Parkinsons SHFT

Parkinsons SHFT This page is purely for the use of sharing information relating to the PD service at Southern Health NHS Foundation Trust.

We are unable to provide care and advice via this page, if you have a query about your care please contact the team on 023 9268 1067

Let's get moving!  Parkinson's UK have a great range to help you get out and about for your socially distanced daily exe...
26/06/2020

Let's get moving!

Parkinson's UK have a great range to help you get out and about for your socially distanced daily exercise. From car accessories, to rollators, folding walkers to a roll up ramp and scooters, there is something for everyone.

The official RADAR key, Parkinson's UK branded face coverings and useful portable urinal and hygiene key mean that you'll be able to keep comfortable.

When you purchase from the Parkinson's UK shop, you help deliver critical support during this coronavirus crisis.

Shop the collection

04/06/2020

Getting the most from a phone or video appointment

Many health professionals and services are now offering phone and video calls for your appointments.

If you have Parkinson’s and you’re new to phone or video appointments, this article gives tips and advice on how best to prepare for and get the most out of them.

Why phone and video?

Phone and video appointments are now offered as standard because of social distancing. It means you can speak to your health professional from home without needing to travel to see them.

Technology means that it’s now easier to connect this way. If you’ve arranged a video call it’s likely you’ll speak to a health professional through a platform similar to Skype or FaceTime. The NHS regularly uses Attend Anywhere. Your service should send you instructions on how to download or use it.
They’ve all been designed to be easy to use, and are safe and secure.

How do I get started with a video appointment?

You’ll need:
• a charged up computer, tablet or smartphone with a camera
• a quiet place where you feel comfortable discussing your health
• a good internet connection

Before your appointment

Your health professional will email you or send you a letter with your appointment time and any information you need. They should let you know whether a phone or video call is most appropriate. Let them know if you’re not able to do a video call.

To prepare for the appointment:

• If they offer you a video call, make sure you have the correct app downloaded. Have a go at connecting and seeing how it works.
• Make a list of questions or issues you’d like to discuss. Try to make your questions as concise as possible - this will help you manage the time you have with them.
• Have a list ready of the medication you take.
• Find somewhere comfortable and quiet where you can talk. It’s best to make sure you can focus on the call and that you’re not disturbed.
• Make sure you’re ready by your phone or device when your appointment is due, so you’re not rushing to set everything up.
• If you’re on a video call, try to find a space that’s well-lit so you can both see each other properly. This will make it feel more like an everyday conversation.
• If your symptoms mean you find it difficult holding a mobile phone or tablet, place it on a fixed surface, or prop it up.
• If you have a partner or carer and you’d like them to be involved, you can use the loud speaker function on your phone, or have them with you on the screen on the video call.

During the appointment

Even though it might feel unusual at first, try and treat a phone or video appointment just as you would a face-to-face appointment.

• The health professional may ask you to confirm your date of birth or address.
• If you need to talk about or explain a visible symptom, you can try to use the screen to show them.
• During a video call if someone’s internet connection isn’t great, the screen might freeze or jump. This is normal, but if it happens a lot or disrupts the appointment then they might arrange to phone you instead.
• If you don’t understand or hear something properly, ask the person to repeat what they’ve said.
• A record of the conversation will be kept, but you may find it helpful to note down what is discussed.

If you need a follow up appointment or prescription then they’ll discuss that with you then and give you the information you need. Ask them any questions before you end the conversation.

Please find a link to Parkinson's UK Coronavirus 'Your Questions Answered' which you may find useful.
28/05/2020

Please find a link to Parkinson's UK Coronavirus 'Your Questions Answered' which you may find useful.

We’ve put together this information on Parkinson’s and coronavirus to support you and help you cope during the crisis. Inside you’ll find information about staying safe, healthy, active and connected, including practical information and tips. And you can find out about different ways to get su...

21/05/2020
21/05/2020

We’ve all seen coronavirus (or COVID-19) in the headlines. Our top priority is supporting people living with Parkinson’s. That’s why we’ve gathered the facts and guidance to help answer some of your most common questions about coronavirus and Parkinson’s.

11/05/2020
07/05/2020

Can you help increase our understanding of the impact of coronavirus and the lockdown on our mental health?

Researchers are asking people to complete a short, 15 minute questionnaire about the impact coronavirus has had on their lives.

They will use this information to support our understanding of how our mental health and wellbeing may be being affected by the pandemic but also what may be helpful for people.

Can you spare 15 minutes to help?

Click on the link to the questionnaire for more information:

Qualtrics sophisticated online survey software solutions make creating online surveys easy. Learn more about Research Suite and get a free account today.

Download a free e-book with information about Parkinson’s to help you anticipate and navigate life with the disease.
05/05/2020

Download a free e-book with information about Parkinson’s to help you anticipate and navigate life with the disease.

Every person diagnosed with Parkinson's disease (PD) embarks on a unique journey. There is no standard path, and for many, this proves to be among the most challenging aspects of the disease. The Michael J. Fox Foundation developed Parkinson's 360 to help anyone whose life has been touched by Parkin...

05/05/2020

Hello everyone, we hope you are all okay in these difficult times.

We would like to remind you that we will get back to you if you email or phone us, it may take a little longer than usual but we are still here to help you.

Stay safe,
Chris & Amber

A reminder of our contact details are:

Telephone: 023 9268 1067
Email: SHFT.PDNs-SE-Hants@nhs.net

We will occasionally share things on here that we feel you may find useful but dont forget there is a vast amount of use...
05/05/2020

We will occasionally share things on here that we feel you may find useful but dont forget there is a vast amount of useful information for you on the Parkinsons UK website.

Why dont you have a look?

Read real-life stories and interviews, tips from our readers, experts and professionals, and features on what's been happening in the Parkinson's community.

04/05/2020
Parkinson’s UK has a range of information and support to help during this challenging time. The Parkinson’s UK free and ...
04/05/2020

Parkinson’s UK has a range of information and support to help during this challenging time.

The Parkinson’s UK free and confidential helpline is contactable on 0808 800 0303. Monday-Friday from 9am-7pm and Saturdays 10am-2pm.

Parkinson’s UK has gathered facts and guidance about coronavirus and Parkinson’s at

www.parkinsons.org.uk/coronavirus

While you can’t be in face to face contact, you can still keep connected with people through phone calls, online forums and social media. To talk to other people living with Parkinson’s, and their family members and friends, you might want to join the Parkinson’s UK online forum at

forum.parkinsons.org.uk

Or the Parkinson's Facebook community group at

www.facebook.com/groups/parkinsonsukcommunitygroup.

We’ve all seen coronavirus (or COVID-19) in the headlines. Our priority remains supporting people living with Parkinson’s. That’s why we’ve gathered the facts and guidance to help answer some of your most common questions about coronavirus and Parkinson’s.

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