Haemophilia Scotland

Haemophilia Scotland A Scottish charity (No. SC044298) for people who have haemophilia, von Willebrands, other bleeding disorders.

Please note that Haemophliia Scotland is not affiliated with The Haemophilia Society UK in any way. Our governance is based solely in Scotland to serve the needs of our community.

Income-related Employment and Support Allowance (ESA) and Housing Benefit—known as legacy benefits—are being phased out ...
19/09/2025

Income-related Employment and Support Allowance (ESA) and Housing Benefit—known as legacy benefits—are being phased out as the Department for Work and Pensions (DWP) transitions claimants to Universal Credit.
Read more on our website:
www.haemophilia.scot

📰 Have you read the latest edition of our magazine, The Wire, yet?It’s full of news, stories, and updates from our commu...
18/09/2025

📰 Have you read the latest edition of our magazine, The Wire, yet?
It’s full of news, stories, and updates from our community – available online now!

https://haemophilia.scot/wp-content/uploads/2025/08/THE-WIRE-14-SUMMER-2025-NEWSLETTER.pdf

On Sunday 14th September, our Director Alan Martin proudly took part in the Edinburgh Kiltwalk, stepping out to raise fu...
17/09/2025

On Sunday 14th September, our Director Alan Martin proudly took part in the Edinburgh Kiltwalk, stepping out to raise funds and awareness for our Scottish bleeding disorders community.

We want to extend a huge thank you to him and to everyone who generously contributed to his fundraiser. Your support helps us continue our mission to support, inform, and advocate for our Scottish bleeding disorders community.

We are thrilled to have received a three-year grant from the Women's Fund for Scotland to support our work with women a...
17/09/2025

We are thrilled to have received a three-year grant from the Women's Fund for Scotland to support our work with women and girls affected by bleeding disorders. In Year 1, we hosted a dedicated conference that created space for connection, shared experiences, and open discussion around the challenges faced by women and girls in our community. We are now in Year 2, which focuses on identifying gaps in information, support, and advocacy. We are currently encouraging women and girls affected by a bleeding disorder to complete our survey, which will play a vital role in shaping the next stages of the project. The insights gathered will help us plan for Year 3, when we will host a second conference and begin taking meaningful steps towards addressing the issues identified.

Take the survey:
https://forms.office.com/e/iEuCg9MKi2

Pension Age Winter Heating Payment – social media text Pension Age Winter Heating Payment will be paid by Social Securit...
12/09/2025

Pension Age Winter Heating Payment – social media text Pension Age Winter Heating Payment will be paid by Social Security Scotland this winter. If you are 66 years old or over, you could get a payment of between £101.70 and £305.10. Most eligible people get the payment automatically and do not need to apply. Social Security Scotland will send the payment to the same account as your State Pension, or any Social Security Scotland benefits you get.

Find out more at https://bit.ly/SocialSecurityScotlandPensionAgeWinterHeatingPayment

Whether you're an experienced runner or seeking a new challenge, why not run for us and help raise awareness and funds f...
11/09/2025

Whether you're an experienced runner or seeking a new challenge, why not run for us and help raise awareness and funds for our Scottish bleeding disorders community?

Get in touch at hello@haemophilia.scot to explore opportunities to take part in 2025!

🚶‍♂️ This weekend, on Sunday 14th September, our Director Alan Martin will be taking on the Mighty Stride at the Edinbur...
10/09/2025

🚶‍♂️ This weekend, on Sunday 14th September, our Director Alan Martin will be taking on the Mighty Stride at the Edinburgh Kiltwalk to raise awareness and vital funds for our Scottish bleeding disorders community. 💙

This year, Haemophilia Scotland has been represented at all four Kiltwalks—Glasgow, Aberdeen, Dundee, and now Edinburgh—and we’re so grateful for everyone who has walked in support of our community. 🥾✨

👉 You can support Alan and help us make every step count by donating here:
https://www.justgiving.com/campaign/haemophiliascotlandstriders2025

📢 New Comic Book Launch!Our latest comic book shares personal stories from people across Scotland affected by bleeding d...
09/09/2025

📢 New Comic Book Launch!

Our latest comic book shares personal stories from people across Scotland affected by bleeding disorders – including individuals, carers, parents, and siblings. It’s a fantastic resource for families, friends, schools, and groups to learn more about life with a bleeding disorder. 💙

Thank you to everyone who took part in the workshops and shared your stories. A huge thank you also to Paul and the Magic Torch Comics CIC team for capturing everyone’s stories so brilliantly!

