Haemophilia Scotland

Haemophilia Scotland A Scottish charity (No. SC044298) for people who have haemophilia, von Willebrands, other bleeding disorders.

Please note that Haemophliia Scotland is not affiliated with The Haemophilia Society UK in any way. Our governance is based solely in Scotland to serve the needs of our community.

09/01/2026

The Irish Haemophilia Society organise regular webinars on a broad range of topics. We look at current trends, future treatments, international developments with regard to haemophilia, von Willebrand disorder and … Webinars Read More »

08/01/2026

Prof Susie Shapiro and Dr William McKeown will unpack what "frailty" really means in the context of bleeding disorders — focusing on practical insights, evidence-based strategies, and real-world perspectives that matter to patients.

As we step into a new year, we’d love to make sure we can stay in touch. If your contact details have changed, updating ...
07/01/2026

As we step into a new year, we’d love to make sure we can stay in touch. If your contact details have changed, updating them means you won’t miss out on news or upcoming events. ✨

If you are a member, you can let us know of any contact detail changes via the link below:
https://haemophilia.scot/get-involved/membership/

"Here we are again, approaching the end of another year and with it an opportunity to pause and reflect on what has been...
19/12/2025

"Here we are again, approaching the end of another year and with it an opportunity to pause and reflect on what has been a busy, productive, and deeply meaningful year for the charity.

Over the past twelve months, Haemophilia Scotland has continued to grow and improve the services we provide to individuals and families across Scotland affected by bleeding disorders. It has been a year marked by positive change and progress in several key areas, and one that I can look back on once again with pride."

Read our Director's Christmas message on our website:
https://haemophilia.scot/merry-christmas-happy-new-year-2/

🎄💙 Community Support at Christmas 💙🎄Christmas can be a joyful time, but it can also feel lonely or difficult for many. W...
18/12/2025

🎄💙 Community Support at Christmas 💙🎄

Christmas can be a joyful time, but it can also feel lonely or difficult for many. We’ve put together a helpful article highlighting community meals, festive events and support available over Christmas — for anyone who could use a little extra warmth, company or connection this season.

Whether you’re looking for a place to share a meal, meet others, or find local support, we hope this brings some comfort and reassurance.

👉 Read the full article on our website:
https://haemophilia.scot/community-support-at-christmas/

Please feel free to share — you never know who might find it helpful. ✨

🎄✨ A huge thank you and shout-out to the Campbells! ✨🎄Each year, their neighbours come together for a wonderful street C...
17/12/2025

🎄✨ A huge thank you and shout-out to the Campbells! ✨🎄

Each year, their neighbours come together for a wonderful street Christmas light switch-on, complete with a charity bake sale. This year, the Campbells hosted the event and chose to donate the funds raised to Haemophilia Scotland 💙

Thanks to their generosity (and some very tasty baking!), an amazing £290 was raised. We are so immensely grateful for this thoughtful support. These funds will help us continue our work to support, inform and advocate for our Scottish bleeding disorders community.

Thank you to the Campbells and everyone in the street who baked, donated and supported the day. What a brilliant example of community spirit at Christmas! 🎅🍰✨

Christmas can be a time when payments don’t stretch as far as they usually do.There are many charities offering extra su...
12/12/2025

Christmas can be a time when payments don’t stretch as far as they usually do.
There are many charities offering extra support for those who may be struggling this winter, and we want to make sure our community knows what help is available.

We’ve pulled together a helpful guide with information on organisations providing financial and practical support over the festive period.

👉 Read the full article on our website to find out more.
https://haemophilia.scot/financial-support-at-christmas/

The start of December recognises National Grief Awareness week (2nd-8th December) and for many, Christmas can highlight ...
05/12/2025

The start of December recognises National Grief Awareness week (2nd-8th December) and for many, Christmas can highlight feelings of loss, loneliness, and longing for loved ones who are no longer with us.

Grief doesn’t follow a schedule, and it doesn’t pause for festive occasions. If this Christmas feels particularly heavy, know that you are not alone. It’s okay to grieve during the holidays, to honour your feelings, and to seek support when needed.

Read more on our website:
https://haemophilia.scot/this-week-is-grief-awareness-week/

04/12/2025

📖 Knowledge should speak every language 🌍

The EHC Booklet on "Is haemophilia (fe)male?" is now available in 7 languages and counting!

Whether you read in English, French, Chinese, German, Italian, Romanian, or Polish, essential information about diagnosis, treatment, and care for women with haemophilia and female carriers is now accessible in your language.

🔗 Explore the full collection on the EHC Academy: https://academy.ehc.eu/library/

More translations are on the way, made possible by the incredible work of EHC National Member Organisations, who are committed to ensuring no one is left behind. ❤️

Inhibitors can happen in any clotting factor deficiency, including von Willebrands. However, they are most commonly expe...
03/12/2025

Inhibitors can happen in any clotting factor deficiency, including von Willebrands. However, they are most commonly experienced by people with severe haemophilia A – around 30% have, or have previously had, an inhibitor to Factor VIII. It is ten times less common in severe haemophilia B.

Learn more about inhibitors on our website at
https://haemophilia.scot/inhibitors/

01/12/2025

On , the WFH remembers those in the and community affected by HIV through contaminated blood.
This year, we’re proud that our advocacy contributed to the update of the WHO Essential Medicines List, helping ensure that only safe and effective treatments are including in this WHO guidance to national governments. 🩸

Address

The Eric Liddell Centre, 15 Morningside Road
Edinburgh
EH104DP

Opening Hours

Monday 9:30am - 5:30pm
Tuesday 9:30am - 5:30pm
Wednesday 9:30am - 5:30pm
Thursday 9:30am - 5:30pm
Friday 9:30am - 5:30pm

Telephone

+448458744004

Website

Alerts

Be the first to know and let us send you an email when Haemophilia Scotland posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to Haemophilia Scotland:

Shortcuts

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram

Category

Who are Haemophilia Scotland?

Haemophilia Scotland is a Scottish Charity for individuals and families with inherited bleeding disorders such as haemophilia, von Willebrand, factor deficiencies, or platelet disorders. We are Scottish Incorporated Charitable Organisation (SCIO) and our Charity Number is SC044298. It is free to join Haemophilia Scotland and attend our events. Membership is open to anyone who supports our work.

We provide clear and patient friendly information. Our regular events and online spaces help people affected by bleeding disorders in Scotland meet and support each other. We also work closely with everyone involved in providing haemophilia services to continually improve treatment and care. We do this primarily through the Scottish Inherited Bleeding Disorders Network (SIBDN). We are also members of the Scottish Parliament Cross Party Group on Rare Diseases.

Our largest funder is the Scottish Government but we are also grateful for support from many of the pharmaceutical companies which produce clotting factor products, a variety of trusts and grant giving bodies, and the donations and fundraising efforts of our members and supporter. We are a member of a variety of umbrella organisation including the Scottish Council for Voluntary Organisations (SCVO), the Scotland Malawi Partnership, the Small Charities Coalition, and The Health and Social Care Alliance. We are also a Living Wage Employer.

Although not affiliated, we have strong working relationships with the World Federation of Hemophilia (WFH), The Europe Haemophilia Consortium (EHC), The Haemophilia Society (THS), the Scottish Infected Blood Forum (SIBF), the Scottish Infected Blood Support Scheme (SIBSS), and Haemophilia Wales (HW).