30/12/2025
Mum Ashley is delighted to celebrate Christmas at home with her son Joey this year, after the creation of his stoma that has changed his life.
Joey, now eight, has been a patient of the Royal Hospital for Children since birth, with many different hospital teams involved in his care.
Ashley has kindly shared their story for the festive season.
“Joey was born with the conditions Pierre Robin Sequence and Stickler Syndrome. He was transferred to Glasgow, and was on oxygen, NG-fed, and given an NPA airway.
“When Joey was five months old, they put a peg into him and he still wasn’t progressing. At around 13 months, he had his jaw surgery to bring the jaw forward to make the airway wider.
“He’d been aspirating all his feeds and needed his stomach tied shut. His cleft palate needed repaired, which took two attempts.
“During this time, he had a look of problems with his bowels which were hard to get to the bottom of. We were in and out of theatre quite a lot.
“Joey had a stoma formed in September 2024, then had a prolapse of the bowel in January. He was rushed in for emergency surgery and needed 40cm removed from the bowel. He woke up from that and was fine – everyone was amazed!
“All the procedures and operations he’s had have helped him, but the stoma has changed his life.
“We have benefited from Glasgow Children's Hospital Charity and other organisations. He’s been to the MediCinema, met the Celtic team and all the characters, and the Clown Doctors too. That all makes our stays much easier.
“Louise Paterson, Stoma Clinical Nurse Specialist, has been a huge help to me. She’s brilliant, and made it all so much easier. The cleft team were also amazing, so a huge thank you to them as well as the gastro and surgical teams.
“If it wasn’t for everyone at the hospital, he wouldn’t be as healthy as he is now. This is the first Christmas he’s able to really be a wean. Recently, we’ve only been in twice – both times just for bugs, which is totally normal. He has loads of energy and is running around like a wee boy should, and it’s going to be so special.”