MSA AWARE

07/08/2022

https://www.belfastlive.co.uk/news/belfast-news/george-bests-sister-barbara-mcnarry-24692458.amp?fbclid=IwAR1p26O0kWSIC9G3xUSra1It3PayfgKm4jYSynzqjL-O6F1J2CdGN0GKeEs

So very sad. Hope it raises more awareness of this dreadful disease 💛💜💛

“His words left us reeling but as long as I have breath in my body, come hell or high water, I’m going to fight.”

03/04/2022

One year on and still hurts like it was yesterday. Miss my dad so much… His chat, his jokes, his moods!!! Wish MSA could be defeated!! It took my dad far too soon 😢😢 xx

23/10/2021

He done it.....with a little sugary help from my dad's fav sweeties. Well done Joshua aka Stewart 💪 You have done this horrid rare disease proud

21/10/2021

Our Dad's carer, Joshua Mcgaughey, is fundraising for Multiple System Atrophy Trust. This is such a kind gesture running a marathon in memory of Dad but also to raise awareness. If you can show a little support, here's their JustGiving page, if you’d like to donate: https://www.justgiving.com/fundraising/joshua-mcgaughey3?utm_source=whatsapp&utm_medium=fundraising&utm_content=joshua-mcgaughey3&utm_campaign=pfp-whatsapp&utm_term=0981e7cbf65d4b5d8f1aeaa14d80f2a0

Help Joshua Mcgaughey raise money to support Multiple System Atrophy Trust

15/10/2021

🧡Thank you to every single one of you who signed and shared our petition for MSA. Unfortunately, we didn’t make the 10,000 😢
I honestly didn’t realise just how hard it would be! However, there are now over 5,000 more people across the UK who know of MSA and the need for so much more research.
A truly awful disease with no cure but got my fingers and toes crossed for further research in the future 🤞🏼🤞🏼🤞🏼
Hopefully did you proud Dad🧡
Miss you every day🧡

03/10/2021

💜💛World MSA day 3rd Oct💛💜
We lost our dad to this awful disease 6 months ago. We miss him everyday. We have been raising awareness of the disease ever since. We created a petition that requires 10,000 sigs, so far we have 4,800 and cut off date vast approaching. Even though, we hope that we have helped raised some awareness of this cruel and devastating disease UK wide. Here is the link again, just in case you haven’t signed it yet. Every sig counts!
Love you dad, you were one of the very best ❤️❤️❤️

https://petition.parliament.uk/petitions/582557

Decisions on the Red List are made by Ministers, informed by the latest scientific data and public health advice, to protect public health and the vaccine rollout from variants of COVID-19.

01/09/2021

My dad would be loving this news!!! Back where he belongs! ❤️❤️❤️

30/08/2021

Medley final.... unbelievable!!! Still more swims to go 💪

Fala pessoal!
Dei o meu máximo na piscina e a prova foi bem forte.

Sou a oitava melhor do mundo no medley! Disputar final de uma Paralimpíada vale muito, porque as batalhas para chegar até aqui foram muitas.

Obrigada a todos que torceram por mim, e estiveram comigo neste ciclo todo.

Ainda não acabou não! Bora para mais duas provas!

30/08/2021

In admiration of this strong individually. You're my winner that's for sure 💜💛💜

WISHING MSA HERO BEST LUCK!

Susana Schnarndorf in the Tokyo Paralympics !

15/08/2021

Made this up last night in memory of Dad. Good time to do it as they won 5-1! Man U through and through, a passion he shared with all of us. Hope you like it Dad. Love u so much ❤️❤️❤️❤️❤️

31/07/2021

Thank you eli_at_home , Campaign For My Brain and for all of the other folks I have messaged about sharing our petition!! It means so much to me and my family ❤️❤️

23/07/2021

A little thank you from the MSA Trust for many kind donations in memory of our dad. Our dad is the reason this page has been created to raise awareness of multiple system atrophy. Please help our petition by sharing the link in our feed as we need thousands more votes and don't have much more time!Deadline October💜thank you💛

11/07/2021

Nearly Dad ❤️🏴󠁧󠁢󠁥󠁮󠁧󠁿

14/06/2021

Thank you Ataxia UK for sharing our post! Please sign and share to raise awareness of this horrible disease. My dad started with Ataxia symptoms that then led onto MSA. 💛💜

We ask the Government to significantly increase targeted research funding for Multiple System Atrophy (MSA). MSA is a rare progressive neurodegenerative disorder, it is vital for increased clinical research to take place. This would lead to increased hope and support for those battling MSA.

04/06/2021

Today we planted a rose bush in our garden in memory of our dad who died of MSA in April. Can't wait to see it flower and we can sit and remember him in the good old days with a strong glass of red wine 🌹 exactly what he liked ❤️ miss you dad xx 💜💛💜

28/05/2021

💛💜
Has anyone that follows this page got any ideas or contacts that would help our petition get more signatures?...
We're still needing 6000 votes
💜💛
Improve research & funding for msa

28/05/2021

🧡 Some photos of when my brother ran a marathon to raise money for the MSA Trust. This was at another particularly difficult time for my dad so meant even more!
🧡

27/05/2021

Big thank you to Defeat MSA Alliance. Defeat MSA Awareness Shoe. for sharing our petition! Raised total signed by around 1,000 signatures!
Keep signing and sharing everyone…
💜💛💜💛💜💛💜💛💜💛💜💛💜
Thank you
https://petition.parliament.uk/petitions/582557

We ask the Government to significantly increase targeted research funding for Multiple System Atrophy (MSA). MSA is a rare progressive neurodegenerative disorder, it is vital for increased clinical research to take place. This would lead to increased hope and support for those battling MSA.