The Pernicious Anaemia Society

The Pernicious Anaemia Society We are a registered charity that exists to provide information, help and support to sufferers of Pernicious Anaemia (PA), including their families and friends.

We also strive to improve current and future diagnosis and treatment of Pernicious Anaemia.

🔴 Understanding Pernicious Anaemia Symptoms 🔴When it comes to Pernicious Anaemia, recognising the symptoms is crucial. H...
12/01/2026

🔴 Understanding Pernicious Anaemia Symptoms 🔴

When it comes to Pernicious Anaemia, recognising the symptoms is crucial. Here's what you need to know:

1. Neurological Focus: PA primarily exhibits neurological and anaemia symptoms. Surprisingly, neurological signs often precede anaemia, so don't dismiss the condition if anaemia isn't immediately evident.

2. Gradual Onset: Symptoms typically develop gradually over the years, leading to potential misinterpretation as signs of ageing or a hectic lifestyle.

3. Varied Severity: Symptoms vary widely in intensity from person to person, with some experiencing numerous indicators while others may have only a few.

4. Overlap with Other Conditions: Many symptoms overlap with those of other illnesses, contributing to delayed diagnosis—a significant challenge for patients.

Consider the following symptoms:
- Numbness, pins and needles, or a burning sensation in the extremities.
- Muscle fatigue, cramping, or restless leg syndrome.
- Unexplained hair loss.
- Persistent headaches.
- Feelings of dizziness or lightheadedness.
- Changes in mood, including irrational anger, behavioural shifts, or signs of depression.
- Gum bleeding or mouth ulcers.
- Unexplained fatigue or exhaustion.
- Intermittent diarrhoea.

Remember, this list isn't exhaustive. If you're experiencing any of these symptoms, it's essential to explore further. Reach out to us to learn more about Pernicious Anaemia and its diverse array of symptoms. Don't hesitate to seek support and information—we are here to support you and your health care professional.

Support our charity by becoming a member or donating regularly. Follow our page for more insights and useful information about PA!








🩸 What is Pernicious Anaemia?Pernicious Anaemia (PA) is an autoimmune disease that prevents the body from absorbing vita...
05/01/2026

🩸 What is Pernicious Anaemia?

Pernicious Anaemia (PA) is an autoimmune disease that prevents the body from absorbing vitamin B12—a vital nutrient needed for healthy red blood cells, nerve function, and brain health.

For over a century, doctors and scientists struggled to understand why patients were dying from what was once a fatal condition. It wasn’t until the 1920s that replacement B12 therapy was discovered, eventually leading to the availability of effective treatment.

🔬 How does PA affect the body?

✅ The stomach normally produces Intrinsic Factor, a protein essential for absorbing vitamin B12.
❌ In PA, the immune system attacks Intrinsic Factor and the stomach lining, making B12 absorption impossible.
⚠️ Without enough B12, red blood cells become misshapen and enlarged, leading to severe fatigue, brain fog, nerve damage, and long-term complications.
🚨 Why is early diagnosis crucial?
🔹 Many cases of PA go undiagnosed or misdiagnosed because symptoms mimic other conditions.
🔹 Some doctors only check B12 levels if anaemia is present, but PA can cause neurological symptoms long before anaemia develops.
🔹 Testing limitations mean that even those with PA might not test positive for the standard Intrinsic Factor Antibody test.

💉 The Lifesaving Treatment
PA can’t be cured, but it can be managed with lifelong B12 replacement therapy (usually injections). However, many patients still struggle to get the right diagnosis and proper treatment.

💡 Want to learn more?
Our webinars cover everything from symptoms to diagnosis and ongoing care—perfect for patients, carers, and professionals.

Explore our webinar recordings and resources in the PAS shop: https://shop.pernicious-anaemia-society.org/

Support our charity by becoming a member or donating, and follow our page for more insights and useful information about PA!

04/01/2026

🛒 When you shop with PAS, you’re doing more than just making a purchase - you’re supporting resources that make a real difference.

Our webinars help you better understand Pernicious Anaemia (PA) by providing expert-led guidance for anyone affected — whether you’re newly diagnosed, a family member, or a healthcare professional. They offer:

✔ In-depth knowledge about PA symptoms, diagnosis, and treatment
✔ Practical advice on managing day-to-day life with PA
✔ The latest updates on research and medical advances
✔ A chance to connect with others who understand the journey
By joining or purchasing access to these webinars, you’re not only gaining valuable insights but also directly supporting PAS’s vital work. Every contribution helps us:
✔ Keep our helpline running to provide personalised support
✔ Fund research into lesser-known symptoms like iron deficiency
✔ Organise more support groups and educational events across the UK and beyond
✔ Advocate for better diagnosis and treatment through national policy change

Plus, you can support us in other ways - by exploring our shop’s range of awareness items and eco-friendly eCards, all designed to help raise funds and spread knowledge.

