03/04/2026
April is World Autism Acceptance month.
I always have mixed feelings about this because, whilst it’s obviously vital that the rights of autistic people and the social, economic, health and educational obstacles that they encounter are recognised and highlighted, and that valuable funds are raised, I can’t help feeling that a bit of token social media activism isn’t enough. Without action, understanding, and a genuine, proactive interest in learning how to support autistic people and their families, all the trending hashtags and blue clothes in the world won’t change anything.
With this in mind, I wanted to share some valuable information about Autistic Burnout.
I don’t think there are many people by now who are not aware of Autism, but after 6 years of studying Child Psychology at University, 20 years of working with many neurodivergent children, not one lecturer or professional ever mentioned Autistic Burnout to me. I have now done extensive research, connected with other professionals and taken part in webinars and online chats with researchers and specialists who have a wealth of knowledge and experience. I feel that if I can raise awareness of one thing that could really make a difference this month, it should be this, because the ability to recognise and support a child in Autistic Burnout could save a life.
Dr Dora Raymaker describes autistic burnout as: “A state of pervasive exhaustion, loss of function, increase in autistic traits, and withdrawal from life that results from continuously expending more resources than one has in order to cope with activities and environments ill-suited to one’s abilities and needs”.
A dangerous combination of factors which may affect autistic children, not least the tendency of many to suppress their autistic traits in an attempt to blend into school and society, lead to the likelihood of that child being in a constant state of hyper arousal, which in turn leads to high levels of anxiety and eventually, nervous exhaustion. Throw in the loneliness, low self-esteem, or feelings of inadequacy and/or guilt which many autistic children experience, and over time, this can lead to an overwhelm and shutdown of the mind and body for all but critical functions, a metaphorical ‘hitting a brick wall’.
Sadly, most Autistic people experiencing an Autistic Burnout won’t understand what is happening to them or why, and will go through it with little or no support. It is not yet well understood or well researched- obviously there are many ethical issues with using children in research, especially when you add neurodivergence into the mix, and this all adds to the lack of knowledge and understanding.
Causes.
• Autistic children, especially girls, tend to become so good at ‘masking’, suppressing their autistic traits in an effort to make themselves fit in with the neurotypical world, and trying to please people. Eventually, the immense effort that goes in to trying to disguise their true feelings and struggles just becomes too much. One autistic adult who has experienced multiple Autistic Burnouts over many years describes it as a computer going into safe mode, running on limited function, with all services no longer available (Rose, K, 2018, An Autistic Burnout).
• Change- this can be good change or bad, but it can be just too much for an autistic child to cope with. Autistic Burnout can happen at any time, but tends to be more common at stages of transition such as moving to secondary school. The huge changes in our daily lives and routines over the past year mean that there has never been a more important time for us to recognise the additional pressures and strains on autistic children, and consider the possible consequences.
• Sensory or emotional overload- Many people would not even be aware of the huge daily stress that an autistic child with sensory sensitivity has to endure. Something as simple to the neurotypical world as getting dressed, can become in insurmountable feat when you feel like your clothes are burning your skin. The mental and emotional effort that it takes to cope with the huge sensory input of school all day every day, whilst trying to suppress feelings and behave and learn in a socially acceptable way, is bound to eventually take its toll.
• Demands and expectations- and there are so many. The expectations of school, mainstream secondary in particular, are massive. The expectation to sit still, face the front, “look at me when I’m talking to you”, read aloud, work with a partner, work in a group, manage transitions, deal with a noisy dining hall, people jostling in the corridors, the lights, the smells, and through all of this, autistic children likely to be flooded with anxiety and adrenalin, are often expected to conform and to learn and function on a day-to-day basis. It’s little wonder that parents of autistic children often report an ‘explosion’ once their child returns home from school, known as the ‘Cola effect’. This then feeds into a negative cycle, as school don’t see the problem so the expectations remain, and often, help is harder to access as school report a model, quiet, well behaved, hard-working pupil. On top of this, many schools operate behaviourist systems, where a child may get rewarded for their concentration, working well as a team, or for their excellent attendance. This can invalidate the experience and invisible mental efforts of an autistic child.
• Sleep deprivation and poor nutrition. This is often another one of those negative cycles. Food becomes one area of the child’s life that they can actually control, so avoidant or restrictive eating is common in Autistic Burnout, but this obviously impacts on the child’s strength and energy levels, stress may cause them to have a poor sleeping pattern, despite the fact that they may be exhausted, which in turn can play a big part in contributing to a burnout.
• Loneliness and low self-esteem. This may be due to non-acceptance, a negative self-identity due to feeling like they don’t fit in, or frustration at their neurotypical peers seemingly finding life easy.
This list is not exhaustive. There are many other causes, but these are the most prevalent.
So, what are the signs to look out for?
• School refusal. The most important thing to remember is that school ‘refusal’ in an autistic child in burnout is absolutely not a choice. It is a trauma response. They do not have the physical or mental resources to cope with the demands of school. They are effectively trying to hibernate to keep themselves safe. Their body and mind shuts down all but the most basic functions, and by forcing a child into school believing that they will be fine once they get there, we are not only invalidating their experience, but we also risk making the situation worse.
