Haemophilia Scotland

21/07/2025

17/07/2025

We are appealing to you for any donations of raffle prizes (bottles, vouchers, tickets etc.) for a charity night that Jamie’s family are holding in his memory to raise funds for ourselves, Haemophilia Scotland and Neuro ICU at Queen Elizabeth University Hospital.

Jamie sadly passed away in January 2025 and his passing has left a huge void in all of his family and friends' lives and they want his name to live on forever.

If you or someone you know can contribute, please get in touch at the link below — and feel free to share this appeal with your friends and family. Thank you for your support.

https://haemophilia.scot/jamie-tonner-memorial-fundraiser-night-saturday-26th-july-2025/

16/07/2025

In March 2023, a group of young people took part in a comic workshop in Glasgow sharing their honest thoughts, feelings and experiences of living with a bleeding disorder. This was all captured and turned into a comic book.

You can read it on our website:https://haemophilia.scot/wp-content/uploads/2023/08/Haemophilia-Scotland-Comic.pdf

Since then, we've hosted 2 other comic book workshops and have a second comic book coming out soon! Watch this space!

The project was made possible by funding by Essentia, administered by Foundation Scotland

15/07/2025

Whether you're an experienced runner or seeking a new challenge, why not run for us and help raise awareness and funds for our Scottish bleeding disorders community?

Get in touch at hello@haemophilia.scot to explore opportunities to take part in 2025!

14/07/2025

📣 We’re excited to announce that registration is now open for our Members’ Day & AGM at Edinburgh Zoo 🦁🐵🐧

📅 Saturday 30th August | ⏰ 10:00am–4:00pm

Join us for a brilliant day out with the community. The day will begin with our Annual General Meeting (lasting one hour), followed by a relaxed lunch and then organised tours around the zoo, hosted by their fantastic team.

It’s a great chance to connect, hear updates on our work, and enjoy a fun day for all ages in a truly wild setting!

🔗 Register now: https://www.eventbrite.co.uk/e/haemophilia-scotland-members-day-agm-tickets-1460192939389?aff=oddtdtcreator

11/07/2025

The Scottish Government has published draft regulations for the upcoming Two Child Limit Payment, set to launch in March 2026. This new benefit is designed to mitigate the impact of the existing two-child limit under Universal Credit, which currently restricts financial support to the first two children in most households.
Under the proposed scheme, eligible families will receive £292.81 per additional child per month, providing crucial support to households affected by the cap. The payment aims to reduce child poverty and ensure that all children receive adequate financial assistance, regardless of birth order.
To streamline access, the Scottish Government has committed to designing an application process that is simple and efficient, potentially integrating with existing systems such as the Scottish Child Payment administration. This approach is intended to minimize administrative burden and ensure timely delivery of support to families in need.

10/07/2025

The Office for Rare Conditions (OfRC)Glasgow, based at the Royal Hospital for Children and the Queen Elizabeth University Hospital, aims to raise awareness of rare, low prevalence and undiagnosed con

10/07/2025

Last night, the parliament in Westminster voted for the final time on the Universal Credit Bill, formerly called “The Universal Credit and Personal Independence Payment Bill”. The government is awaiting the review of Disabilities Minister Sir Stephen Timms that is being co-produced with disabled people and the organisations that represent them, before any changes to how Personal Independence Payments (PIP) is assessed will be made.

Read more on our website:
https://haemophilia.scot/update-on-welfare-reform/

09/07/2025

Check out the newly released report from The Haemophilia Society UK shining a light on the real-life experiences of women living with bleeding disorders.

08/07/2025

We’re excited to launch two amazing Teen Jam Sessions in October for young people aged 12-18 who are affected by a bleeding disorder! Whether you’re a complete beginner or already have some musical experience, there’s a session for you.

These jam sessions are all about having fun, trying out different instruments, and making music in a relaxed and supportive space. And the best part? They’re completely free!

Visit our website for more info and to register!
https://haemophilia.scot/the-teen-jam-sessions-are-back/

04/07/2025

Our Financial Wellbeing Officer, Maxie, has successfully overturned 3 Adult Disability awards in favour of members at redetermination stage.

Maxie has had a member’s housing benefit reinstated after it was incorrectly cancelled.

If in doubt, give Maxie a shout!

fwo@haemophilia.scot or call/text/Whatsapp on 07746255225