Multiple Sclerosis SHFT

14/05/2021

So proud of the MS team, we understand that service has changed for our service users, however we are pleased to say face to face clinics have now resumed and growing. Please let us know if you would prefer virtual or face to face when you have your appointment. Thank you for being patient. Take care

10/05/2021

07/04/2021

MS-STAT2 trial

The trial is now in the final push for recruitment, aiming to reach a target of around 1000 patients nationally before recruitment closes in the summer.

As a reminder, this is a phase 3 randomised control trial aiming to establish whether repurposed simvastatin can slow disability progression in SPMS. The key inclusion criteria are:

• 25-65 years old
• SPMS
• Not on DMT
• Not on statin within last 6 months
• Ambulatory with 2 sticks/frame at worst

Please get in touch if you want to be a part of this!

24/03/2021

https://www.facebook.com/GosportFarehamMS/

12:45 Monday through zoom we have a 60 mins video mat based Pilates class
14:00 Monday through zoom we have a 40 mins video seated Pilates class

11:00 Tuesday general chat through zoom

11:00 Wednesday seated Zumba gold for 60 mins through zoom followed by a chat

11:00 Friday move and stretch to music for 60 mins through zoom followed by a chat

We are a group of volunteers supporting people affected by MS in the Gosport and Fareham area

12/01/2021

As we all know, people with MS have significantly higher rates of loneliness than healthy adults. Acute or chronic health concerns present barriers for MSers to engage in social connections and maintain social bonds.

The Buddy Network is a peer support project that connects newly diagnosed people with MS with a Buddy, an ‘experienced’ person with MS, to lend a listening ear. We believe that chatting with people like you helps you listen, adapt and take charge. MS doesn't mean giving up on your ambitions, just rethinking how to achieve them.

“The Buddy Network has made my diagnosis easier and I feel less lonely. I know that I am not the only one with the same issues and I can talk about my issues with someone that may have to live with the same issues as I do. Really recommend a Buddy.” - MSer

MSers who took part in the Network reported they feel less empty, they generally have more people around they can turn to for support and that they feel closer to these people and they feel less rejected by others.

If you know someone newly diagnosed people who may benefit from chatting to an experienced person with MS, please do signpost them to our service or get in contact with us at hello@shift.ms

Newly diagnosed with Multiple Sclerosis? Want to chat with others like you? We’ll connect you with another MSer.

21/12/2020

https://italk.org.uk/uploads/media/202021italkserviceoverviewweb.pdf

14/12/2020

https://www.mssociety.org.uk/what-we-do/news/ms-society-medical-advisers-release-consensus-statement-covid-19-vaccines

We asked our medical advisors to answer your questions about what the new coronavirus vaccine means if you're on an MS treatment. This is their consensus statement.

23/11/2020

http://www.langstonesailability.org.uk/

Langstone Sailability - Sailing for the Disabled in South Hampshire, UK

06/11/2020

For Wessex patients only: Please find a link below where patients can register for a Coffee Morning Talk about Siponimod (Mayzent) on November 10th

Online Coffee Morning Talk about Siponimod (Mayzent) for the University Hospital Southampton.

11/09/2020

Secondary Progressive MS patients, we need to recruit 10 patients over September / October for to the MS-STAT2 trial (simvastatin RCT) Study . Visits are conducted remotely after an initial single face-to-face visit.

Key inclusion criteria are:
· 25-65 years old
· SPMS
· Not on DMT
· Ambulatory with 2 sticks/frame at worst

Please call the office if you feel you meet the criteria and would you name put forward for the trial.

09/09/2020

Before the outbreak of COVID-19, people with MS were two to five times more likely to develop depression than the general population and three times more likely to develop anxiety disorders. This figure is projected to increase, with the effects of COVID-19 having a long-term impact on people’s health and wellbeing.

Health-driven peer support is in increased demand during the current pandemic:

• Those living with long-term health conditions are looking for advice
• from peers around general disease management in the face of reduced clinical MS services
• Services are struggling to include users in the delivery of digital health
• information around Covid-19 and so information is generalised and doesn’t cater to the individual

Working with neuropsychologist Jo Johnson, Shift.ms has developed PPE for the Mind, an online training and intervention course, and designed to give participants the tools they need to support their wellbeing and build resilience in their day to day lives.

https://www.youtube.com/playlist?list=PLm0sRroMtds267oPVxXSAR6bJEZ_Vr__f

We're often told to protect ourselves physically, but what about protecting our minds?🧠 In the current uncertain climate, Shift.ms is collaborating with Neur...

07/09/2020

The impact of COVID-19 on multiple sclerosis services: a multiple sclerosis nurse perspective