Neuroendocrine Cancer UK

Neuroendocrine Cancer UK Supporting the Neuroendocrine Cancer community.

💙 A Day in the Life of… A Pancreatic DietitianWhat does a specialist pancreatic dietitian actually do?From helping patie...
21/05/2026

💙 A Day in the Life of… A Pancreatic Dietitian

What does a specialist pancreatic dietitian actually do?

From helping patients prepare for pancreatic surgery to supporting people living with pancreatic neuroendocrine tumours (pNETs) after treatment, Mary Phillips shares a behind-the-scenes look at life as a Dietitian working in hepato-pancreatico-biliary (HPB) surgery.

Managing pancreatic enzymes, diabetes, feeding tubes, nutritional deficiencies, and recovery after surgery all form part of this vital role within the multidisciplinary team.

Mary’s story highlights just how important nutritional support can be for people affected by neuroendocrine cancer.

📖 Read the full story: https://www.neuroendocrinecancer.org.uk/faces-of-ncuks/a-day-in-the-life-of-a-pancreatic-dietitian/

🎉 Fundraiser Friday 🎉This week we’re celebrating another incredible group of fundraisers who have turned personal experi...
15/05/2026

🎉 Fundraiser Friday 🎉

This week we’re celebrating another incredible group of fundraisers who have turned personal experiences, challenges and milestones into powerful support for Neuroendocrine Cancer UK.

From fundraising parties and charity walks to running events and mountain challenges, every fundraiser is helping to raise awareness of neuroendocrine cancer and support those affected by this often invisible disease.

💃 Hayley’s Fundraiser – £2,275.97 raised
After being diagnosed with neuroendocrine cancer, Hayley decided she wanted to celebrate life, dancing and community by hosting a special fundraising party ahead of her birthday. With raffle tickets, donation buckets and a room full of support, the night raised an incredible amount while helping spread awareness of neuroendocrine cancer.

🥾 Glasgow Kiltwalk 2026 – Fiona, David, Liz, Jen & Kate – £1,620.25 raised
Taking on the Glasgow Kiltwalk in support of Liz, who is living with neuroendocrine cancer, this amazing team came together to raise funds for research, awareness and support for everyone affected by the disease.

🏃‍♀️ Clare – AJ Bell Great Bristol Run 10K – £523.75 raised
Inspired by her dad, who has been living with neuroendocrine cancer for over 10 years, Clare stepped up from a 2.5k last year to complete the Bristol 10K this year - all to help raise awareness of this “invisible cancer.”

⛰️ Craig’s Yorkshire 3 Peaks Challenge – £590 raised
After major surgery for a pancreatic neuroendocrine tumour in 2022, Craig set himself the challenge of rebuilding both physically and mentally. Armed with Creon, carbs and determination, he successfully completed the Yorkshire 3 Peaks to support Neuroendocrine Cancer UK and inspire others facing similar journeys.

💙 Thank you to every single fundraiser, donor and supporter helping us continue to raise awareness and fund vital support and research.

12/05/2026

What has happened to the money raised by Daily Dip 4 Dave over the last two years?

It has gone towards what are known as "pump-priming grants: A pump priming grant is a small, short-term award designed to initiate new projects & pilot studies. These grants allow researchers to gather preliminary data and establish proof-of-concept, ultimately aimed at securing larger-scale, long-term external funding.

One of the grants awarded this year by Neuroendocrine Cancer UK is to Professor Martyn Caplin at the Royal Free Hospital & University College London, to create a cross-organ single-cell spatial atlas of neuroendocrine carcinoma using CosMx multiplexing.

Neuroendocrine Carcinoma (NEC) is a rare, fast growing cancer that can arise in many parts of the body and currently has limited effective treatment options. They think that many NECs, regardless of where they start, share similar underlying genetic faults. They will study these faults in routine tumour biopsy samples using a method that reads the activity of thousands of genes in individual cancer cells. By identifying common patterns across NECs, they hope to reveal new weaknesses that existing or future drugs could target and, in time, improve outcomes for patients.

This is the kind of research which WILL make a difference to everyone already diagnosed or soon to be diagnosed with this cancer and your donations and support of my challenge are making this possible.

Every fiver, every £20, every penny goes towards life saving research. The cost of a coffee and a bun out today could contribute to the important work so many amazing people are doing- to save lives and offer hope to people like Dave.

This is why I started Daily Dip 4 Dave.
Please continue to support me, share this with your friends and help me hit that 100k on July 5th

Donate here https://www.justgiving.com/page/dailydip4dave or comment for the link

💬 Support groups & events this week 💬Over the coming days we have a range of online and face-to-face support groups and ...
12/05/2026

💬 Support groups & events this week 💬

Over the coming days we have a range of online and face-to-face support groups and events taking place for anyone affected by neuroendocrine cancer.

This week includes our monthly webinar:

“Every moment matters: A Holistic Approach to End-of-Life Care”

This gentle and reassuring session will explore how to support dignity, respect and choice at the end of life, including:
• RESPECT forms
• Advance Care Planning
• Emotional and practical support
• Symptom control and quality of life

The webinar aims to provide clear, compassionate guidance during one of life’s most challenging times.

We also have:
🌍 Our online Northern Ireland support group
🫶 Dedicated support groups for those affected by neuroendocrine cancer of the:
• Pancreas & Duodenum
• Lung

🤝 Plus all of our local face-to-face support groups taking place across the UK.

Whether you’re newly diagnosed, living long-term with neuroendocrine cancer, supporting a loved one, or simply looking to connect with others who understand — you are always welcome.

