Who are Haemophilia Scotland?
Haemophilia Scotland is a Scottish Charity for individuals and families with inherited bleeding disorders such as haemophilia, von Willebrand, factor deficiencies, or platelet disorders. We are Scottish Incorporated Charitable Organisation (SCIO) and our Charity Number is SC044298. It is free to join Haemophilia Scotland and attend our events. Membership is open to anyone who supports our work.
We provide clear and patient friendly information. Our regular events and online spaces help people affected by bleeding disorders in Scotland meet and support each other. We also work closely with everyone involved in providing haemophilia services to continually improve treatment and care. We do this primarily through the Scottish Inherited Bleeding Disorders Network (SIBDN). We are also members of the Scottish Parliament Cross Party Group on Rare Diseases.
Our largest funder is the Scottish Government but we are also grateful for support from many of the pharmaceutical companies which produce clotting factor products, a variety of trusts and grant giving bodies, and the donations and fundraising efforts of our members and supporter. We are a member of a variety of umbrella organisation including the Scottish Council for Voluntary Organisations (SCVO), the Scotland Malawi Partnership, the Small Charities Coalition, and The Health and Social Care Alliance. We are also a Living Wage Employer.
Although not affiliated, we have strong working relationships with the World Federation of Hemophilia (WFH), The Europe Haemophilia Consortium (EHC), The Haemophilia Society (THS), the Scottish Infected Blood Forum (SIBF), the Scottish Infected Blood Support Scheme (SIBSS), and Haemophilia Wales (HW).
