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Monday 9:30am - 5:30pm Tuesday 9:30am - 5:30pm Wednesday 9:30am - 5:30pm Thursday 9:30am - 5:30pm Friday 9:30am - 5:30pm

Haemophilia Scotland

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Haemophilia Scotland

A Scottish charity (No. SC044298) for people who have haemophilia, von Willebrands, other bleeding disorders.

Please note that Haemophliia Scotland is not affiliated with The Haemophilia Society UK in any way. Our governance is based solely in Scotland to serve the needs of our community.

27/05/2026

Reminder ‼️

A quick reminder from us to highlight that our Women’s Bleeding Disorders Conference will take place on Saturday 6th June at the Stirling Highland Hotel.

It’s a day designed by women, for women affected by a bleeding disorder to come together, hear from expert speakers, and build meaningful connections.

📅 Date: Saturday 6th June
⏰ Time: 10:00 am - 4:00 pm
How to sign up? Head to our events page to register your interest 👇

www.haemophilia.scot/events

Funded by Women's Fund for Scotland

25/05/2026

A huge, heartfelt thank you to Mark Morris for completing his 2026 Marathon Challenge, smashing Manchester in 3:18 on 19th April, and Edinburgh in 3:37, yesterday! 👏

Your grit, determination and generosity have raised vital awareness and funds for our Scottish bleeding disorders community and inspired everyone who followed your journey. Your marathon challenge has raised a tremendous £5,200 + gift aid!

Thank you, too, to everyone who supported Mark every step of the way! The friends and family who trained with him, the crowds who cheered on the route, and everyone who donated or shared his fundraiser. Your encouragement, time and generosity made this possible and will have a real, positive impact for our Scottish bleeding disorders community.

We’re so proud of Mark and very grateful to our incredible community. Thank you, Mark. Thank you, All! ❤

20/05/2026

Let's talk about bleeding disorders 💬

Awareness begins with a good understanding, and understanding begins with asking questions. Whether you're completely new to the topic or want to learn more, we would love to hear from you!

What would you like to know more about? Drop your questions below or send us a DM 👇

18/05/2026

We’re incredibly proud of Mark, who has already completed the Manchester Marathon and is continuing his journey to the Edinburgh Marathon this May, all in support of Haemophilia Scotland.

Running in honour of his son Theo, who lives with Haemophilia B, Mark has now raised an amazing £3,235. Theo faces the challenges of a rare bleeding disorder every day with courage, and Mark is running for him, their family, and others across Scotland affected by these conditions.

There’s still time to support Mark as he takes on his second marathon. Every donation helps us continue providing vital support, advocacy, and community for families like theirs 💙🏃‍♂️

Best of luck on the 24th Mark, thank you for your incredible fundraising efforts to date!

Donate 👉 https://www.justgiving.com/page/markandtheo

15/05/2026

Meet Kat, a Clinical Nurse Specialist working alongside Haemophilia Scotland ♥️

In this video, Kat shares how children and young people with bleeding disorders are supported through the NHS - from specialist care to ongoing guidance for families.

If you’ve ever wondered what support is available, this is a great place to start.

Got a question for Kat or the team? Drop it in the comments below 👇

13/05/2026

It's World Mental Health Week 🧠

For those living with a bleeding disorder, it is imperative to not just focus on your physical health, but to also understand the importance of looking after your mental health too.

Chronic, and often 'invisible' disorders, place significant burden on individual's mental wellbeing. The mental toll of chronic pain, activity limitations and treatment burnout is real and isolating.

This World Mental Health Week we are highlighting why physical and mental integrated care is essential and tackling anxiety, depression and mental wellness is a vital part of the journey.

Let's support the 'invisible' side of living with a bleeding disorder! For those living with bleeding disorders and looking for psychological support, head to 👉 https://haemophilia.scot/psychological-support-service/

08/05/2026

Did you know that 1 in 5 women who seek help for heavy periods actually have an underlying bleeding disorder? 🩸

Many of us are told that heavy bleeding or easy bruising is just "normal," but it doesn't have to be. Watch out for:

🚩 Periods lasting longer than 7 days
🚩 Changing a pad/tampon every 1-2 hours
🚩 Large, raised bruises that appear easily
🚩 Frequent nosebleeds (10+ mins)

If you think that the above symptoms sound familiar and are looking for support ahead of speaking with your GP, please reach out ♥️

05/05/2026

Bleeding disorders, signs and symptoms

Do you know the signs and symptoms of bleeding disorders? If you have a family history of bleeding disorders, or suspect that one of your loved ones may indeed have a bleeding disorder, it's important to know what to look out for 🩸

For example, key symptoms of haemophilia include:

👉 Bleeding for a long time after an injury, surgery, or having a tooth removed
👉 Bruising easily
👉 Joint pain, stiffness and swelling

In severe cases, bleeding can happen for no clear reason, and in milder cases, symptoms only occur after an injury or surgery.

From diagnosis to day-to-day, Haemophilia Scotland is here to support you every step of the way.

Looking for support? Get in touch today 👇

hello@haemophilia.scot

01/05/2026

Huge congratulations to Mark who smashed the Manchester Marathon on 19th April, the first of his two marathon challenge to support Haemophilia Scotland in honour of his little boy, Theo! Next stop: the Edinburgh Marathon on 24th May!

If you can, please donate or share his fundraiser to help support families across Scotland affected by bleeding disorders. 💙🏃‍♂️

https://www.justgiving.com/page/markandtheo

27/04/2026

Haemophilia doesn’t just affect health, it quietly takes away childhood moments.

Our members consistently share that children with bleeding disorders can miss up to 50% of their schooling due to painful bleeds, long recoveries, and hospital stays. Beyond learning, this means missing out on friendships, confidence-building, and the simple routine of everyday school life.

Over time, these absences can impact not just education, but a child’s sense of belonging.

This is the hidden impact of haemophilia: lost time, isolation, and disruption that many never see.

Awareness matters, because no child should have to miss out on their education, their confidence, or their connection.

Need support navigating school absences? Reach out 👉 hello@haemophilia.scot

24/04/2026

2026 Members' Day and AGM

We are delighted to share that we have scheduled our 2026 Members' Day and AGM for Saturday 29th August 🗓️

The day will include talks from healthcare professionals, opportunities to hear from others across our Scottish bleeding disorders community, and space to build a strong network of mutual support.

Interested in coming along? Head to the contact form on our web page and note your interest 👇

www.haemophilia.scot/events

Address

The Eric Liddell Centre, 15 Morningside Road
Edinburgh
EH104DP

Opening Hours

Monday	9:30am - 5:30pm
Tuesday	9:30am - 5:30pm
Wednesday	9:30am - 5:30pm
Thursday	9:30am - 5:30pm
Friday	9:30am - 5:30pm

Telephone

+448458744004

Website

http://www.haemophilia.scot/

Alerts

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