-register/?redirect=16069

Please email Mo mo@pbcfoundation.international if you would like more information or have any questions about these sessions.

23/09/2025

Vous n’êtes pas seules.

You are not alone.

In the lead up to PBC Awareness Day, we joined over 20 patient and advocacy organisations across the world to spread one powerful message: you are not alone.

The video message is available in 16 other languages in addition to English and today we are sharing the Swiss French version with you: https://youtube.com/shorts/Atg1vldvk-0?feature=share

23/09/2025

Congratulations to our colleagues at Friends of the PBC Foundation on a successful inaugural U.S. PBC Patient Conference 💜

The 2025 U.S. PBC Patient Conference was our inaugural conference, and we could not have had such an amazing event had it not been for the support of our sponsors Gilead Sciences, Mirum Pharmaceuticals, Ipsen, PBC Foundation, Intercept Pharmaceuticals, Rare Patient Voice,
our, board members, L Marie Asad, Kasey Estenson, Jackeline Candelario, Danielle Alstat, Ons Yasmeen Mrad Bouali, Amany Bouali, our volunteers, and all of our patients in the PBC community! Your dedication to bringing awareness of PBC is inspirational and will continue to drive education and advocacy for those living with PBC.

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22/09/2025

Ga o nosi.

You are not alone.

In the lead up to PBC Awareness Day, we joined over 20 patient and advocacy organisations across the world to spread one powerful message: you are not alone.

The video message is available in 16 other languages in addition to English and today we are sharing the Setswana version with you: https://youtube.com/shorts/r7WAzkOrt2A?feature=share