30/08/2023
Hi Everyone
It's been a while since I posted here. Lots has been going on, we've had the summer holidays and I am so relieved to say I have been able to try to enjoy it this year. It's my eldest daughter's last little bit of time before she starts Secondary School and my baby's last few days before she is off to Nursery full time. There's been collapses, seizures, memory loss, brain fogg, there's been times when I felt like it was all too much.
I've been plodding along with my therapy and have recently started some trauma therapy for PTSD. I don't want to jinx things but i'm on day 4 without seizures or collapses and I am holding onto that little glimmer of hope that maybe, just maybe, I am starting to turn the corner. Usually after a good day, a few real bad days follow so I am just preparing myself in case this happens.
And I remember how far i've come and as my consultant always reminds me, I need to be the tortoise and not the hare. It's a very long, slow process but I am keeping strong, focused and positive.
Hope all those out there with FND who follow me can take some reassurance and comfort in this post in knowing that if you are determined enough brighter days will come. Keep fighting.
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