Sean vs. Donington Disease

21/07/2022

Donington Disease Newsflash! 👨‍🔬💉

I just went to see a new neurologist today and the good news is... there is no freakin' good news!! Just kidding folks, after a pleasant long chat and thorough neuro exam with this doctor, I'm glad to say I'll be getting a SPECT scan of my brain to help look for signs of ongoing inflammation and autoimmune issues that I suspect could have been causing my worsening neurological symptoms over the years. Stay tuned folks, we may finally have some answers!

Donington Disease shall be defeated! ☠️

06/03/2022

Hi FB Followers! 🤚

I thought I'd share this with all of you. This is Sophie McGuire, a 21 year old girl from Scotland who, like myself, has mild autism and is being wrongly detained in an NHS mental health ward, under the 1983 Mental Health Act. Sophie is a bright young individual who should not be there and has many complex chronic and life-limiting health conditions that are not being addressed and are desparate need of treatment, so she can go back to living her life again.

Sophie's mum is not allowed to see her, or any staff directly involved in her care and she recently had her phone, laptop and tablet confiscated for trying to contact her mum. I've actually seen the messages too which were heartbreaking to read. 😢

You are welcome to read all about this story and learn for yourselves this horrific situation that Sophie, her family and those who support her are having to face everyday. I've signed the petition anyway, they have my support and I wish them all the best getting Sophie out of that NHS prison and back with her family. ❤️

(photo : autistic Sophie McGuire at the Viking Village in Reykjavik, February 2019. Her mum Lynn took Sophie on holidays to London, Paris, Copenhagen, Niagara Falls, New York and Iceland. They went to the Canaries every Christmas and to Turkey every spring. She used her savings to give Sophie some g...

01/03/2022

Donington Disease Newsflash! 👨‍🔬💉

I'm just back from seeing a cardiologist and apparently I have a leaking heart valve now. The doctor claimed this was "normal" and nothing to worry about. Though I reckon this could be the result of all the abnormal and erratic beats my heart has been doing all these years, which were not ever investigated prior to my heart murmur just being recently found.

I might get the ball rolling with my e-petition again.

Donington Disease shall be defeated! ☠️

27/02/2022

To any chronically ill patients who have been treated badly by the UK's healthcare system, please sign this petition, it's not getting enough signatures. Medical gaslighting is abuse towards vulnerable patients who don't have the energy to defend themselves. It goes against everything the NHS and medical profession is meant to stand for, and it needs to be stopped. Sick lives matter! ✊

The NHS is failing patients with complex, chronic conditions of the body like Myalgic Encephalomyelitis, aka Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia, Lyme Disease, Ehlers-Danlos Syndromes (EDS), Mast Cell Activation Syndrome (MCAS), Postural Orthostatic Tachycardia Syndrome (POTS), Complex R...

26/02/2022

I'd like to ask everyone to continue signing and sharing this petition if you haven't done so already. I continue to deteriorate with my worsening brain condition and must find a way to treat it ASAP. Members of the health profession must listen and take meaningful action. Thank you for your continued support, lets kick Donington Disease's ass and defeat the curse! ☠️

I am Sean McQueen, I'm currently 27 years old and from Glasgow, Scotland in the UK. I am writing this petition to call on health professionals and research groups to help get to the bottom of an unresolved medical case of mine, which is falling through the cracks in the UK's medical system. Since 20...

07/02/2022

Donnington Disease Newsflash! 👨‍🔬💉

After over 4 years of heart arrhythmias including my sudden SVT attacks, PVCs and bigeminy episodes, a GP has finally found a suspected heart murmur, so I'll be getting refered to a cardiologist and will be given a 24-hour heart monitor. The doctor didn't seem as much concerned about all the abnormal beats my heart was making during the appointment, since they are not considered life threatening, but expressed that the other strange noises my heart was making were worrysome from a doctor's point of view.

I have to say, It's such a relief for me to hear that a doctor finally found something abnormal just with simple routine examination after all these years. Hopefully this year, I'll make some progress getting to the bottom of the real issues causing them.

Death to Donington Disease! ☠️

29/01/2022

Please sign and share this petition. Depersonalization desparately needs more research and attention from the medical world.

"People who have depersonalization-derealization disorder feel disconnected from their mind or body ( ) or their surroundings ( ). These sensations cause chronic anxiety and depression to sufferers, which inevitably disrupt every aspect of their lives."

Additional information --->
The Initiative for Depersonalization Studies (IDS), a non-profit foundation dedicated to continuing education, research, and media coverage concerning Depersonalization/Derealization Disorder ---> https://depersonalization.info

https://www.change.org/p/national-alliance-on-mental-illness-raise-awareness-of-a-mental-health-condition-known-as-depersonalization-derealization?utm_content=cl_sharecopy_31266971_en-US%3A3&recruiter=324688724&recruited_by_id=a11238b0-17ba-11e5-b49e-bb948ee0e853&utm_source=share_petition&utm_medium=copylink&utm_campaign=psf_combo_share_initial&utm_term=15140336107_&fbclid=IwAR3bDH4kMMpFJaUggGNbhxhCO2IgAKrLUGnSJxHCEzxA4tKs5o1w1me443g

Depersonalization disorder affects 2% of the world population. More research is needed.

28/01/2022

Follow my Donington Disease campaign on Twitter! 📲

https://twitter.com/DownloadDisease

Sean McQueen's online campaign to raise public awareness as well as find a diagnosis and treatment for a mysterious progressive neurological illness.

25/01/2022

Donnington Disease Newsflash! 👨‍🔬💉

I recieved a letter from NHS Greater Glasgow & Clyde, expressing how sorry they were to hear about my current situation with my health. It now looks like I'll be going to a meeting with some of my previous doctors to discuss my situation further.

Here are the main issues going to be raised:

1 - I have had an undiagnosed condition for 5 and a half years which I continue to deteriorate with.

2 - A neurologist (private) has diagnosed an illness of organic cause and disagrees with previous NHS doctors that it was FND.

3 - I have been diagnosed with post-viral fatigue several times by doctors over the years, rather than be further investigated.

4 - I may have an autoimmune condition of the brain.

5 - I am seeking definitive answers, an action plan for diagnosis/treatment and help from research groups.

I'm not building my hopes up too much that anything positive will come at this stage, but at least I got some people in the health profession to listen and take some further action to address my concerns. It's one step in the right direction at least. When there's any further developments with this, I'll let you all know.

Stay tuned! 😀

25/01/2022

Keep signing and sharing my petition! 📝😀

I am Sean McQueen, I'm currently 27 years old and from Glasgow, Scotland in the UK. I am writing this petition to call on health professionals and research groups to help get to the bottom of an unresolved medical case of mine, which is falling through the cracks in the UK's medical system. Since 20...