Hull Epilepsy Support

Hull Epilepsy Support Hull Epilepsy Support

Monthly meeting in Hull check out the following details www.epilepsy.org.uk/support-groups/hull-independent-group

13/04/2026

Did You Know? 🧠

There are several types of brain injuries we support here at P.A.U.L For Brain Recovery including:

• Traumatic Brain Injury (TBI) - from falls, assault or road traffic accident
• Arteriovenous Malformation (AVM)
• Tumours
• Stroke
• Aneurysm
• Haemorrhage
• Hypoxia
• Meningitis
• Encephalitis
• Concussion

If you or someone you know has been affected by an acquired brain injury, support is available. 💙

📞 Contact us at 01482 620229
📧 Email: info@paulforbrainrecovery.co.uk
🌐 Visit: https://paulforbrainrecovery.co.uk

You’re not alone — we’re here to help. ❤️

13/04/2026

Who's still got that finish line feeling one week on? 🏁🎉

📸: Kevin Greene - Your Event Photographers

11/04/2026
10/04/2026

Researchers at the University of Edinburgh are studying epilepsy in children under 5. Seizures in babies can be difficult to recognise and are often mistaken for normal behaviour.

Their goal is to develop a “remote” EEG that families can use in the community, whether at home or at the GP. They’re looking to hear from families with experience of EEG testing: what worked well, and what could be improved.

If you’d like to take part in the survey, follow the link below or contact the team directly:
https://app.onlinesurveys.jisc.ac.uk/s/edinburgh/epic-family
📧 epic.team@ed.ac.uk

31/03/2026

This series was co-designed with our co-production group to support organisations in the sport sector - and beyond - to embed co-production in their work. Across six short, focused sessions (20–30 minutes each), we explored practical approaches, shared lived experiences and tried to tackle ...

28/03/2026

In April and May, the Council for Disabled Children and the Department for Education are partnering to host a series of online and in-person engagement events as part of the SEND Reform: Putting Children and Young People First consultation.

These events are an important opportunity for anyone with an interest in the consultation to share their views on the proposals - including parents and carers, local authorities, schools, early years and further education settings, and social care and health representatives.

Each event will provide an overview of the consultation areas and the vision for reform, followed by breakout groups to discuss key consultation themes – you can choose the groups that are of most interest to you. These breakout sessions will be:

- Working together to respond to needs early
- Parents as partners in the system
- Inclusive mainstream system
- Specialist support and EHCPs
- Support across the whole system and join up between organisations
- Accountability, redress and appeals
- Recording needs across all layers of support

Space at events is limited so that conversations can be meaningful and the content will be the same at each event. Please only register for one of these events, so that as many people as possible can take part.

All dates, details and booking information are available here: https://councilfordisabledchildren.org.uk/work-us/events-training/events-training-calendar/send-reform-putting-children-and-young-people

28/03/2026

Does your brain ever feel "foggy"?

For the epilepsy community, brain fog is a very real side effect of meds, seizures, and recovery. Symptoms can include:

✔️Difficulty focusing or multitasking
✔️Forgetfulness and confusion
✔️That "fuzzy head" feeling
✔️Mood changes and fatigue
✔️Losing words mid-sentence
✔️Be kind to yourself today. Your brain is working hard!

25/03/2026

Forum CIO, a local charity supporting communities across Hull, will host its second annual Social Prescribing Day celebration on Thursday 26 March at Princes Quay - Hull.

Learn more 👉 https://orlo.uk/gXara

Address

Hull
Kingston Upon Hull

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