Neuroendocrine Cancer UK

15/04/2026

🎙️ Introducing our new podcast series: The Invisible Cancer - Bringing visibility to neuroendocrine cancer.

Behind every statistic in the Invisible Cancer Report is a real person, a real journey, and a story that deserves to be heard.

In the first episode, we hear from the voices behind the report - Kerie and Gordon share their experiences of living with neuroendocrine cancer, the reality of delayed diagnosis, and why this often-overlooked cancer must be brought into the spotlight.

💬 From uncertainty and missed signs to finally getting answers, this is an honest and powerful conversation about why earlier diagnosis and greater awareness are urgently needed.

📊 The Invisible Cancer Report highlights the challenges faced by so many in our community - and this episode brings those findings to life through real experiences.

🎧 Listen now and help us make neuroendocrine cancer visible.
👉 https://www.neuroendocrinecancer.org.uk/podcast/
📖 Read the report: https://www.neuroendocrinecancer.org.uk/invisible-cancer/

13/04/2026

💬 You’re not alone - support is here 💬

Over the next couple of weeks, we have a range of support groups and events taking place - both online and in person - for anyone affected by neuroendocrine cancer.

Whether you’re looking to:
- Connect with others who understand
- Share your experiences
- Learn more through our webinars
- Feel part of a supportive community

There is something for you.

📅 Take a look at the calendar below to find a group or event that feels right for you.

From diagnosis to living long-term with neuroendocrine cancer, and for friends and family too - you are always welcome.

Register here: https://www.neuroendocrinecancer.org.uk/events/

13/04/2026

08/04/2026

Support groups and events taking place throughout April.

Register here: https://www.neuroendocrinecancer.org.uk/events/

07/04/2026

When Life Feels Out of Control, Shan’s Story

When Shan was told she had a large tumour on her pancreas, her world turned upside down.

From two weeks of uncertainty and fear, to navigating diagnosis, treatment, and learning to live with stage 4 neuroendocrine cancer - her story is one of honesty, resilience, and regaining control.

💬 “I had gone from a happy-go-lucky mum… to a terrified wreck in the space of one day.”

But today, Shan is living well, finding joy in everyday moments and embracing a new perspective on life.

📖 Read her full story: https://www.neuroendocrinecancer.org.uk/faces-of-ncuks/when-life-feels-out-of-control-shans-story/

03/04/2026

🎉 Fundraiser Friday 🎉

Another week, another group of incredible fundraisers going the distance to support those affected by neuroendocrine cancer 🦓

From half marathons to walking challenges, every step taken is helping to raise awareness of a cancer that is still too often misunderstood, underdiagnosed and underfunded.

🏃 John – Bath Half Marathon – £566.25 raised
Taking on one of the UK’s most prestigious half marathons, John pushed himself in support of his brother Chris, who is living with neuroendocrine cancer - turning a tough personal challenge into something truly meaningful.

🏃 James – Bath Half Marathon – £800 raised
James ran in memory of his colleague Olivia, who sadly passed away from neuroendocrine cancer. Supported by Olivia’s family on the day, his run was a powerful tribute and a way to continue supporting research into this disease.

🏃‍♀️ Elena – Cambridge Half Marathon – £1,716.25 raised
Elena took on the Cambridge Half Marathon after seeing first-hand the impact of neuroendocrine cancer on someone close to her. Her run helped raise both vital funds and awareness of a disease many people still know very little about.

🚶‍♀️ Karen – 100 Mile March Challenge – £1,257.50 raised
Karen set herself an incredible challenge - to walk 100 miles across March - and went above and beyond, reaching over 150 miles! Fundraising in support of her brother-in-law Mark, she highlighted the importance of support and community for those living with neuroendocrine cancer.

If you’ve been inspired and would like to take on your own challenge, we’d love to hear from you.

01/04/2026

Neuroendocrine cancer symptoms don’t always look the same…

Neuroendocrine tumours can develop in different parts of the body - including the pancreas, lungs and digestive system - and because they arise from hormone-producing cells, symptoms can vary widely.

For some people, there may be no symptoms at all at first.
For others, symptoms can be unclear, come and go, or be mistaken for more common conditions.

This is one of the reasons neuroendocrine cancer is often called an “invisible cancer.”

Symptoms can depend on:
👉 Where the tumour is in the body
👉 Whether it is producing excess hormones

💭 From your experience…
What symptoms did you have - and were they recognised early?

Sharing your experience could help someone else feel seen, heard, and supported ❤️

30/03/2026

Support groups and events, including our monthly webinar taking place on Wednesday! We hope to see you there.

