Royal Devon IBD Nurses

16/09/2025

Launch of RAPIDIBD at freshers week
Investigating IBD diagnosis delay.

20/08/2025

Are you a parent or carer of a child with IBD? Can you help shape the future of research by providing feedback on study documents? If so the NIHR would love to hear from you, you will be reimbursed £50 for your time.

07/01/2025

Happy New Year to you all! I thought this photo taken by research nurse Sally of a rainbow over the hospital this afternoon was worth a share. Watch this space for details of the next patient meeting on 30/01/2025.

29/11/2024

Thank you to those of you who joined us for our Christmas meeting yesterday. It was lovely to see you all, always great to welcome back old friends and meet new. If you have any suggestions for topics in 2025 please do get in touch.

19/11/2024

Do you have IBD and struggle with weight management? We know that being overweight is bad for IBD and we want to increase the amount of support IBD patients are offered. Last week we sent out questionnaires on My Care to capture patients past experience and interest in weight loss interventions. We hope to use the responses to get more dietary help and also to back up a new national study looking at use of anti-obesity drugs for IBD.
If you have received the questionnaire please help us by completing this. If you have not received it it is not too late to get involved, just get in touch with us.
The easiest way to get a copy of the questionnaire is by signing up for My Care but there are also other options.

MY CARE
The new way to manage your health. Available from the App Store and Google Play
Further information can be found here: https://www.royaldevon.nhs.uk/patients-visitors/my-care/

26/07/2024

Major cause of inflammatory bowel disease found https://www.bbc.com/news/articles/c1wwdd6v2wjo

For those of you that haven’t seen this here is the report we talked about last night.

Scientists have found a weak spot in our DNA that is present in 95% of people with the disease.

20/06/2023

IMPORTANT CHANGES TO THE IBD ADVICE LINE.
We are changing how we work to make contact with the IBD team easier and safer. This will help us prioritise our workload so that those who need advice get it sooner. As part of these changes, the IBDhelpline email service has closed.

If you need advice about your IBD please call the IBD advice line 01392 402728 and leave a message. please leave the following information:
Your full name and date of birth
Your hospital number and/or NHS number
A telephone number so we can call you back during our opening hours.

IBD ADVICELINE OPENING HOURS (unless otherwise stated on answer machine message)

Monday-Thursday 09:00 - 17:00

Friday 09.00 - 14.00

It is closed on bank holidays and at weekends.

Please remember that the advice line is NOT an emergency service. We aim to return your call by the end of the next working day, but this may be longer during busy periods. If you are unwell and cannot wait for a call back, please contact the appropriate service, such as your GP, NHS 111 or, if you are very unwell, the emergency department.

For routine enquiries you can send us a secure message via My Care. If you have not yet signed up to the patient portal please do take a look at this. Further details can be found at -
www.royaldevon.nhs.uk/patients-visitors/my-care.

Results
Routine tests such as blood and stool sample results will be automatically released on the patient portal 14 days after becoming available. Please do not contact us for routine test results if you are well. Please be patient and wait for the results to be released.

Whilst we hope you do not need to contact us if you do these changes should help streamline the process. Please remember the are some amazing resources on the CCUK website https://crohnsandcolitis.org.uk/ for general questions and everyone is welcome to join the patient group meetings on the last Thursday of the month.

We're here for everyone with Crohn's and Colitis

20/05/2023

The IBD patient survey is now open. Please take a few minutes to complete the anonymous survey, it is the first time the survey has been carried out since the pandemic. It will help to improve care and allows us to assess current services.

The IBD patient survey for Crohn's or Colitis will help ensure that the NHS better meets the needs of people living with Crohn's and Colitis.

19/05/2023

https://fb.watch/kD3TNkOFK1/

25/03/2023

https://www.royaloakexminster.com/

Join us this Thursday at 7pm for our first social event of the year. It's quiz night so it would be great to get a team together. We look forward to seeing you there!

Bring the family together for some quality time this Easter! After a busy morning bonnet making and Easter egg hunts, it’s time to enjoy drinks in the sun or treat your loved ones to one of our special Sunday roasts, served with all your favourite trimmings.