28/05/2026
“Waiting to Move Forward (While Just Getting Through Each Day)”
One of the hardest places to be in this journey? The gap between “we have a plan” and “we can begin.”
Right now, I’m waiting to speak with the specialist nurse before I can start trialling methotrexate. It sounds simple - just waiting for a call, a conversation, a green light. But when you’re unwell, waiting feels like its own kind of weight.
In the meantime, I’m on strong pain relief medication. And here’s the honest truth about that - it’s not really working.
It’s taking the edge off, but it’s also masking symptoms that still need to be properly understood. It’s a strange place to be: taking something to cope, while knowing it might be blurring the very picture the doctors need to see clearly.
Nobody tells you that managing an undiagnosed or unconfirmed condition can sometimes feel like you’re patching a leak while someone else looks for the source.
But I’m still here. Still advocating. Still waiting for that next conversation - because I know it’s a step closer to real answers.
If you’ve ever been stuck in the in-between, just you trying to get through the day this post is for you. 💛
WaitingForAnswers
