Spina Bifida Hydrocephalus Scotland

Spina Bifida Hydrocephalus Scotland The only Scottish charity dedicated to supporting all those affected by spina bifida and/or hydrocephalus and related conditions.

No matter why you need to get in touch with SBH Scotland, we will be with you on your own personal journey, offering tailored advice, support and information. We also offer a variety of groups, training and projects throughout the year. This service is available for those with the condition(s), family members, carers, educational, health and social care professionals. SBH Scotland has a Family Support Centre based in the central belt of Scotland where many of our Direct SErvices Team are based. Further support staff work in a variety of locations across Scotland.

21/11/2025

"I was used to hiding it. I hid it ever since I was a child. I hid the scar on my back, hid the fact I had spina bifida."

This is Gillian's story.

Over the course of her career working for the NHS in clinical neurophysiology, Gillian Horsburgh became more curious about spina bifida, the condition she was born with. With the support and understanding of colleagues, she had the opportunity to learn more about spina bifida and how it affected her.

Over the past year, Gillian has been involved with SBH Scotland's 'Ageing with Reslience' project and through this, she has found a community of other people navigating the same conditions.

"I've never met people who were the same as me before," says Gillian.

"When we all met for the first time, it was really emotional. So I feel like we've got a wee support group now." 💜

We are celebrating today!On this special day, let's celebrate the amazing children we support who inspire us everyday ...
20/11/2025

We are celebrating today!

On this special day, let's celebrate the amazing children we support who inspire us everyday with their determination, resilience and unstoppable nature! 💜

Our Family Groups and outings provide a safe space where children can be themselves. Where they can come together and connect through the joy of play.

By supporting SBH Scotland, you play an integral part in providing these important moments of fun, connection and belonging. 🌟

Together we are unstoppable. 🤝

✨ Yesterday we were honoured to welcome not just one, but several incredible guests who are deeply connected to our root...
19/11/2025

✨ Yesterday we were honoured to welcome not just one, but several incredible guests who are deeply connected to our roots to our Family Support Centre! ✨

Among them were Mae Whiteford, one of our founders, and her daughter Margo Whiteford CBE, our amazing Chairperson. Joining them were Jon, son of fellow founder Elsie Wilson, and his friend Suzanne.

This inspiring trio—Mae, Jon, and Suzanne—have gone above and beyond this year, taking on incredible challenges like zip-sliding across the Clyde, a race across Scotland, and even hosting a Captain’s Dinner at Comrie Golf Club. ⭐

Thanks to their dedication and energy, they have raised an incredible £9,237 for SBH Scotland! 👏

We loved catching up with them, hearing stories from their childhood, and learning more about why our charity was started all those years ago. Their passion reminds us of the courage it took for Mae and Elsie to begin this journey—and why we’re committed to carrying it forward for the next 60 years and beyond. 💜

Thank you, Mae, Elsie, Margo, Jon, Suzanne, and everyone who continues to make a difference. Together, we’re building a legacy of hope and support.

Together, we are unstoppable! 💫



Join us for a Pain Management Workshop! 💻This online workshop will take place on Wednesday 26th November at 2pm is open ...
14/11/2025

Join us for a Pain Management Workshop! 💻

This online workshop will take place on Wednesday 26th November at 2pm is open to all adult members and carers over the age of 18.

The session will be held by Catherine Bolt, a Clinical Nurse Specialist with Pain Management Services at the Aberdeen Royal Infirmary.

The session will last approximately one hour and participants will be sent a Microsoft Teams link prior to the session.

Sign up now: 🔗
https://forms.office.com/pages/responsepage.aspx?id=9_DNSrDdBU-cvc7IH5OoFP27dddY6KZOu8jNYs_a7ONUNlZVQTI5QzdaODg5NVBMUTFZQ0ZKRDZINS4u&route=shorturl

13/11/2025

✨ to everyone involved in the Captain's Dinner at Comrie Golf Club!✨

What an incredible evening! 🎉

Thanks to everyone’s generosity, the Captain’s Dinner on Friday 7th November has raised over £1,000 for Spina Bifida Hydrocephalus Scotland—a charity close to their hearts, co-founded 60 years ago by Captain Jon’s mum. 💜

A huge shout-out to Bill and Lilias for their hard work and to all who attended and supported this amazing cause.

Together, we are unstoppable! 🙌

We’re delighted to share some brilliant news — SBH Scotland’s project “Stronger Together: Living Well with Spina Bifida ...
12/11/2025

We’re delighted to share some brilliant news — SBH Scotland’s project “Stronger Together: Living Well with Spina Bifida and Hydrocephalus” has been shortlisted for the next stage of LNER’s Customer & Community Investment Fund (CCIF)!

If successful, this £9,604 grant will help with the delivery of monthly peer meetups, outings, and wellbeing activities for adults living with spina bifida and hydrocephalus across Edinburgh and Stirling in 2026, tackling loneliness, promoting confidence, and bringing our community together.

Now we need your help to secure votes!

LNER is asking colleagues, partners, and the public to vote for shortlisted projects. Every single vote counts — please take 2 minutes to support our project and share the link with your networks.