🎁 So whether you’re learning, gifting, or both, you’re making a real difference for the PA community.

🛍️ Explore our webinars and shop: https://shop.pernicious-anaemia-society.org/

Come join the USA online support group meeting today, 3 January at 1pm US Central Time. The topic for this meeting is:Ho...
03/01/2026

Come join the USA online support group meeting today, 3 January at 1pm US Central Time. The topic for this meeting is:

How GI Clinics Really Work

Our guest speaker works inside a GI practice and will walk us through how decisions, labs, and referrals are handled behind the scenes, plus a basic explanation of stomach physiology and inflammation to help us understand what providers look for.

We’ll follow with Q&A and a chance to share our lived experiences with PA.

To join in, register via the link on your membership homepage.

PAS Support Group Meetings are an excellent way to meet other members of the society, share experiences, learn of how PA has impacted on their lives and how they have developed coping strategies to deal with the ongoing symptoms in a welcoming and friendly environment.

Our online Support Group Meetings are available worldwide; please check what the posted start time will be in your time zone.

https://pernicious-anaemia-society.org/event/usa-online-support-group-meeting/

Come join the USA online support group meeting tomorrow, 3 January at 1pm US Central Time. The topic for this meeting is...
02/01/2026

Come join the USA online support group meeting tomorrow, 3 January at 1pm US Central Time. The topic for this meeting is:

How GI Clinics Really Work

Our guest speaker works inside a GI practice and will walk us through how decisions, labs, and referrals are handled behind the scenes, plus a basic explanation of stomach physiology and inflammation to help us understand what providers look for.

We’ll follow with Q&A and a chance to share our lived experiences with PA.

To join in, register via the link on your membership homepage.

PAS Support Group Meetings are an excellent way to meet other members of the society, share experiences, learn of how PA has impacted on their lives and how they have developed coping strategies to deal with the ongoing symptoms in a welcoming and friendly environment.

Our online Support Group Meetings are available worldwide; please check what the posted start time will be in your time zone.

https://pernicious-anaemia-society.org/event/usa-online-support-group-meeting/

🌟 Your Membership with the Pernicious Anaemia Society! 🌟Annual Membership - £20/year: Unlock a world of ongoing benefits...
02/01/2026

🌟 Your Membership with the Pernicious Anaemia Society! 🌟

Annual Membership - £20/year: Unlock a world of ongoing benefits! After your first year, we make it seamless—your membership renews automatically for just £10 annually. The hassle-free way to stay connected and supported. Cancel anytime in your membership account.

Lifetime Membership - £125: Experience the gold membership journey! Become a cherished Lifetime Member and Supporter of the Society. Your generosity comes with perks—receive an exclusive Welcome Pack, complete with a copy of the former Chairman’s book and unique PAS merchandise. It's a lifetime of connection, support, and gratitude.

✨ Why Join?
🌍 International Representation: We are the sole international charity advocating for Pernicious Anaemia patients.

🧪 Research Advocacy: Your support helps commission and fund crucial research.

🤝 Informed Community: Benefit from a community of knowledgeable members actively contributing to research.

🏥 Healthcare Collaboration: We value healthcare providers and strive to collaborate for enhanced patient quality of life, focusing on improved diagnosis and treatment.

🔗 Join us now, Your support makes a significant impact: https://pernicious-anaemia-society.org/member/

Support our charity by becoming a member or donating, and follow our page for more insights and useful information about PA!








There are several common misconceptions about Pernicious Anaemia (PA) so it is important to be aware of the facts.1️⃣ Pe...
29/12/2025

There are several common misconceptions about Pernicious Anaemia (PA) so it is important to be aware of the facts.

1️⃣ Pernicious Anaemia only affects older people. This is not true. People of all ages, and this includes young children, have been diagnosed with PA.

2️⃣ You can get enough B12 from your diet. PA is an auto-immune disease. If you have PA, no matter what you eat, you cannot absorb sufficient B12 from your food. You will require lifelong vitamin B12 therapy usually through regular injections.