Register here: https://www.neuroendocrinecancer.org.uk/events/

27/03/2026

🎉 Fundraiser Friday 🎉

This week, we’re celebrating some truly incredible runners who have taken on half marathons both in the UK and internationally - all to raise awareness and vital funds for Neuroendocrine Cancer UK.

From personal diagnoses to supporting loved ones, every story behind these miles is powerful, and every step taken is helping to make a difference.

🏃‍♂️ Joshua – Cambridge Half Marathon
Joshua took on the Cambridge Half Marathon in support of his wife, who was diagnosed with pancreatic neuroendocrine cancer shortly after the birth of their first baby. Despite not being a runner, Joshua stepped up in an incredible way - raising an outstanding £29,841.35 for Neuroendocrine Cancer UK. He’s not stopping there either, with his next challenge already lined up at the Northampton 10K.

🏃 Scott – Kettering Half Marathon
Running for his mum, Scott completed the Kettering Half Marathon and raised £551.25.
Battling through tired legs in the final stretch, he pushed on to the finish line - proving that determination and purpose can carry you through even the toughest moments.

🇫🇷 Franky – HOKA Semi de Paris
Franky took on the streets of Paris, running the HOKA Semi de Paris and raising £1,447.00 in support of a loved one living with neuroendocrine cancer. With an incredible finish time of 1 hour 49, Franky combined a brilliant race with meaningful fundraising for a cause close to her heart.

🇫🇷 Josie – HOKA Semi de Paris
After an unexpected diagnosis of neuroendocrine cancer following emergency surgery, Josie turned her experience into something powerful. Taking on the Paris Half Marathon, she raised an amazing £1,740.00, finishing in 1 hour 50 and using her journey to raise awareness and support others facing the same diagnosis.

If this week’s fundraisers have inspired you and you are thinking about taking on a challenge, we’d love to hear from you.

25/03/2026

A Day in The Life of a Clinical Oncologist – Professor Jon Wadsley - Sheffield Teaching Hospitals NHS Foundation Trust.

What does a day look like for the specialists treating neuroendocrine cancer?

From leading treatment decisions in multidisciplinary team (MDT) meetings, to supporting patients through complex therapies like PRRT, chemotherapy, and radiotherapy - this story gives a behind-the-scenes look at the work of Professor Jon Wadsley at Weston Park Cancer Centre.

It’s a role that combines science, teamwork, and compassion - walking alongside patients and their families through some of the most challenging moments, while helping shape the future of cancer treatment through research and innovation.

👩‍⚕️ This is what neuroendocrine cancer care looks like behind the scenes.

📖 Read the full story: https://www.neuroendocrinecancer.org.uk/faces-of-ncuks/a-day-in-the-life-of-jon-wadsley/

🎓 Join Professor Jon Wadsley for our next webinar: Your Place in Research

Our monthly webinars provide practical advice, expert insight, and a supportive space for anyone impacted by neuroendocrine cancer.

In this session, Professor Jon Wadsley will explore your role in research, including clinical trials, and why patient voices are essential in shaping meaningful and effective studies.

📅 Date: 1st April 2026
🕕 Time: 6:00pm – 7:30pm

👉 Sign up today: https://www.neuroendocrinecancer.org.uk/events/webinar-research-2/

24/03/2026

On World Cancer Day 2026, Neuroendocrine Cancer UK (NCUK) launched a new report, The invisible cancer: How delays, misdiagnosis and unequal treatment of neuroendocrine cancer in the UK are costing lives, calling for greater recognition and understanding of neuroendocrine cancer.
👏Congrats to Neuroendocrine Cancer UK : The Invisible Cancer campaign not only secured widespread media coverage across the UK, shining a national spotlight on the urgent challenges facing people with neuroendocrine cancer, but also drove a powerful surge in more people visiting the NCUK website, sharing the report, seeking information and connecting with NCUK to better understand the signs, impact and need for earlier diagnosis.
✅Find out more and read the report: https://incalliance.org/ncuk-the-invisible-cancer/

20/03/2026

🎉🍰 FundraiserFriday Feature 🍰🎉

This week, we’re shining a spotlight on our amazing Manchester patient support group, who recently held their Cakes for a Cause event and raised a fantastic £157.50 for Neuroendocrine Cancer UK ❤️

Bringing people together, sharing bakes, and supporting one another – all while raising awareness and vital funds for those affected by neuroendocrine cancer.

The campaign is running throughout March, so there’s still time to get involved!

👉 Sign up today: https://www.neuroendocrinecancer.org.uk/support-ncuk/fundraise/cakes-for-a-cause/