Grow and Thrive

Grow and Thrive Neurodivergent-led, holistic & compassionate Neurodevelopmental assessments. Autism, ADHD, learning Available across Scotland.

Innovative Independent Speech & Language (& Communication) Therapists Autism specialists. Passionate about unlocking potential.

Fluctuating capacity comes up so often when we are making sense of things in our assessment process.   'It all worked ou...
09/05/2026

Fluctuating capacity comes up so often when we are making sense of things in our assessment process. 'It all worked out yesterday - why not today? ' or 'they're so good at this but some days they just can't seem to do it at all'.

If we don't look beneath the surface at capacity and energy levels and what fills and empties the good energy bucket then we risk taking a narrow and behaviour- based view which views it as 'effort' and 'choice' and 'trying'. And sadly that's the fast route to labels like 'lazy' or 'not capable' etc. The labels that stick both internally on our sense of self as well as the ones that can get stuck on us by careless comments.

We have more compassion towards adults needing rest or space and need to keep on cultivating that understanding and compassion for children too. When we respond to capacity proactively it doesn't reduce what we can do - it opens up more opportunities as we aren't draining ourselves by operating out of the spare energy tanks!

Jude

Imagine you're planning to make lasagna for supper, or something similarly complicated. You go to the store and buy all the ingredients, take the meat out of the freezer, and then you go to work.

But then work didn't go the way you expected. You were short-staffed, you spent all day on your feet, a coworker was rude to you, and you didn't have time to eat your lunch. When you get home, you're exhausted and starving. You now can't imagine spending an hour making lasagna and then cleaning up afterward. So.. you ACCOMMODATE yourself and order a pizza.

You didn't forget how to make lasagna. You still have all the ingredients for lasagna. You can make lasagna tomorrow. You might even technically WANT to make lasagna. You just don't have the capacity for it right now.

But you aren't lazy for not making lasagna. Nobody tells you that you are being manipulative or that you just need more discipline because you decided to order pizza. Adults extend themselves grace for exactly this kind of capacity shift all the time.

People's abilities don't have one steady baseline. They shift and change constantly, on multiple overlapping timescales, and the pattern is different for everyone.

This is called fluctuating capacity.

For some people, fluctuating capacity means they might handle a complex task one day and then struggle with basic self-care the next, or move between different levels of functioning within the same day, the same hour, even the same conversation.

Within a single day, capacity rises and falls based on accumulated demands, sensory input, food, hydration, transitions, and how much masking or effort someone has already done.

Day to day, sleep quality, what happened the day before, whether they are feeling well, where they are in their cycle, if applicable, and lingering effects from a big event can all change what is available.

Capacity depends on factors like sleep, sensory load, accumulated demands, illness, hormonal cycles, emotional state, environment, and how much the person has already had to mask or push through that day.

In kids, fluctuating capacity often looks like a child who can do something one moment and genuinely cannot do that same thing a short time later. The skill hasn't disappeared, but their access to it has.

A child who had a great Monday can be wiped out on Tuesday from the cost of that good day.

For kids, this could show up in various ways

✱ A kid who can write a full paragraph on Monday stares at a blank page on Wednesday and cannot get a single sentence out.

✱ A child who normally tolerates the tag in their shirt but then suddenly cannot bear it. Sensory thresholds can shift with capacity.

✱ A child who sometimes handles self-care tasks like brushing teeth, getting dressed, putting on shoes, but other times doesn't

✱ Language can also come and go. A kid who chats freely in the morning might give one-word answers by afternoon

These are all situations that involve the same kid, same skill, but different available capacity. Just like in the lasagna analogy.

When capacity fluctuates, you might notice skills requiring executive function, planning, sequencing, starting tasks, switching activities, are often times the first to go. Or, you might see emotional regulation drops, like crying or becoming frustrated more easily/quickly.

When adults don't recognize what's going on, this might feel confusing or frustrating. They might think the child is being lazy, or manipulative, or attention-seeking, or maybe it's a regression, or a behavior problem, or they're simply choosing not to what you want or expect.