3️⃣ Pernicious Anaemia is not a serious condition. PA is a serious condition and, without the correct treatment it is debilitating and can be life-threatening. If you have been B12 deficient for a long time recovery may also take some time., Neurological symptoms resulting from B12 deficiency may take several months or even years to resolve completely

4️⃣ Once you've had your injection you will be fine. This 'one size fits all' regime is not true. Whilst some people manage perfectly well on 3 monthly injections, others find their symptoms returning long before their next injection is due. The clinical picture is the most important factor in assessing the frequency of treatment and serum blood tests and further testing of B12 levels are not required once Vitamin B12 treatment has commenced.

Support our charity by becoming a member or donating, and follow our page for more insights and useful information about PA!








Come join the USA online support group meeting 3 January at 1pm US Central Time. The topic for this meeting is:How GI Cl...
29/12/2025

Come join the USA online support group meeting 3 January at 1pm US Central Time. The topic for this meeting is:

How GI Clinics Really Work

Our guest speaker works inside a GI practice and will walk us through how decisions, labs, and referrals are handled behind the scenes, plus a basic explanation of stomach physiology and inflammation to help us understand what providers look for.

We’ll follow with Q&A and a chance to share our lived experiences with PA.

To join in, register via the link on your membership homepage.

PAS Support Group Meetings are an excellent way to meet other members of the society, share experiences, learn of how PA has impacted on their lives and how they have developed coping strategies to deal with the ongoing symptoms in a welcoming and friendly environment.

Our online Support Group Meetings are available worldwide; please check what the posted start time will be in your time zone.

https://pernicious-anaemia-society.org/event/usa-online-support-group-meeting/

🩸 Vitamin B12 deficiency isn't just about diet! 🩸 While many associate B12 deficiency with poor nutrition, a significant...
26/12/2025

🩸 Vitamin B12 deficiency isn't just about diet! 🩸 While many associate B12 deficiency with poor nutrition, a significant number of cases are due to non-dietary causes, such as Pernicious Anaemia. This can lead to life-threatening complications if not diagnosed and treated early. Understanding the root cause is crucial.

Join the Pernicious Anaemia Society to support vital research, raise awareness, and ensure that everyone has access to the right information and care.

👉 Head to our website to learn more: https://pernicious-anaemia-society.org/

Support our charity by becoming a member or donating regularly. Follow our page for more insights and useful information about PA!







💥 “20 Years of Education, Research & Support - This Year, Things Change.”For nearly two decades, the Pernicious Anaemia ...
25/12/2025

💥 “20 Years of Education, Research & Support - This Year, Things Change.”

For nearly two decades, the Pernicious Anaemia Society has worked to raise awareness, improve diagnosis, and push for better treatment and understanding of B12 deficiency and Pernicious Anaemia.

Now, as we move into 2026, we’re marking a new chapter.

A year of action.
A year of advocacy.
A year of change.

Because not all superheroes wear capes - some wear B12. 💪

🎥 Hear from Dr. Nicola Ward as she shares why education and research are key to transforming care for people with Pernicious Anaemia.

Together, we can make 2026 the year things change.
🔗 http://pernicious-anaemia-society.org/

At the Pernicious Anaemia Society, everything we do comes back to one core mission:💛 To improve the lives of people livi...
24/12/2025

At the Pernicious Anaemia Society, everything we do comes back to one core mission:

💛 To improve the lives of people living with Pernicious Anaemia through support, education, research, and advocacy.

We know that PA is so often misunderstood. Many of our members spent years searching for answers, being misdiagnosed, or told they were “fine” when they knew they weren’t.

That’s why this community matters so much.

We’re here to change that story - for everyone.

Through our work, we aim to:
- Raise awareness of PA and the seriousness of B12 deficiency
- Support patients and families navigating symptoms, diagnosis, and treatment
- Challenge outdated thinking in clinical settings and push for better training
- Fund research into the symptoms and impacts that are often overlooked
- Create community so no one feels invisible or alone in their experience

Whether it’s a friendly voice on our helpline, an online support group where people finally feel understood, or a personal story that gives someone hope - PAS exists to connect, empower, and uplift.

We are patients, volunteers, researchers, clinicians, and advocates. And together, we’re building something powerful: a future where everyone with PA is diagnosed sooner, treated properly, and supported fully.

Thank you for being here, for sharing your stories, and for supporting our mission - we couldn’t do it without you.

🌐 Learn more about our work and how to get involved:
https://pernicious-anaemia-society.org/aboutus/

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Ipswich
IP11QJ

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