• Loss of executive functioning abilities. This includes for example, the working memory, decision making, planning, and organisational skills. This may show as a slowing down of thought processes, forgetfulness, brain fog, inability to think clearly, or rigid, narrow thinking.
• Loss of function. This may mean that day-to-day skills that a neurotypical person may take for granted such as getting dressed, going to school or even just getting out of bed, become near impossible.
• Lack of motivation or energy. Autistic Burnout has a similar presentation in some ways to depression, and if not recognised and responded to appropriately, burnout can actually lead to depression. The danger of failing to discriminate between the them according to Rose (2018), is that many people may be wrongly prescribed anti-depressants, referred for therapy or admitted to psychiatric care, when what they really need may simply be major sensory withdrawal or stimulation, rest, and acceptance and understanding.
• Some autistic children in burnout may regress or become more stereotypically ‘autistic’. They may lose their ability to mask or camouflage their autistic traits, or to conform to social expectations. There may be a reduction in verbal language and their ability to communicate.
• Lethargy and chronic exhaustion.
• Extreme overwhelm, and a decrease in ability to communicate or self-regulate.
• Increased sensory sensitivities, and/or increased meltdowns/overload.
• Increased incidents of self-injuring behaviours and/or restrictive or avoidant eating patterns. This could be in an attempt to regain some feeling of control over their lives.
• Intrusive thoughts or suicidal ideation. A study by Dr Kõlves et al (2021), explored suicidal behaviours of autistic people in Denmark. Their findings highlighted that autistic people are at 3 times greater risk of suic*de, or suic*de attempts than the neurotypical population. The reasons for this are multiple, but research suggests that suic*de attempts by autistic individuals during a burnout result from a need to escape from intensely overwhelming feelings that are difficult to understand, to remove themselves from their environment, rather than a wish to die. This emphasises the importance of parents, carers, and professionals being aware of the signs to look out for, and the appropriate response, as failure to do so can have devastating consequences.
Again, this list is not exhaustive, but if you consider these symptoms in a child, or a teenager who is experiencing significant hormonal changes, a growing self-awareness, friendship and social issues, and the ever increasing academic expectations, you can see why this could lead to overwhelm and, eventually total system shutdown.
Recovery.
It is possible to recover from Autistic Burnout, but if the demands don’t stop, the recovery will take longer. Some ways in which we can support recovery include:
• Reducing overall load, taking time out, decompression days, breaks. Even if this means days, weeks or more off school, sometimes withdrawal, with the removal of demands, is the only way to recover from Autistic Burnout.
• Sensory input, or a sensory break. This might mean wrapping the autistic child up in a blanket, shutting the blinds and keeping things as quiet as possible until they are able to build their physical and mental strength up again.
• Trauma informed approaches. The 5 core principles of trauma informed practice are safety, trustworthiness, choice, collaboration and empowerment. These are all vital to aid recovery. By dragging an autistic child in burnout, having a meltdown into school, we are abusing their trust in us, and failing to offer them safety and validation. The child will need to regain a sense of control, and this will be best achieved if they are offered ownership of their own experiences. I’m not suggesting this as an approach to school refusal in general, but it is so important that an Autistic child in burnout is allowed time to rest and recover in their safe place.
• A lot of the work I do is based on Cognitive Behavioral Therapy, and building emotional strength, but this is not recommended as an appropriate response to burnout. A child in Autistic Burnout doesn’t have the physical or mental resources to cope, so pushing them to endure situations which are torturous to them will never build emotional strength or encourage them to ‘push through’ their anxiety. The child’s thoughts and feelings need to be recognised and understood, not challenged or changed.
• Good communication and collaborative work between school and home if possible. Mainstream schools in particular may not be particularly sympathetic due to a lack of knowledge and understanding of Autistic Burnout. Many schools have a strong focus on academic attainment, and teachers are under intense pressure to meet targets and demonstrate pupils’ progress. This is in total contrast with the needs of an autistic child in a constant state of hyper-arousal, for whom demands and expectations must be removed. It seems to be widely accepted without question within our society that “school is best” and “you must go to school to get qualifications and be successful”, but I would strongly recommend a more open-minded approach to education. There are other options to be explored which may be more appropriate, and ultimately, as a lovely lady who presented one of the webinars I attended so rightly pointed out, “What good is a dead child with 8 GCSEs?” (Adkin, T. 2021). Sounds dramatic, but that is the reality, and that sentence really hit home for me.
• One of the most valuable things that can be done to support autistic children, and I think that this applies across the board, not just to those in burnout, is to allow them to ‘act autistic’, feel accepted as autistic, and for schools, services, professionals, and the neurotypical population to embrace neurodivergence and remove the stigma that still surrounds it. It is only by making reasonable adjustments, allowing them to ‘drop their mask’, and removing the pressure on neurodivergent children to feel that they need to function well, fit in, or blend in with their neurotypical peers, that we can be truly inclusive, validate their experiences, and remove the barriers that still exist to our neurodivergent children fulfilling healthy and happy lives.
Autism Acceptance month is not enough. We need an ongoing commitment to Autism Action.