08/07/2025
Glastonbury has come and gone once again, leaving behind the memories you carry with you for days — or even a lifetime. This photo of Samantha and her husband Edward is from their own Glastonbury trip in 2013. Today, it carries an even deeper meaning.
In 2019, Edward was diagnosed with posterior cortical atrophy, a rare form of dementia that usually begins by affecting a person’s vision. The signs were subtle at first: Edward started struggling to see the buttons on the TV remote and began getting lost in familiar places while driving. That’s when Samantha knew it was time to seek help.
“It sounds a strange thing to say, but we really were relieved when we got the diagnosis. We talked a lot about what the future would look like. It allowed us to plan for the future, like putting Lasting Power of Attorney agreements in place, and getting involved in dementia research.
“Taking part in research helped Edward feel valued. He looked at research as a positive thing he could do to help others. I’m so proud of him for that. He couldn’t have made that decision without an early diagnosis.”
Getting a diagnosis gave them answers and time. With the right support, they were able to return to Glastonbury in 2022 and make more memories together.
But too many people today are still waiting in the dark. Undiagnosed. Unseen. Our campaign calls for faster, fairer access to dementia diagnosis for all — to make these precious moments count.
Sign the petition – make people with dementia seen: https://alzres.uk/unseen-scl
