06/02/2026
For Feeding Tube Awareness Week, Mum Leanne has kindly shared her daughter Ava's story.
“Ava is a happy, kind, little soul. She loves animals, especially cats and her two German Shepherds, and would like to be a veterinary nurse when she’s older. She loves mixing with her friends and family, as well as doing arts and crafts.
“Ava was born with a condition called duodenal atresia, which means her duodenum - the first part of the small intestine which helps process the contents of the stomach - wasn’t quite working.
“The tubes coming off her stomach were stitched together, and she required an operation at four days old to clear all the blockages.
“She got by with that surgery until nine or ten years old, after which she started having more issues – it was like it was all slowly knitting itself back together. Extra bits were stuck down and glued that were stopping food getting through to be processed in the stomach.
“A test showed that it was all stitched together again and she would need a major surgery at the end of 2025, which was 12 hours long. She was in hospital for three weeks to let the scar heal and the stomach wake up again.
“She had a good few meals and got home, but a few weeks later she would feel full and then vomit after just a few forkfuls of rice.
“We came back into hospital, and it was then that a nasogastric feeding tube was put in, with feeds at breakfast, lunch, dinner and overnight. I’ve now had training to process the feeds, check the pH balances and ensure the tube is still in the stomach.
“Ava lost about 9lbs from those few weeks she was home and not managing food, now we’re at the point where she is gaining weight and now trying small mouthfuls while on the feeding tube. It is so helpful in a situation like this.
“The staff have all been amazing, they were in every hour for weeks on end. It’s like a family here on Ward 3B. There’s also the MediCinema, and Wendy from the Play Team. Ava is like her little shadow.
“When Ava gets home, she’ll have a little backpack that connects her tube, and that’s a huge help. She’s interested in learning how to do things for herself, which she’ll need to do at school at lunchtime. It doesn’t take away her independence; in fact it gives her more.”