📅 Please see the calendar below for full details and registration information - https://www.neuroendocrinecancer.org.uk/events/

🎉 Fundraiser Friday 🎉This week, we’re celebrating another incredible group of fundraisers who have gone the extra mile -...
08/05/2026

🎉 Fundraiser Friday 🎉

This week, we’re celebrating another incredible group of fundraisers who have gone the extra mile - from charity walks and half marathons to fundraising in memory of loved ones 🦓

🚶‍♀️ Mollie & Nottingham College Aviation Team – £768 raised
Students from Nottingham College completed a charity walk from Nottingham College to East Midlands Airport to raise awareness and funds for Neuroendocrine Cancer UK. Inspired by one student’s mum, who has been living with neuroendocrine cancer since 2017, the team walked proudly in support of everyone affected by this disease.

🏃‍♀️ Hattie – Henley River Half Marathon – £895 raised
Hattie took on the Henley River Half Marathon after seeing first-hand the impact neuroendocrine cancer can have when her dad was diagnosed and treated last year. Her fundraising is helping support awareness, research and families facing similar journeys.

🏃‍♂️🏃‍♂️ Paul & Gary – £2,009.37 raised
Running the Rhodes Marathon in memory of their friend and colleague Mike, Paul and Gary honoured a man remembered for his humour, resilience and love for life. Their fundraising is a tribute to someone who quietly battled neuroendocrine cancer with bravery and dignity for many years.

🏃‍♀️ Tess – Shakespeare Half Marathon – £2,288.75 raised
Following her mum’s diagnosis of pancreatic neuroendocrine cancer, Tess took on the Shakespeare Half Marathon to raise awareness and support Neuroendocrine Cancer UK. Inspired by her mum’s strength throughout surgery and recovery, she turned a deeply personal journey into something positive for others.

If you’d like to take on your own challenge or fundraiser for Neuroendocrine Cancer UK, we’d love to hear from you.

This week is Dying Matters Awareness Week - a time to encourage open, honest and compassionate conversations around deat...
06/05/2026

This week is Dying Matters Awareness Week - a time to encourage open, honest and compassionate conversations around death, dying and grief.

These conversations can feel difficult, but they can also help people feel more informed, supported, and in control during incredibly challenging times.

As part of this, we’ll be holding our next webinar:

❤️ Every moment matters: A Personalised Practical Approach to End-of-Life Care

This gentle and reassuring session will explore:
• Planning ahead, including RESPECT forms and Advance Care Planning
• Supporting dignity, respect, and choice at the end of life
• Practical guidance for patients and families

Future webinars will also explore communication, emotional wellbeing, symptom control, and physical care.

📅 13th May 2026
🕕 6:00pm – 7:30pm
📍 Online via Zoom
🎤 Erica Randall & Holly Cruickshanks, Health & Wellbeing Nurses, Neuroendocrine Cancer UK

This session is open to anyone wanting clear, supportive guidance in a safe and understanding space.

👉 Register here: https://register.enthuse.com/ps/event/Webinarendoflifecare

Kim was diagnosed with small bowel neuroendocrine cancer in December 2024, after experiencing symptoms for over a decade...
05/05/2026

Kim was diagnosed with small bowel neuroendocrine cancer in December 2024, after experiencing symptoms for over a decade.

Now living with inoperable disease and ongoing treatment, she has chosen to turn her experience into something powerful - supporting others and helping raise awareness of neuroendocrine cancer.

From joining support groups to helping launch a new patient group in Sheffield, Kim is making sure no one has to navigate this diagnosis alone.

💬 “During a most difficult and confusing time, it's really important to me to try to help other patients have a positive experience in their overall care.”

📖 Read Kim’s story: https://www.neuroendocrinecancer.org.uk/faces-of-ncuks/living-with-neuroendocrine-cancer-and-giving-back-by-kim/

🎉 Fundraiser Friday 🎉This week, we’re proud to be featuring some of our incredible London Marathon runners - each with t...
01/05/2026

🎉 Fundraiser Friday 🎉

This week, we’re proud to be featuring some of our incredible London Marathon runners - each with their own powerful reason for taking on 26.2 miles in support of Neuroendocrine Cancer UK.

🏃‍♂️ Andy – £1,866.75 raised
Running in memory of his dad, Andy took on the London Marathon to support research into a cancer that felt unknown and underfunded when his family needed answers the most. His run was a powerful way to turn loss into action and give a voice to a cause that matters deeply to him.

🏃‍♀️ Jasmine – £2,588.88 raised
Jasmine ran in support of her incredible grandad, whose strength and resilience through years of treatment has been her biggest inspiration. From diagnosis to recovery, his journey fuelled every mile - making this marathon about so much more than the finish line.

🏃‍♀️ Hannah – £1,444.99 raised
After losing her dad to neuroendocrine cancer, Hannah ran to raise awareness of the challenges around diagnosis and to support better outcomes for future patients. Carrying his memory with her every step of the way, she crossed the finish line with both pride and purpose.

🏃‍♂️ Matt – £1,142.50 raised
Matt took on his first marathon after his mum’s recent diagnosis, using the challenge to raise awareness of a cancer he had never heard of before. With a focus on improving early diagnosis and outcomes, his run represents hope, determination and support for others on the same journey.

💙 Thank you to all of our London Marathon runners - your strength, dedication and stories continue to inspire us all.

➡️ Unfortunately, we have not been allocated any charity places for the 2027 London Marathon. However, we encourage everyone to apply through the public ballot - with plans for the event to become a two-day race, your chances of securing a place are even higher. If you’re successful, we’d love for you to run and fundraise for Neuroendocrine Cancer UK.

Address

Neuroendocrine Cancer
Leamington Spa
CV324JL

Opening Hours

Tuesday 10am - 4pm
Wednesday 10am - 4pm
Thursday 10am - 4pm

Telephone

+441926883487

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