26/03/2026
🟣 Today is Purple Day - a day dedicated to raising awareness of epilepsy.
Skye, 13, has been an epilepsy warrior all her life, and is treated by the fantastic teams at the Royal Hospital for Children, Glasgow.
Her Mum, Lynn, told us: "Skye has a rare condition called Tuberous Sclerosis, where growths can grow in any organ of the body. Her brain is covered in the growths and these are what cause her seizures.
"She took her first seizure at four months old and has had a range of different kinds of seizures over the years. Right now, her seizures are sleep seizures. She has seizures every night, and unfortunately hasn’t been seizure-free in 14 years. A bad night could mean over 20 in one night.
"Skye has tried many medications and trials. She is such a trooper, and goes through so much with her condition: lots of hospital appointments, MRI scans, and EEGs. Music is her main interest - she’s non verbal, but can sing! She also loves her Disney movies so much.
"We have been under the care of neurologist Dr Zuberi and epilepsy nurse Margaret Wilson, now Courtney is our epilepsy nurse. The support we’ve had over the years has been above and beyond. Margaret would make house calls to drop meds off if we needed them I could call at any time.
"If Skye is in hospital for any reason they'll see her - they have been like family to us over the years . The hospital itself has been amazing, saving her life on many occasions during seizures, on one occasion when she stopped eating the hospital were amazing then too. She also gets kidney scans, abdominal scans, gets her eyes checked. Plus input from the dermatologist, plastics team and even the dentist in the hospital. Never could I say anything negative about any of them.
"I am always raising awareness for Epilepsy, Autism, and Tuberous Sclerosis as it’s important to us as a family. A few years ago I actually collected a thousand bells for the kids to ring for Santa at Xmas which was special.
"Epilepsy is a massive part of our lives, and we live with it every single day, but we keep going and Skye makes that easier as she takes it all so well. She is my hero, and the hospital epilepsy team is just incredible! 💜"