📖 You can read Volume 2 online now – and don’t forget, Volume 1 (released in 2023) is also available to read on our website. If you’d prefer hard copies of either volume, just email hello@haemophilia.scot and we’ll send them out to you. Copies are also being sent to all haemophilia centres across Scotland.

https://haemophilia.scot/information/publications/

The project was funded by The Essentia Foundation - Scotland, administered by Foundation Scotland

We’re excited to launch two amazing Teen Jam Sessions in October for young people aged 12-18 who are affected by a bleed...
08/09/2025

We’re excited to launch two amazing Teen Jam Sessions in October for young people aged 12-18 who are affected by a bleeding disorder! Whether you’re a complete beginner or already have some musical experience, there’s a session for you.

These jam sessions are all about having fun, trying out different instruments, and making music in a relaxed and supportive space. And the best part? They’re completely free!

Visit our website for more info and to register!
https://haemophilia.scot/the-teen-jam-sessions-are-back/

Did you know that if you are in receipt of Scottish Child Payment and have a child in P6 or P7 you can get free school m...
05/09/2025

Did you know that if you are in receipt of Scottish Child Payment and have a child in P6 or P7 you can get free school meals? This is not automatic, check your council’s website/give them a call to find out how to apply.

📣 If you're affected by a bleeding disorder and attend the haemophilia centre in Aberdeen, this one is for you!You're in...
04/09/2025

📣 If you're affected by a bleeding disorder and attend the haemophilia centre in Aberdeen, this one is for you!

You're invited to our Members' Meet-Up on Saturday 27th September, from 10:00am to 1:00pm at the Suttie Centre.

☕ Come along for a relaxed morning of connection, conversation and community.
🍽️ Lunch is on us – and it's completely free to attend!

Whether you’re newly diagnosed or have been part of the community for years, we’d love to see you there.

📍 Suttie Centre, Aberdeen AB25 2ZD
🗓️ Saturday 27th September
🕙 10:00am–1:00pm

Find out more and register via Eventbrite:
https://www.eventbrite.co.uk/e/members-meet-up-in-aberdeen-tickets-1311522181149?aff=oddtdtcreator

🚶‍♂️ Next Sunday 14th September, our Director Alan Martin will be taking on the Mighty Stride at the Edinburgh Kiltwalk ...
04/09/2025

🚶‍♂️ Next Sunday 14th September, our Director Alan Martin will be taking on the Mighty Stride at the Edinburgh Kiltwalk to raise awareness and vital funds for our Scottish bleeding disorders community. 💙

This year, Haemophilia Scotland has been represented at all four Kiltwalks—Glasgow, Aberdeen, Dundee, and now Edinburgh—and we’re so grateful for everyone who has walked in support of our community. 🥾✨

👉 You can support Alan and help us make every step count by donating here:
https://www.justgiving.com/campaign/haemophiliascotlandstriders2025

Address

The Eric Liddell Centre, 15 Morningside Road
Edinburgh
EH104DP

Opening Hours

Monday 9:30am - 5:30pm
Tuesday 9:30am - 5:30pm
Wednesday 9:30am - 5:30pm
Thursday 9:30am - 5:30pm
Friday 9:30am - 5:30pm

Telephone

+448458744004

Website

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Who are Haemophilia Scotland?

Haemophilia Scotland is a Scottish Charity for individuals and families with inherited bleeding disorders such as haemophilia, von Willebrand, factor deficiencies, or platelet disorders. We are Scottish Incorporated Charitable Organisation (SCIO) and our Charity Number is SC044298. It is free to join Haemophilia Scotland and attend our events. Membership is open to anyone who supports our work.

We provide clear and patient friendly information. Our regular events and online spaces help people affected by bleeding disorders in Scotland meet and support each other. We also work closely with everyone involved in providing haemophilia services to continually improve treatment and care. We do this primarily through the Scottish Inherited Bleeding Disorders Network (SIBDN). We are also members of the Scottish Parliament Cross Party Group on Rare Diseases.

Our largest funder is the Scottish Government but we are also grateful for support from many of the pharmaceutical companies which produce clotting factor products, a variety of trusts and grant giving bodies, and the donations and fundraising efforts of our members and supporter. We are a member of a variety of umbrella organisation including the Scottish Council for Voluntary Organisations (SCVO), the Scotland Malawi Partnership, the Small Charities Coalition, and The Health and Social Care Alliance. We are also a Living Wage Employer.

Although not affiliated, we have strong working relationships with the World Federation of Hemophilia (WFH), The Europe Haemophilia Consortium (EHC), The Haemophilia Society (THS), the Scottish Infected Blood Forum (SIBF), the Scottish Infected Blood Support Scheme (SIBSS), and Haemophilia Wales (HW).