The Pernicious Anaemia Society

The Pernicious Anaemia Society We are a registered charity that exists to provide information, help and support to sufferers of Pernicious Anaemia (PA), including their families and friends.

We also strive to improve current and future diagnosis and treatment of Pernicious Anaemia.

Join us on 19 November for a special online seminar with Julie Wichlin, PAS trustee and founder of the U.S. support grou...
05/11/2025

Join us on 19 November for a special online seminar with Julie Wichlin, PAS trustee and founder of the U.S. support group. After decades of unexplained symptoms and misdiagnoses, Julie was finally diagnosed with Pernicious Anemia in 2021.

In this session, she’ll share:

• What it’s like to live under a cloud of mystery symptoms for years
• Observations on how PA is diagnosed and treated in the U.S. — and how it compares with experiences in the UK and elsewhere
• The common obstacles patients face: outdated tests, inconsistent access to injections, and a system that often dismisses multisystem symptoms
• How community support and advocacy turned frustration into action
• Why the patient voice matters — from personal journeys to global awareness

The seminar will be held online at 6:30 – 8:00pm GMT; please adjust time according to your time zone.

You can purchase a ticket to the webinar at https://shop.pernicious-anaemia-society.org/product/breaking-the-silence-building-community-living-with-pernicious-anemia-and-advocacy-in-the-u-s/

🧔 Movember: Raising Awareness for Men's Health 🧔November isn't just about growing a moustache - it's about growing aware...
04/11/2025

🧔 Movember: Raising Awareness for Men's Health 🧔

November isn't just about growing a moustache - it's about growing awareness.

Movember shines a spotlight on men's health issues, including prostate cancer, testicular cancer, and mental health. But there's another condition that often goes unnoticed: Pernicious Anaemia (PA).

🔍 Why It Matters:
PA is an autoimmune condition that affects how your body absorbs vitamin B12, leading to a range of symptoms such as fatigue, nerve damage, and cognitive issues. It's crucial to recognise that symptoms can persist even when blood serum levels appear normal.

💡 Key Takeaway:
Men, especially those over 50, should be vigilant about their health. If you're experiencing unexplained fatigue, memory issues, or mood changes, don't dismiss them as just part of aging. These could be signs of PA or other health concerns.

🩺 What You Can Do:

Get Screened: Regular check-ups can help detect underlying issues early.
Know the Symptoms: Familiarise yourself with the signs of PA and discuss them with your healthcare provider.

Advocate for Yourself: If you feel something isn't right, seek a second opinion or request specific tests.

This Movember, let's not only grow our moustaches but also our understanding of men's health. For more information on PA and how to manage it, visit our website: https://pernicious-anaemia-society.org/

Carrie-Anne is fundraising for Pernicious Anaemia Society, and she would really appreciate your support. Read her story ...
04/11/2025

Carrie-Anne is fundraising for Pernicious Anaemia Society, and she would really appreciate your support. Read her story on her JustGiving page as to why she wants to meet her target.

Carrie has worked hard at raising funds for our small charity as it is very close to her heart after being diagnosed with PA in her 20's.

Carrie's efforts have been amazing so far and it would be great if you could help push her over the final target line. She is involved in the wider B12 deficiency community being a supporter of PAS and B12Deficiency charities.

Donating through JustGiving is simple, fast and totally secure. Once you donate, they'll send your money directly to her fund within the Pernicious Anaemia Society, so it's the most efficient way to give — saving time and cutting costs for the charity. Carrie ultimately has a say in what the fund is spent on so you can be sure you are supporting her passion directly.

https://www.justgiving.com/page/carrie-carr-2?utm_medium=FR&utm_source=EM

There are several common misconceptions about Pernicious Anaemia (PA) so it is important to be aware of the facts.1️⃣ Pe...
03/11/2025

There are several common misconceptions about Pernicious Anaemia (PA) so it is important to be aware of the facts.

1️⃣ Pernicious Anaemia only affects older people. This is not true. People of all ages, and this includes young children, have been diagnosed with PA.

