Hull Epilepsy Support

Hull Epilepsy Support Hull Epilepsy Support

Monthly meeting in Hull check out the following details www.epilepsy.org.uk/support-groups/hull-independent-group

21/05/2026

Join us for an online webinar covering PIP and benefits 💜

The session will cover:
Understanding PIP and Limited Capability for Work benefits.
Explaining how your health condition affects daily activities.
Navigating benefit applications and communicating with the Department of Work and Pensions

You can secure your spot here: https://brnw.ch/21x2yPb

20/05/2026

Good morning!
We are developing the 'Becoming an Adult' section of the website, to give you more information and be more accessible.
What would you like to see on there? What information do you keep looking for but struggle to find?
Drop a comment below or email LocalOffer@hullcc.gov.uk

20/05/2026

Kicking off National Epilepsy Week with a reminder of the strength of the epilepsy community 💜

So many voices. So many experiences.
So many organisations standing side by side so no one faces epilepsy alone.

We are proud to stand alongside others supporting people with epilepsy.



Epilepsy Society SUDEP Action: Making every epilepsy death count Epilepsy Research Institute Matthew's Friends Medical Keto Diet Support Forum Dravet Syndrome UK

07/05/2026

You may have seen concerning news this morning that some people are experiencing shortages in getting their medication.

(https://www.bbc.co.uk/news/articles/c202jqn3jzro?app-referrer=webview)

We are in contact with the National Pharmacy Association to monitor this situation, urging how important it is people with epilepsy get the right medications they have been prescribed.

What can do you do?

* Try to get your prescription earlier so if there is a problem you can try a different pharmacy or ask them to contact a different wholesaler. Independent pharmacies are more likely to be able to do this.

* Use our Don't Sub My Drug guide (https://www.epilepsy.org.uk/app/uploads/2025/04/EPILEPSY-ACTION-Dont-Sub-My-Drugs-leaflet.pdf) for more top tips and advice on discussing options with your pharmacist.

* You can also request a Charlie Card from SUDEP Action which allows you to request a minimum emergency supply from any chemist if you find yourself without your regular medication. (https://sudep.org/charlie-card/)

If you have any concerns and have been experiencing any issues getting your medication, get in touch with our Epilepsy Action helpline - call 0808 800 5050 or email helpline@epilepsy.org.uk

01/05/2026

Do you or someone you support find everyday self-care difficult at times?

In partnership with Hull City Council, Humberside Fire & Rescue Service, Humberside Police, and NHS Humber and North Yorkshire we’re inviting local people to share their experiences through this short anonymous survey to help improve support across Hull.

Your voice will help shape what services look like in the future. 💬

Take part: https://www.surveymonkey.com/r/NYSL7FL

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Kingston Upon Hull

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