👉 Vote here: LNER CCIF https://surveys.perspectusglobal.com/?&id=baa0346e5b&id2=6575f969&lng=en-GB

🗓️ Deadline: 11:59pm on Friday 21 November 2025

How to vote:
1. Open the LNER CCIF Survey link.
2. When asked “Which initiative should we support?”, select Better for People.
3. Then scroll down and click on “SBH Scotland – Stronger Together: Living Well with Spina Bifida and Hydrocephalus.”
4. Submit your vote and choose 2 other charities for Environment and Places initiative at random — and that’s it! ✅

Please share the survey link with your friends, family, and networks. The more people who vote, the better our chances of success!

Thank you for your support - Together we are Unstoppable!

💛 Good Luck Team McArthur Scott !!💛This Sunday, the amazing McArthur Scott crew (plus a few wagging tails 🐾) are lacing...
11/11/2025

💛 Good Luck Team McArthur Scott !!💛

This Sunday, the amazing McArthur Scott crew (plus a few wagging tails 🐾) are lacing up their walking shoes for a special journey — from their Gourock office to Lunderston Bay — all in support of SBH Scotland (Spina Bifida Hydrocephalus Scotland)

This walk means the world to them, especially as they walk alongside their teammate Chris Heaton and his incredible son Jack (their wee superhero 💛🦸‍♂️)

SBH Scotland has been a lifeline for Jack and so many others, offering care, guidance, and community from day one.

Let’s cheer them on as they walk to give back to our charity that’s been there every step of the way. Every donation helps SBH Scotland continue their life-changing work for families across Scotland — and trust us, it makes a huge difference.

📣 Go Team! You’ve got this — one step at a time!

If you would like to donate to their amazing fundraising challenge you can do so here https://www.justgiving.com/page/mcarthur-scott-1

🎉 Want to WIN a big cash prize every month AND make a real difference across Scotland? 🎉Join the SBH Scotland's 2nd 200 ...
10/11/2025

🎉 Want to WIN a big cash prize every month AND make a real difference across Scotland? 🎉

Join the SBH Scotland's 2nd 200 Club today and help support children, adults, and families affected by spina bifida and hydrocephalus across the country 💙

Here’s how it works:
➡️ You pay £10/month via direct debit
➡️ 50% goes directly to SBH Scotland’s vital support services
➡️ 50% goes into the prize pot for one lucky winner
➡️ The winner is drawn on the last Wednesday of each month using a digital random number generator
➡️ You can buy as many numbers as you like – more numbers = more chances to win! 🎯

Every entry helps SBH Scotland provide life-changing support, advice, and care to those who need it most. 💪

👉 Sign up and read the full terms here: https://www.sbhscotland.org.uk/200/

We were delighted to meet Jude, Theo, dad Greg and Gramps David at the Falkirk Wheel where they presented Spina Bifida H...
09/11/2025

We were delighted to meet Jude, Theo, dad Greg and Gramps David at the Falkirk Wheel where they presented Spina Bifida Hydrocephalus Scotland with an incredible cheque for £5942.50.

Greg, David, Alan, Willie and the rest of the team took on the 3 Peaks Challenge in the Summer.

They absolutely smashed their target of £2500! ⛰️

Thank you to Greg, David, Alan, Willie and the rest of the team for being Unstoppable in their challenge and giving people with Spina Bifida and or Hydrocephalus the chance to feel unstoppable too! 💪

07/11/2025

To celebrate Trustees week, we would like to say a huge thank you to all of our Trustees for making people feel Unstoppable.

Their insight, lived experience, expertise, compassion and drive to make a difference in the lives of people affected by Spina Bifida and/or Hydrocephalus is truly incredible.

Doug Ross, who has been a Trustee since February, brings 35 years of experience of working with people with a disability and the lived experience of having Spina Bifida. Doug wanted to share his story to raise awareness about Spina Bifida and Hydrocephalus:

"As I've got older I've realised that sometimes it's not all about the big things, it is the little things that can make a difference to someone"

🗣This is Doug's Story:

🎉 Exciting Partnership Announcement! 🎉We’re thrilled to share that Mortonhall Golf Club in Edinburgh has chosen Spina B...
07/11/2025

🎉 Exciting Partnership Announcement! 🎉

We’re thrilled to share that Mortonhall Golf Club in Edinburgh has chosen Spina Bifida Hydrocephalus Scotland (SBH Scotland) as their new charity partner! 🏌️‍♂️💙

New Club Manager Jamie Wales shared:
“Mortonhall Golf Club is proud to be associated with SBH Scotland and we hope to make a meaningful contribution to such a great cause that children and families can benefit from, across the country.”

Together, we’re teeing up for a future filled with support, awareness, and positive impact for those living with spina bifida and hydrocephalus across Scotland. ⛳️✨

Stay tuned for upcoming events and ways to get involved!






Address

6 Craighalbert Way
Glasgow
G680LS

Opening Hours

Monday 10am - 4pm
Tuesday 10am - 4pm
Wednesday 10am - 4pm
Thursday 10am - 4pm
Friday 10am - 4pm

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SBH Scotland - Our Story

No matter why you need to get in touch with SBH Scotland, we will be with you on your own personal journey, offering tailored advice, support and information. We also offer a variety of groups, training and projects throughout the year. This service is available for those with the condition(s), family members, carers, educational, health and social care professionals. SBH Scotland has a Family Support Centre based in the central belt of Scotland where many of our Direct Services Team are based. Further support staff work in a variety of locations across Scotland.