2️⃣ You can get enough B12 from your diet. PA is an auto-immune disease. If you have PA, no matter what you eat, you cannot absorb sufficient B12 from your food. You will require lifelong vitamin B12 therapy usually through regular injections.

3️⃣ Pernicious Anaemia is not a serious condition. PA is a serious condition and, without the correct treatment it is debilitating and can be life-threatening. If you have been B12 deficient for a long time recovery may also take some time., Neurological symptoms resulting from B12 deficiency may take several months or even years to resolve completely

4️⃣ Once you've had your injection you will be fine. This 'one size fits all' regime is not true. Whilst some people manage perfectly well on 3 monthly injections, others find their symptoms returning long before their next injection is due. The clinical picture is the most important factor in assessing the frequency of treatment and serum blood tests and further testing of B12 levels are not required once Vitamin B12 treatment has commenced.

Support our charity by becoming a member or donating, and follow our page for more insights and useful information about PA!








It’s ! The time of year when we celebrate the amazing contribution made by trustees for their charities and recognise t...
03/11/2025

It’s ! The time of year when we celebrate the amazing contribution made by trustees for their charities and recognise the difference they make. You can find out about this week’s range of events and access free guidance and resources at http://www.trusteesweek.org/

Trustees’ Week is a time for us to come together to celebrate the achievements of nearly one million trustees across the UK. Thank you for the time, commitment, and effort you bring to your charities to help them thrive.

Who are the trustees of the Pernicious Anaemia Society? Find out here! https://pernicious-anaemia-society.org/aboutus/

Save 10% on greeting cards and e-cards, now through 5 November! Whether for Christmas, birthday, anniversary, or just a ...
02/11/2025

Save 10% on greeting cards and e-cards, now through 5 November! Whether for Christmas, birthday, anniversary, or just a thank you or thinking of you moment, Making a Difference cards has a selection of beautiful and tasteful cards for every occasion.

A donation is made to the Pernicious Anaemia Society with every card sold!

Just use the code OCT10MD at checkout to unlock your discount.

https://gb.makingadifference.cards/supporting/pernicious-anaemia-society




Illustration by Yeferdi Art on Unsplash

The first day of November is World Vegan Day. Veganism has many advantages for individual health, as well as the health ...
01/11/2025

The first day of November is World Vegan Day. Veganism has many advantages for individual health, as well as the health of the planet. Many people who value animal rights are vegan. As more people become vegan, vegan foods have become tastier and more readily available in supermarkets and restaurants.

https://vegan-day.org/en/

The Vegan Society devotes a section of their website to helping vegans understand why vitamin B12 is so important, and ways to supplement it, since it is almost exclusively found in animal products.

https://www.vegansociety.com/resources/nutrition-and-health/nutrients/vitamin-b12/what-every-vegan-should-know-about-vitamin-b12

If you are being properly treated with B12 replacement therapy, there is no reason why you could not give vegan options a try.

If you are vegan and are concerned that you are not getting enough vitamin B12, take a look at our symptoms checklist. And talk to your doctor!

https://pernicious-anaemia-society.org/articles/symptom-checklist/

🩸 Vitamin B12 deficiency isn't just about diet! 🩸 While many associate B12 deficiency with poor nutrition, a significant...
31/10/2025

🩸 Vitamin B12 deficiency isn't just about diet! 🩸 While many associate B12 deficiency with poor nutrition, a significant number of cases are due to non-dietary causes, such as Pernicious Anaemia. This can lead to life-threatening complications if not diagnosed and treated early. Understanding the root cause is crucial.

Join the Pernicious Anaemia Society to support vital research, raise awareness, and ensure that everyone has access to the right information and care.

👉 Head to our website to learn more: https://pernicious-anaemia-society.org/

Support our charity by becoming a member or donating regularly. Follow our page for more insights and useful information about PA!







Becoming a member of the Pernicious Anaemia Society isn’t just about donating; it’s about investing in a collective futu...
30/10/2025

Becoming a member of the Pernicious Anaemia Society isn’t just about donating; it’s about investing in a collective future where PA is better understood, diagnosed earlier, and managed more effectively. It’s about translating personal passion into systemic progress.

https://substack.com/home/post/p-176035034

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