But, it's none of those things.

They're still just a child doing the best they can with what they have in the moment, but in this moment, their nervous system has less to give, so skills are going offline.

We can't treat kids' best moments as their baseline. That is actually the ceiling, and the ceiling moves.

Jo is brilliant.  Amazing to have her up here
02/05/2026

Jo is brilliant. Amazing to have her up here

EXCITING NEW EVENT & SPEAKER ANNOUNCEMENT!
Dr Joanna Grace ⭐ Hidden Sensory Differences ⭐ 3rd June

Open to parents, family carers and professionals in East Renfrewshire
Wow, what an incredibly powerful Autistic Collective session earlier this week by Jodie Clarke, Children's Well-being Practitioner & Autism Specialist . We love it when Jodie joins us….we always have the best of days!

We’re super excited to now announce our next speaker, Dr Joanna Grace, Founder of The Sensory Projects.

Joanna is a highly-regarded Autistic Sensory Engagement and Inclusion Specialist, Researcher and Author. She will be joining us on Zoom on Wednesday 3rd June at 10.00am - 12.00pm to explore ‘Hidden Sensory Differences’.

There is growing general awareness of some common sensory differences experienced by Autistic people, for example sensitivity to sound or tactile sensitivity that can make certain clothing particularly challenging. However, there are hidden sensory differences commonly experienced by Autistic people that impact their access to environments, activities and understanding.

In this presentation, Jo will explore the underlying reasons for sensory differences in Autistic people and explore hidden sensory differences, showing how understanding these can give us new ways to support the Autistic people we care about, including:

✨ Autistic sensory differences

✨ What are the underpinning causes of sensory difference?

✨ The spectrum of experience

✨ Hidden sensory differences

✨ How understanding sensory differences transforms support

✨ Short Q&A at the end
This session is made possible thanks to the support of the Community Mental Health and Wellbeing Fund, delivered locally by VAER The Community Hub East Ren and funded by The Scottish Government
⭐ WHO IS THIS SESSION FOR?

Parents and family carers in East Renfrewshire. You do not need a formal diagnosis to take part. You may simply be exploring if any of this fits for your family. We recognise everyone is at a different place on their journey.

We also welcome with open arms professionals in East Renfrewshire who support Autistic people and their families. As we all learn together, side by side.

We work hard to create safe (as can be) spaces to ensure ALL participants feel as comfortable as possible. Speakers and hosts (that's us) included.

Our events and activities are always informed and guided by what we hear from East Renfrewshire folks and speakers during sessions and afterwards in our feedback forms.
⭐ WHAT CAN I EXPECT ON THE DAY?

This will be an informal Zoom session in a slide presentation format, packed with loads of info and research.

After brief introductions and a wee bit of Zoom housekeeping, Joanna will work her way through her presentation slides. The slides section of the session will be recorded.

Once the slides have finished, we’ll stop the recording. There will be time for a short Q&A at the end.

Huge caveat - our speakers always endeavour to answer as many questions on the day as they can. Sometimes, even with the best of intentions, it’s simply not possible. We know you’re all extremely busy people, and we’ll be going for a 12.00pm finish.

Whilst some difficult themes may arise, we always aim for informative and empowering, in a nurturing environment. We pride ourselves on being a friendly, inclusive bunch.
⭐ HOW DO I REGISTER TO BOOK MY PLACE FOR 3rd JUNE?

Please register to book your fully-funded place using the link below.

Register at www.autistic-collective.org

Note: This event is open to parents, carers and professionals in East Renfrewshire only.

Can’t join us live on the day itself? Don’t worry, please register anyway. All registrants will get access to the recording and extra resources afterwards.

Only the presentation slide section will be recorded.

Note: In the recording, the speaker will be the only person visible on your screen, and comments made in the chat box on the day will have been removed.

All participants’ autonomy, privacy and safety is utmost here at The Autistic Collective!

Any queries, or for further info please email hello@autistic-collective.org
⭐ WANT TO KNOW MORE ABOUT THE SPEAKER AND HOST?

DR JOANNA GRACE

Dr Joanna Grace is an Autistic Sensory Engagement and Inclusion Specialist, Researcher, Author, Consultant and Founder of The Sensory Projects.

The Sensory Projects are based on the idea that with the right knowledge and a little bit of creativity, inexpensive items can be used as effective sensory tools for inclusion. In all her work, Jo is looking to contribute to a future where people are understood in spite of their differences.

Joanna has authored multiple books, book chapters, articles, papers, and blogs.

For more information on Joanna and the work she does, check out https://www.thesensoryprojects.co.uk/

Please do also have a look at the books she’s authored - with forewords by Chris Packham and Steve Silberman, author of Neurotribes.

Joanna’s latest highly acclaimed book The Scale of the Spectrum was published recently and is available in all good bookshops and through online retailers and direct from the publishers.
THE AUTISTIC COLLECTIVE

The Autistic Collective is a Community Interest Company, made up of a small team of passionate parent/carer volunteers.

We support parents and family carers - and anyone who supports Autistic people and their families in East Renfrewshire - through learning and empowerment.

We signpost to and collaborate with neuro-affirming Autistic/Neurodivergent-led organisations and speakers, authors and content creators to host learning events and activities to educate from the Autistic (and multiply Neurodivergent) lived-experience perspective.

Please check out and follow our page. Feel free to share with friends, family and professionals/colleagues. Your support means the world to us, as it allows us to reach more families in need.

https://www.facebook.com/AutisticCER

Poster design credit: Laura Gwafa The Marketing Department (TMD)

Massive thanks, as always to Laura, James and Chris for all your marvellous skills and support!

❤️
02/05/2026

❤️

For decades, the dominant framework around autism and social interaction has been built on deficit. Autistic people, it was assumed, struggle to read social cues.

A new study from Michigan State University is challenging that framing at its foundation. Researcher Dr Barbara Thompson and her team found that autistic children are not failing to process social information — they are processing it differently. They respond to distinct social cues, and build connections through different pathways.

The distinction matters enormously. One framework produces interventions designed to make autistic children behave more like non-autistic children. The other produces environments designed to meet autistic children where they actually are.

Not missing. Different.

SOURCE: Michigan State University College of Human Medicine / Dr Barbara Thompson / SEND Lab

I hundred percent agree with this.
10/04/2026

I hundred percent agree with this.

Acceptance is a beginning — not an end.

This Autism Acceptance Month, Thriving Autistic is calling for something deeper. You cannot support Autistic people without challenging racism, transphobia, and ableism. Our lives don't exist in silos — and neither should our support.

Every Autistic person deserves justice and genuine belonging.
We'd love to support you, your loved ones, or your professional practice.

Find out more: www.thrivingautistic.org

10/04/2026
https://www.facebook.com/share/p/1CFCkeoscU/
10/04/2026

https://www.facebook.com/share/p/1CFCkeoscU/

For many Autistic people, regulation happens in connection with others. It might look like sitting quietly together, offering a steady presence, reducing demands, or simply being alongside someone without judgement.

It’s not about fixing, changing, or “calming down” - it’s about feeling safe enough to be.

Co-regulation can look like:
✨ Making space for silence
🌼 Matching a person’s pace
💛 Supporting autonomy through choice

When we co-regulate, we’re saying: you don’t have to do this alone.



[ID: Against a burgundy background, with the Reframing Autism logo at the top and the colourful knotwork in the lower left corner, white text reads, 'Co-regulation is an act of care'. Beneath the text, is an image of two fluffy cats sitting beside eachother, staring off into the distance.]

06/04/2026
11/12/2025
I've just discovered this page by Dr Wolkin and this is a very pertinent post.
07/12/2025

I've just discovered this page by Dr Wolkin and this is a very pertinent post.

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